Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for November 2022

Prednisone or prolia?

I've been on prednisone for two and a half years, at 5mg ATM. I have just had my 4th 6 monthly injection of prolia or osteoporosis. I finally got round to...

I've been on prednisone for two and a half years, at 5mg ATM. I have just had my...

Caloo650

•2 years ago

6 Replies

Tapering but no 1mg pills here

I've managed to taper down to 10mg Pred using DL schedule - so grateful for the invaluable info on this forum. PMR was diagnosed in March and I started at 40mg...

I've managed to taper down to 10mg Pred using DL schedule - so grateful for the ...

Abykarma

•2 years ago

20 Replies

Pulsing in ears ... pulsatile tinnitus?

Could this be one of the side effets of long term Pred ? Pulsing in ears but not always synchronised to heart beat. It happens now and again. Mainly in the...

Could this be one of the side effets of long term Pred ? Pulsing in ears but not...

Dochaz

•2 years ago

19 Replies

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Upcoming hip replacement ..advice please!!

Hallo everyone. I really don’t know what to do for the best and would like your take on my situation. Have had PMR for over 3 years and am now eventually down...

Hallo everyone. I really don’t know what to do for the best and would like your ...

Tapestry1057

•2 years ago

20 Replies

DSNS tapering preds

I'm trying to find more info on DSNS but can't for the life of me find anything on how to do it? I can see posts on people who have tried it or doing it but...

I'm trying to find more info on DSNS but can't for the life of me find anything ...

Ruthie64

•2 years ago

25 Replies

Abandon current taper or?

Morning all..I have successfully tapered from 5mg at the end of January to 4mg using DSNS method with no problems along the way..I stayed on 4mg for 4 weeks...

Morning all..I have successfully tapered from 5mg at the end of January to 4mg u...

Louisnhoe

•2 years ago

29 Replies

LDN vs methotrexate

Hi I'm due to have a telephone consultation on Monday 21st November, which is my second appointment. I was diagnosed with PMR and Sjogrens syndrome on 18th...

Hi I'm due to have a telephone consultation on Monday 21st November, which is my...

BiBaBo

•2 years ago

21 Replies

Giant Cell Arteritis ——-Medication.

Diagnosed in August 2022. Started on 50 mg of Prednisolone , down to 35 in September, down to 25 in October & November & next week down to 20mg. As I am 77...

Diagnosed in August 2022. Started on 50 mg of Prednisolone , down to 35 in Septe...

CavalierKC3

•2 years ago

36 Replies

Losing replies?

I've had 2 replies to my post with lots of good advice which I'll take on board. I've replied to both of you, PMRpro and SnazzyD, but when I log out my replies...

I've had 2 replies to my post with lots of good advice which I'll take on board....

Maggiechris

•2 years ago

17 Replies

Ozurdex injection

I am at some time in the not too distant future having Ozurdex implant in my eyes. Ozurdex is a steroid. Will this have any effect on the steroids I...

I am at some time in the not too distant future having Ozurdex implant in my e...

Koalajane

•2 years ago

27 Replies

First rheumatology appointment

Hi all I have my first rheumatology appointment next week and wondered if anyone has any advice. I was diagnosed with PMR in January and had pain in one...

Hi all I have my first rheumatology appointment next week and wondered if anyon...

Pegasu

•2 years ago

15 Replies

Continue to taper or not?

Hi everyone, bit of advice needed. Earlier on this year, on my GP's advice, I tapered by 1mg per month to 3mg per day by which time I felt so wretchedly ill I...

Hi everyone, bit of advice needed. Earlier on this year, on my GP's advice, I t...

Maggiechris

•2 years ago

13 Replies

Leflunomide no more

So my rheumatologist told me to stop taking leflunomide as it was causing me increasing numbness and mild pain in my feet and hands. I started this (20 mg/day)...

So my rheumatologist told me to stop taking leflunomide as it was causing me inc...

Alebeau

•2 years ago

7 Replies

Now what??

I last wrote 4 years ago when I thought I was in the end game with PMR- after all, it had been 2 years! I've been plodding along since then, always a bit...

I last wrote 4 years ago when I thought I was in the end game with PMR- after al...

ponai

•2 years ago

6 Replies

Pain !

Hi everyone my my question is , i am doing DL method of tapering very slowly. It has taken me ages to reduce from 10 mgs Pred down to 7,5 i was going along...

Hi everyone my my question is , i am doing DL method of tapering very slowly. I...

Viv54

•2 years ago

25 Replies

Cough cough cough update

Things got worse. Trouble breathing. Emergency hospital admission Wednesday evening. Tests galore. Puzzling docs as xray 'clear'. In Acute Admissions Unit....

Things got worse. Trouble breathing. Emergency hospital admission Wednesday eve...

JanetRosslyn

•2 years ago

55 Replies

Methotrexate and blood tests

I was switched from oral methotrexate to metoject pens 10 weeks ago and have shared care between GP and rheumatology meaning I can have my bloods taken at my...

I was switched from oral methotrexate to metoject pens 10 weeks ago and have sha...

Topcar

•2 years ago

15 Replies

COVID & Paxlovid

Well, I finally got it. Seems a lot like flu, but with no vomiting or diarrhea. My rheumy prescribed Paxlovid, which I started today (1st symptoms Tuesday...

Well, I finally got it. Seems a lot like flu, but with no vomiting or diarrhea....

winfong

•2 years ago

15 Replies

struggling with getting a diagnosis GCA

This is my second time around, having initially presented 13 years ago aged 47, with new headache, vascular noises, jaw cramping, which responded well to...

This is my second time around, having initially presented 13 years ago aged 47, ...

Hidden

•2 years ago

20 Replies

Enteric (acid resistant) gel capsules for taking Pred

I'm experimenting with trying to take Pred at different times to see if I can lessen the effects of insomnia. Thanks to a recommendation from PMRCanada, I...

I'm experimenting with trying to take Pred at different times to see if I can le...

tangocharlie

•2 years ago

11 Replies

Can anyone who has experienced it please explain the difference between 'withdrawal pain' and return of symptoms when reducing Pred dose?

I am currently on a high dose of Pred (22 per day). I feel this is the bare minimum my body needs, and I actually possibly need more. If I take, say 22.5, I...

I am currently on a high dose of Pred (22 per day). I feel this is the bare min...

tangocharlie

•2 years ago

87 Replies

PMR, prednisone and Raynaud Syndrome

Been on prednisone for eight months for my battle with PMR and am now experiencing Raynaud syndrome. Wondering if this is a coincidence or if anyone else has...

Been on prednisone for eight months for my battle with PMR and am now experienci...

JMT_hiker

•2 years ago

14 Replies

Why do GPs measure measure CRP but not ESR?

It’s happened twice now, and when queried why I haven’t been given a proper answer, other than that’s all that was requested. My CRP was 16 and ESR 35 on...

It’s happened twice now, and when queried why I haven’t been given a proper ans...

Exflex

•2 years ago

39 Replies

Struggling post holiday

Hi All,I would greatly appreciate your thoughts on my current status. I've recently returned from a lovely holiday long haul destination. After outward...

Hi All,I would greatly appreciate your thoughts on my current status. I've rece...

CarolF1312

•2 years ago

24 Replies

Tapering

Hi, I’m currently on six mg, have been for about six weeks, was hoping to try 5.5, but I’ve had terrible pains in my legs and feet for the past two night....

Hi, I’m currently on six mg, have been for about six weeks, was hoping to try 5....

Carathedog

•2 years ago

12 Replies

Near miss

Yesterday, happily driving along a country road at about 45mph, I saw ahead of me, a car coming out of a driveway. No problem, obviously she's going to stop...

Yesterday, happily driving along a country road at about 45mph, I saw ahead of m...

ChrisinNam

•2 years ago

13 Replies

Do adrenals starting up equate to a small rise in ESR and CPR?

Now on 7 mg/day for GCA/LVV (started on 40 mg), my latest 2 blood tests show a small but gradually increasing rise in ESR (23) and CRP (6). Is this adrenals...

Now on 7 mg/day for GCA/LVV (started on 40 mg), my latest 2 blood tests show a s...

Dochaz

•2 years ago

6 Replies

Not sure what to do!!

Not a very good heading, but it sums up my current situation with my GP. You will know some of this, but just to recap, I have had Polymyalgia for 5 years...

Not a very good heading, but it sums up my current situation with my GP. You wi...

Purplegloss

•2 years ago

10 Replies

Ischial bursitis anyone?

My problems initially started with what I called sit bone pain after sitting on a wrought iron chair for two hours without a cushion (I now know how daft that...

My problems initially started with what I called sit bone pain after sitting on ...

Pr0jection

•2 years ago

7 Replies

Quick taper?

My CRP was rising and with lots of pain killers. Dr raised my 10 mg to 15 mg Prednisilone for 5 weeks. Now, CPR has come down by half and he is advising I...

My CRP was rising and with lots of pain killers. Dr raised my 10 mg to 15 mg Pre...

Abbeynan82

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

Prednisone or prolia?

Tapering but no 1mg pills here

Pulsing in ears ... pulsatile tinnitus?

Upcoming hip replacement ..advice please!!

DSNS tapering preds

Abandon current taper or?

LDN vs methotrexate

Giant Cell Arteritis ——-Medication.

Losing replies?

Ozurdex injection

First rheumatology appointment

Continue to taper or not?

Leflunomide no more

Now what??

Pain !

Cough cough cough update

Methotrexate and blood tests

COVID & Paxlovid

struggling with getting a diagnosis GCA

Enteric (acid resistant) gel capsules for taking Pred

Can anyone who has experienced it please explain the difference between 'withdrawal pain' and return of symptoms when reducing Pred dose?

PMR, prednisone and Raynaud Syndrome

Why do GPs measure measure CRP but not ESR?

Struggling post holiday

Tapering

Near miss

Do adrenals starting up equate to a small rise in ESR and CPR?

Not sure what to do!!

Ischial bursitis anyone?

Quick taper?

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