Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for November 2022

Low Sodium

Yesterday I had my usual blood test as I’m on methotrexate, today I had a phone call from the Doctors Surgery to say they have made me a Doctors Appointment...

Yesterday I had my usual blood test as I’m on methotrexate, today I had a phone ...

Phed

•2 years ago

21 Replies

Alendronic Acid

I have had GCA for ten years now and as the result of the last of three relapses agreed to take 3mg of predisolone for the foreseeable future. When I last saw...

I have had GCA for ten years now and as the result of the last of three relapses...

prunus

•2 years ago

43 Replies

leg pain

I have been having terrible tight cramping pains in my legs when I walk. My GP thinks it is fluid retention and has given me a diuretic which does not help. I...

I have been having terrible tight cramping pains in my legs when I walk. My GP ...

Caradomben

•2 years ago

19 Replies

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Blurred Vision

Has anyone experienced blurred vision with Leflunomide please and did it improve over time? Ive been on initial low dose for just over 2 weeks and my vision is...

Has anyone experienced blurred vision with Leflunomide please and did it improve...

HappyDiamonds

•2 years ago

15 Replies

Shingles and GCA

Hi good people I’m curious to know if anybody here has after being diagnosed with GCA which I’m on 40mg pred, then after a few months ends up with shingles in...

Hi good people I’m curious to know if anybody here has after being diagnosed wit...

WHL67

•2 years ago

11 Replies

Diffusers

On November 3rd I had a bit of dental treatment and the surgery smelled really good so I walked over to the diffuser and sniffed in.... I have been feeling...

On November 3rd I had a bit of dental treatment and the surgery smelled really g...

Hidden

•2 years ago

10 Replies

Covid jab

I have the howling cold I mentioned in the last post and also I have a COVID jab appointment this week. Should I cancel????

I have the howling cold I mentioned in the last post and also I have a COVID jab...

Hidden

•2 years ago

18 Replies

Cold Achoo for 3 weeks...

I am really disliking this cold I've had for three weeks! Grrr... It seems like Sinusitis as my nose is forever blocked and when I blow my nose bleeds at...

I am really disliking this cold I've had for three weeks! Grrr... It seems like...

Hidden

•2 years ago

7 Replies

Kennel Cough Vaccine for Dogs

I have another question too. My dog has had a kennel cough vaccine since she was a pup as doggy day care etc insist on it. However as I'm on prednisolone, now...

I have another question too. My dog has had a kennel cough vaccine since she was...

Millymolly64

•2 years ago

7 Replies

Raised Creatinine in urine

Hello everyone I was diagnosed with PMR in January and am now down to 4.5mg prednisolone. Having piled on the pounds at first I have been on a low carb diet...

Hello everyone I was diagnosed with PMR in January and am now down to 4.5mg pred...

Millymolly64

•2 years ago

4 Replies

How long till the dripping tap causes the bucket to overflow?

I’ve been going pretty well on my three weekly TCZ injections and have managed to get down to 0.5mgs pred after a couple of hiccups … it’s taken over 2 years...

I’ve been going pretty well on my three weekly TCZ injections and have managed t...

LemonZest11

•2 years ago

13 Replies

Length of time on Pred

Sitting on my own watching Xmas movies,and iam wondering how long you lovely people have been on pred it's 5years for me and trying not to lose heart but...

Sitting on my own watching Xmas movies,and iam wondering how long you lovely pe...

Harrywogan

•2 years ago

52 Replies

Cortisone shot or raise prednisone level

Hi, I haven't posted in a while but have been reading and appreciating the daily posts. I have been slowly tapering by .25 and am currently at 2.25mg pred....

Hi, I haven't posted in a while but have been reading and appreciating the dail...

slopers

•2 years ago

13 Replies

Prednisolene packaging.

Thank you for message advising me of alternative packaging . Most helpful.No my pain is not at night but unrelentingly in my hands it is constant though...

Thank you for message advising me of alternative packaging . Most helpful.No my...

Freya32

•2 years ago

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Not sure what to do

I was diagnosed with PMR in January 2021 and have been under the care of my GP. I am now taking 7.5 mg daily but am still getting pain in my arms and shoulders...

I was diagnosed with PMR in January 2021 and have been under the care of my GP. ...

Jomaur

•2 years ago

62 Replies

Stuck at 3mg

Feeling disheartened at not being able to get below 3mg - I have been stuck here for 6 months, and whenever I try to reduce, I flare. I'm caught between a rock...

Feeling disheartened at not being able to get below 3mg - I have been stuck here...

Sanekate

•2 years ago

10 Replies

Cannot be bothered syndrome!

Hi, Having reduced my pred dose from 20mg, i have been on 7mg for 3 weeks. I had some initial tiredness and sugar craving. That seemed to improve but have been...

Hi, Having reduced my pred dose from 20mg, i have been on 7mg for 3 weeks. I had...

Animalover65

•2 years ago

29 Replies

Back Again

Hi, was told a couple of years ago that my PMR had subsided enough to go onto 1:2 mg alternate days. Few weeks ago I was told to stop it altogether as my ESR...

Hi, was told a couple of years ago that my PMR had subsided enough to go onto ...

KCRoyals

•2 years ago

12 Replies

Insomnia update - anyone used Sleepstation?

Saw doc 14th Nov re insomnia. He reluctantly prescribed Zoplicone as an emergency measure as he told me they were addictive. He recommended an online course,...

Saw doc 14th Nov re insomnia. He reluctantly prescribed Zoplicone as an emergenc...

Bluey-1

•2 years ago

32 Replies

2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis

This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’...

This came to my attention in the Lancet: ‘Better tools required for biopsy nega...

Exflex

•2 years ago

2 Replies

Any thoughts on this

Having spoken to my GP thinks all my vaccines have possibly up my inflammation level as I had flu,covid, and following week had shingles, then broke collarbone...

Having spoken to my GP thinks all my vaccines have possibly up my inflammation l...

Harrywogan

•2 years ago

6 Replies

Glucocorticoid induced adrenal insufficiency

This article was in the latest BMJ and mentions PMR. I wonder how many doctors actually do what is suggested? Scroll down to page 328....

This article was in the latest BMJ and mentions PMR. I wonder how many doctors a...

piglette

•2 years ago

17 Replies

Tapering around a particular holiday.

I just started tapering to 8.5 from 9mgm today Sunday. My next drop is due this coming Thursday-Thanksgiving. I don’t want to mess up the schedule much. Should...

I just started tapering to 8.5 from 9mgm today Sunday. My next drop is due this ...

Karenjaninaz

•2 years ago

7 Replies

skin thinning - or tendency to bang skin more

hello everyone a silly thing on Friday, but I was merely changing the bed covers & I caught my arm on the mattress seam. I couldn’t believe the blood! It...

hello everyone a silly thing on Friday, but I was merely changing the bed cove...

Doraflora

•2 years ago

28 Replies

Chicken Pox danger still at at 7 mg?

I live in Malta and I am due to go back to UK on Thursday, (3 days time). One of my grandchildren (1 and a half) is suspected to be infected. While I won't see...

I live in Malta and I am due to go back to UK on Thursday, (3 days time). One of...

Predderman2020

•2 years ago

35 Replies

My PMR and GCA story so far...

I've had GCA twice so far, and I think I'm going down with it again at present. I've had PMR since October 2009, when I began to get a constant and...

I've had GCA twice so far, and I think I'm going down with it again at present. ...

MiniSpec

•2 years ago

19 Replies

Vitamin D supplement

Have been watching Dr John Campbell on U Tube and he is recommending taking a large amount of Vit D to avoid catching Covid or any other virus infection. It...

Have been watching Dr John Campbell on U Tube and he is recommending taking a l...

Booklist

•2 years ago

26 Replies

Not PMR, Its Fibromyalgia.

Been to see a rheumatologist for the first time. Following loads of questions, xrays, bloods and urine tests, and painful prodding and poking, discovered its...

Been to see a rheumatologist for the first time. Following loads of questions, x...

Penny9

•2 years ago

41 Replies

Four days in...

Four days in to my seven days on 12 mg and I feel better than I've felt in many weeks. I still have niggles but they seem to be receding a bit further every...

Four days in to my seven days on 12 mg and I feel better than I've felt in many ...

Hidden

•2 years ago

15 Replies

Tapering

Hi, I'm currently trying to tapering from 8mg to 7mg Prednisone but think this may have been a step too far! I have 5mg & 1mg ordinary pred plus 2.5mg gastro...

Hi, I'm currently trying to tapering from 8mg to 7mg Prednisone but think this m...

Pusph

•2 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

Low Sodium

Alendronic Acid

leg pain

Blurred Vision

Shingles and GCA

Diffusers

Covid jab

Cold Achoo for 3 weeks...

Kennel Cough Vaccine for Dogs

Raised Creatinine in urine

How long till the dripping tap causes the bucket to overflow?

Length of time on Pred

Cortisone shot or raise prednisone level

Prednisolene packaging.

Not sure what to do

Stuck at 3mg

Cannot be bothered syndrome!

Back Again

Insomnia update - anyone used Sleepstation?

2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis

Any thoughts on this

Glucocorticoid induced adrenal insufficiency

Tapering around a particular holiday.

skin thinning - or tendency to bang skin more

Chicken Pox danger still at at 7 mg?

My PMR and GCA story so far...

Vitamin D supplement

Not PMR, Its Fibromyalgia.

Four days in...

Tapering

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