Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for November 2022

General health site

I am seeing posts for a variety of conditions and I only want to see PMR site. How do I change that please?

I am seeing posts for a variety of conditions and I only want to see PMR site. H...

Suedeshayes

•2 years ago

5 Replies

Update on shooting pain to breast - esophagitis

I have gastritis and esophagitis to add to my woes and the shooting pain it appears was possibly my esophagus going in to spasm. It hasn't happened again...

I have gastritis and esophagitis to add to my woes and the shooting pain it appe...

HappyDiamonds

•2 years ago

6 Replies

PMR or Myofascial?

I’ve been treated for PMR since November 2020 and am now off steroids but feeling really quite unwell. I’ve now been told I have myo fascial, not PMR. I am...

I’ve been treated for PMR since November 2020 and am now off steroids but feelin...

ClioMcM

•2 years ago

7 Replies

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Denied medical care because of GCA and Actemra.

In the US. PMr 20 plus years, GCA 12 plus. Full dose Actemra infusion monthly, 5mg. prednisone. Actemra worked great at first. Now SED rate creeping back...

In the US. PMr 20 plus years, GCA 12 plus. Full dose Actemra infusion monthly,...

phebamom

•2 years ago

7 Replies

Reply from Rheumy!!

I recently agreed with my GP that he could seek advice from a Rheumy to try to help with my Polymyalgia. This is what I have just read was the reply sent back...

I recently agreed with my GP that he could seek advice from a Rheumy to try to h...

Purplegloss

•2 years ago

7 Replies

Feels like carpel tunnel syndrome

HelloI am in week 3 of taking 15mg of pred after relapsing with PMR. Most of the hip and shoulder pain has been resolved but my wrists and hands are still...

HelloI am in week 3 of taking 15mg of pred after relapsing with PMR. Most of th...

Mewy

•2 years ago

19 Replies

Tocilizumab side effects

I started TCZ injections three weeks ago and am experiencing side effects of mouth ulcers, cold sores and runny, sore nose. Does anyone else have these and if...

I started TCZ injections three weeks ago and am experiencing side effects of mou...

PQXZT

•2 years ago

17 Replies

Interesting discussion on supplements from ZOE

Here is a podcast or transcript of it that others may find useful in deciding what to spend their precious pennies on after an expert discusses large, long...

Here is a podcast or transcript of it that others may find useful in deciding wh...

SnazzyD

•2 years ago

11 Replies

The Truth About Vitamin Supplements. (ZOE Science & Nutrition Podcast)

https://podcasts.apple.com/gb/podcast/the-truth-about-vitamin-supplements/id1611216298?i=1000587384969 I thought some of you may find this 50min podcast as...

https://podcasts.apple.com/gb/podcast/the-truth-about-vitamin-supplements/id1611...

Kendrew

•2 years ago

15 Replies

Vitamin D dosage

Thank you to all those who answered my question about taking a large dose of Vitamin D to avoid covid and other viruses during the winter. I have read them...

Thank you to all those who answered my question about taking a large dose of Vit...

Booklist

•2 years ago

1 Reply

in remission

Hi all, I had a pet scan recently and told l was in remission Which is great news lve tapered off pref by using very low dose cocodamol This seems to...

Hi all, I had a pet scan recently and told l was in remission Which is great...

Trip123

•2 years ago

12 Replies

Has anyone heard of this with omg?

I ve been having trouble with my bladder for six months .An infection that didn't respond to antibiotics.Ive had two cytoscopy s and first one was very blurry...

I ve been having trouble with my bladder for six months .An infection that didn'...

Hunter134

•2 years ago

20 Replies

End of Pred Treatment Programme

Hello- I hope to end my Pred Treatment Programme on 1st December. I'm a bit scared but also hopeful that I will not have another flare. Question: how long...

Hello- I hope to end my Pred Treatment Programme on 1st December. I'm a bit sca...

Uisce58

•2 years ago

16 Replies

It's Thanksgiving in America

Thanks to all who work so hard for this community, and to all those who contribute.

Thanks to all who work so hard for this community, and to all those who contribu...

GOOD_GRIEF

•2 years ago

11 Replies

cartilage damage in knee

Hi everyone Just wondering if steroids damage your cartilage??Have just had an MRI on my painful swollen knee and the result shows 3 separate tears in...

Hi everyone Just wondering if steroids damage your cartilage??Have just had an...

bakingD

•2 years ago

11 Replies

New shooting pain in left breast

So today I have another strange new symptom - quick shooting pain from my left side across/through my left breast. Its happened 3 times today and each time...

So today I have another strange new symptom - quick shooting pain from my left s...

HappyDiamonds

•2 years ago

18 Replies

blood test results

hi everyone I’m just going through my last lot of blood results.. ESR 1mm/hr Neutrophils 8.10 (2.1 - 7.4) Lymphocyte count 0.98 (1 - 3.6) Sodium 128...

hi everyone I’m just going through my last lot of blood results.. ESR 1mm/hr ...

Doraflora

•2 years ago

25 Replies

RE GCA and Tocilizumab

Hi folks, John in the UK here, 68 years old and never had any serious medical issues before this. Diagnosed with GCA in March this year. Mild continuous...

Hi folks, John in the UK here, 68 years old and never had any serious medical ...

ghost123uk

•2 years ago

80 Replies

only half awake!

what a silly person I am! Am on 4mgs and doing absolutely fine. Really happy I am now down to this since the start in April 2021. But this morning, I woke...

what a silly person I am! Am on 4mgs and doing absolutely fine. Really happy I...

Gossiplady

•2 years ago

8 Replies

Recovery from PMR

Hello everyone. Two issues to share. I developed pmr 24 years ago when I was 50 . I never took steroids but took ibuprofen for the pain and to get me through...

Hello everyone. Two issues to share. I developed pmr 24 years ago when I was 50 ...

F-Lulu

•2 years ago

19 Replies

Flares and breast surgery

Hi All. I think I need some help. I managed to reduce to 2 mg of Pred but after a couple of weeks the pain and stiffness comes back in my thighs. Last time I...

Hi All. I think I need some help. I managed to reduce to 2 mg of Pred but after...

Seraphina56

•2 years ago

21 Replies

Long term use of steroids

Had PMR for 10+ years and taking Prednisone in various amounts over those years. Have tried several times to wean myself off but lowest dosage I've been able...

Had PMR for 10+ years and taking Prednisone in various amounts over those years....

Everett19

•2 years ago

20 Replies

More guidance needed please

At the end of October I asked all you helpful people for advice about a flare after having Covid and flu boosters. I had been on 2.5 mg of prednisolone for a...

At the end of October I asked all you helpful people for advice about a flare af...

Callymac

•2 years ago

7 Replies

Advice please

Since starting on the steroid journey I have experienced palpitations and high blood pressure. The palpitations were controlled by beta blockers and since...

Since starting on the steroid journey I have experienced palpitations and high b...

Ana-16

•2 years ago

11 Replies

Vote for us to win £1,000

Once again, Benefact are running their 12 Days of Giving campaign to give donations of £1,000 to charities during December. You can help us to win one of these...

Once again, Benefact are running their 12 Days of Giving campaign to give donati...

Fran_Benson

Partner•2 years ago

37 Replies

PMR recently diagnosed

starters three weeks ago on 20mg Prednisolone. ESR now reduced considerably and GP said to reduce to 15mg which I did for three days but unfortunately pain and...

starters three weeks ago on 20mg Prednisolone. ESR now reduced considerably and ...

Malaga47

•2 years ago

13 Replies

Get registered for Energy Priority Services

My sister had an email from her electricity network provider (different to her electricity provider) asking if she needed to be on their priority...

My sister had an email from her electricity network provider (different to her e...

LadyTrundle

•2 years ago

5 Replies

Rheumatologist

Hi I have not posted since joining back in September last year but keep looking at all the posts. Since being diagnosed (via a muscular and skeletal...

Hi I have not posted since joining back in September last year but keep lookin...

Fudgeted

•2 years ago

27 Replies

Leflunomide making me a lot worse?????

Ok I had to ask my PMR Tribe. Started the leflunomide, I am on 23.5 pred, rheumy is myopic about getting my pred dose down. So I eventually agreed. So now...

Ok I had to ask my PMR Tribe. Started the leflunomide, I am on 23.5 pred, rheum...

Wallysma

•2 years ago

63 Replies

ADVICE PLEASE

I am due to see my Rheumatologist soon and I just know that she will want me to try another tablet to enable me to reduce my prednisolone. I am currently on...

I am due to see my Rheumatologist soon and I just know that she will want me to ...

Wallydb

•2 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

General health site

Update on shooting pain to breast - esophagitis

PMR or Myofascial?

Denied medical care because of GCA and Actemra.

Reply from Rheumy!!

Feels like carpel tunnel syndrome

Tocilizumab side effects

Interesting discussion on supplements from ZOE

The Truth About Vitamin Supplements. (ZOE Science & Nutrition Podcast)

Vitamin D dosage

in remission

Has anyone heard of this with omg?

End of Pred Treatment Programme

It's Thanksgiving in America

cartilage damage in knee

New shooting pain in left breast

blood test results

RE GCA and Tocilizumab

only half awake!

Recovery from PMR

Flares and breast surgery

Long term use of steroids

More guidance needed please

Advice please

Vote for us to win £1,000

PMR recently diagnosed

Get registered for Energy Priority Services

Rheumatologist

Leflunomide making me a lot worse?????

ADVICE PLEASE

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