Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2023

Hot flushes and cramp!

I feel like I have gone back in time to the menopause. I often have what can only be described as hot flushes - not quite the same surge as a menopausal flush...

I feel like I have gone back in time to the menopause. I often have what can onl...

•1 year ago

Kiwisuffere

At last I'm tapering again, in week 3 of DLs slow taper, after going back to 20mg from 10mg after Hubby passed away on Feb 1st. 3and a half years of PMR, dare...

At last I'm tapering again, in week 3 of DLs slow taper, after going back to 20m...

Kiwisufferer2019

•1 year ago

Mammogram delayed

Any information on ongoing left breast pain. I had a mammogram scheduled and then cancelled when I showed up for the appointment. They said I need a...

Any information on ongoing left breast pain. I had a mammogram scheduled and th...

•1 year ago

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Leflunomide or Tocilizumab

GCA/PMR since Dec 2018. Referred to rheumatologist in Feb 2020 because of repeated flares on prednisolone. Initially I resisted the offer of methotrexate and...

GCA/PMR since Dec 2018. Referred to rheumatologist in Feb 2020 because of repeat...

•1 year ago

Anemia

Hi, recent blood tests have shown that I am slightly anaemic. I was diagnosed with PMR two years ago and my inflammatory makers are still slightly raised. I am...

Hi, recent blood tests have shown that I am slightly anaemic. I was diagnosed wi...

•1 year ago

The below 5mm curse

Hello, I know we all seem to have this problem when tapering. I tapered down from 5mm Pred to 4 and 4.5 as per the Swedish plan. All was going well, then it...

Hello, I know we all seem to have this problem when tapering. I tapered down fr...

•1 year ago

What should I be doing about tapering prednisolone?

Hello again, good people. I posted a few weeks ago when newly diagnosed and have learned a lot from your advice but I think I need a bit more. I said then my...

Hello again, good people. I posted a few weeks ago when newly diagnosed and have...

•1 year ago

sed rate 20

I’m sure this question has been asked many times but alas, I can’t find what I’m looking for. 6 months ago my Sed rate was 9; now it’s 20. Should I be...

I’m sure this question has been asked many times but alas, I can’t find what I’m...

•1 year ago

After blood results, so many new things.

Just had the phone appointment with the Rheumy ~ finally. Blood glucose 7.7 (which indicates diabetes). Last month was normal. CRP 4. Cholesterol is high, so...

Just had the phone appointment with the Rheumy ~ finally. Blood glucose 7.7 (w...

•1 year ago

Welcome to our new members May 2023

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Partner•1 year ago

Are side effects pmr/hypothalamus/adrenal related?

Had some sort of flare, possibly activated by the bivalent covid booster although discussion on here suggested it did not seem like a normal flare, in...

Had some sort of flare, possibly activated by the bivalent covid booster althoug...

•1 year ago

Will I know if/when adrenals start again?

Many, many thanks for all the advice and experience I've learnt from this site which I found only after GP wanted a too fast reduction and I had what I now...

Many, many thanks for all the advice and experience I've learnt from this site w...

•1 year ago

Cortisol levels whilst on 13mgs Pred.

For some reason a new GP said he wanted a blood test to check my cortisol levels. I shrugged my shoulders , thinking there was no point but went along with it....

For some reason a new GP said he wanted a blood test to check my cortisol levels...

•1 year ago

Weight

I’ve been on Prednisolone since end of January. At first my weight dropped due to lack of appetite, but this last week it has gone up quite a bit. When it...

I’ve been on Prednisolone since end of January. At first my weight dropped due t...

•1 year ago

Hot flashes?

Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on...

Am having ever more hot flashes and sweating around my neck over last several mo...

•1 year ago

What amount of prednisone is equivalent to average cortisol levels?

And If you are on a very small dose of prednisone do your adrenals still release cortisol to maintain some sort of homeostasis in your system? Does...

And If you are on a very small dose of prednisone do your adrenals still releas...

•1 year ago

time travel

why have posts from 6 years ago suddenly appeared?

why have posts from 6 years ago suddenly appeared?

•1 year ago

Short Period of Pred Increase

Pmr sufferer for 3 and half years and currently on 9mg of pred. Initially prescribed 40mg of pred which proved to be too much for pmr and suffered very high...

Pmr sufferer for 3 and half years and currently on 9mg of pred. Initially prescr...

choirsinger1986

•1 year ago

Moods while tapering/sadness and also so cold all the time!

Have others experienced depression when lowering prednisone dose? I am so sad since I tapered to 7.0 mg prednisone. The pain is absent but I am just tired,...

Have others experienced depression when lowering prednisone dose? I am so sad si...

•1 year ago

Prednisalone

I feel in between the devil and the deep blue sea ,I am taking 12mg pred with awful side effects ,mainly with stomache and mood ,I've always had a dodgy...

I feel in between the devil and the deep blue sea ,I am taking 12mg pred with aw...

•1 year ago

Can you 'demand' Tocilizumab for GCA?

I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw...

I was diagnosed with PMR in January 23, responded well to steroids (15mg) but qu...

•1 year ago

Deathly fatigue but not adrenal function

Hi, for the last 2 and a bit weeks I have felt utterly exhausted all the time. I am normally very active- walking, cycling- but just have crippling...

Hi, for the last 2 and a bit weeks I have felt utterly exhausted all the time. I...

•1 year ago

PMR confusion over drug timings

Hi, I have PMR and been taking prednisolone for about a year, trying to reduce and now on 9mg daily. I take Omeprazole in the early morning, before Pred. and...

Hi, I have PMR and been taking prednisolone for about a year, trying to reduce a...

•1 year ago

GCA/PMR

Hi I haven't posted for a long time been managing this rotten condition for 7 yrs but I now need some advice. I have reduced to 2.5mg from 40mg with two or...

Hi I haven't posted for a long time been managing this rotten condition for 7 yr...

•1 year ago

Possibility it’s not PMR

Hi, I was diagnosed with PMR a few years ago and have been on Pred since then. I’ve been tapering off of Pred with a few flare ups but managed to get down to...

Hi, I was diagnosed with PMR a few years ago and have been on Pred since then. ...

•1 year ago

More advice needed please

I would appreciate some more advice please. As stated before I thought I was doing well and had got down to 5mg on 3rd April this year after diagnosis in...

I would appreciate some more advice please. As stated before I thought I was d...

•1 year ago

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