Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for June 2022

Update 2 : Getting the right treatment

Just rung the doctors as the 48hrs in which I was told I would have a reply , is up . Didn’t hold out much hope of anything. But the receptionist said oh yes...

Just rung the doctors as the 48hrs in which I was told I would have a reply , is...

Romilly2

•2 years ago

18 Replies

To all especially those who helped me

To you all thank you for the support you afforded me. I have had a long chat with the pharmacist. She said (and I hope I understood correctly), that the...

To you all thank you for the support you afforded me. I have had a long chat wit...

Dartmoor4

•2 years ago

12 Replies

up dose?

Because of what I've seen re reactions to 5th covid vaccine.. which I am going to have today or tomorrow.. can I up the dose of prednisone preemptively.. for a...

Because of what I've seen re reactions to 5th covid vaccine.. which I am going t...

yogabonnie

•2 years ago

52 Replies

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Can't Access Alerts!

Is anyone else experiencing difficulty accessing 'Alerts'? I see I've 8 communications but when I click on 'Alerts' it can't show them. The only way I can...

Is anyone else experiencing difficulty accessing 'Alerts'? I see I've 8 communic...

Kendrew

•2 years ago

34 Replies

What next

I got my ultrasound done.Turns out it's not a prolapse but did show endometriosis with a small growth.Scary stuff.Two days later woke up with a terrible...

I got my ultrasound done.Turns out it's not a prolapse but did show endometrios...

Hunter134

•2 years ago

12 Replies

Moderna!!

So here I am.....in bed feeling as rough as I've done for some time, and more than just a little sorry for myself. Yesterday morning, I went for my 5th covid...

So here I am.....in bed feeling as rough as I've done for some time, and more th...

Kendrew

•2 years ago

230 Replies

IMAb for PMR

Covid confirmed despite care with meeting others etc. I’ve been offered and accepted an iMAb infusion at the local hospital later today. Has anyone any...

Covid confirmed despite care with meeting others etc. I’ve been offered and acce...

Bachfugue

•2 years ago

11 Replies

I just want to thank everyone for their advise.

What can I say, except everyone is so kind on this forum and so helpful giving me advise on PMR. I felt so alone when diagnosed in May after contracting Covid...

What can I say, except everyone is so kind on this forum and so helpful giving m...

Washingup

•2 years ago

6 Replies

Early morning discomfort in chest

I'm seeing my rheumatologist in a couple of weeks so I will discuss this with him, but in the meantime I wonder if anyone else has experienced this. I'm...

I'm seeing my rheumatologist in a couple of weeks so I will discuss this with hi...

Pr0jection

•2 years ago

22 Replies

Catarracts

Hi lovely people My question is if Pred contributes to cataract formation, if you get surgery done would that mean the Pred would not affect your eyes again?...

Hi lovely people My question is if Pred contributes to cataract formation, if y...

bakingD

•2 years ago

19 Replies

French travel advice

Hello all, Calling anyone understanding COVID travel rules..... I had my booster vaccination on 26th November 2021 and I’m travelling to France on 22nd July...

Hello all, Calling anyone understanding COVID travel rules..... I had my booster...

Pangolin43

•2 years ago

59 Replies

Afternoon nap

I sleep really well each night averaging 7 - 8 hours. I’ve always struggled to sleep during the day although often feel fatigued , problem solved hubby bought...

I sleep really well each night averaging 7 - 8 hours. I’ve always struggled to s...

Tinasleepyhead

•2 years ago

9 Replies

5mg and sticking but a question.

From my last posts about 1 month ago you will see I raised my dose from 3mg to 8mg for about 8 days then dropped back to 5mg. Been there since then. Was going...

From my last posts about 1 month ago you will see I raised my dose from 3mg to 8...

Queenie1901

•2 years ago

7 Replies

Muscles

Hi Everyone, I am on 10.5 pred for 4 weeks. I am getting bilateral muscle pain in arms and legs in morning. They tend to get better about a hour after I wake...

Hi Everyone, I am on 10.5 pred for 4 weeks. I am getting bilateral muscle pain i...

Uglow

•2 years ago

4 Replies

Adrenal struggling?

Hi everyone on this brilliant site.I have had pmr for 2 yrs now ,reducing 8.5 to 8mg using Dorset lady 5 week plan , In 2nd week started feeling very tired and...

Hi everyone on this brilliant site.I have had pmr for 2 yrs now ,reducing 8.5 to...

vangelis8

•2 years ago

47 Replies

Ibuprofen

I have horrendous toothache and a cant been seen until tomorrow, dentist said to take ibuprofen, I know we shouldn’t while on pred but I can’t see it listed...

I have horrendous toothache and a cant been seen until tomorrow, dentist said to...

Iloveholidays

•2 years ago

17 Replies

Turmeric supplements

This may be a strange question but had anyone ever taken turmeric supplements to help with inflammation?

This may be a strange question but had anyone ever taken turmeric supplements to...

Oboes22

•2 years ago

24 Replies

A book recommendation

I'm about halfway through The Beauty of Dusk: on vision lost and found, by Frank Bruni. Although his eye problem was caused by a stroke his...

I'm about halfway through The Beauty of Dusk: on vision lost and found, by Frank...

HeronNS

•2 years ago

3 Replies

Temporal artery Biopsy

Finally someone has taken me seriously I have an appointment in just over a week for a temporal artery biopsy 😱 who has had it done. Hope there’s not too...

Finally someone has taken me seriously I have an appointment in just over a wee...

Ronzy

•2 years ago

30 Replies

Update : getting the right treatment

Update about the crystal maze that is my gp practice! So tried Naproxen for a week to be a compliant patient and not surprisingly it was awful. Shoulders as...

Update about the crystal maze that is my gp practice! So tried Naproxen for a we...

Romilly2

•2 years ago

23 Replies

How to watch the webinars

I tried to watch one of the recent webinars but it seems to want me to join Vimeo. Candy, one of the administrators, says this is not necessary and all you...

I tried to watch one of the recent webinars but it seems to want me to join Vime...

Hidcote

•2 years ago

6 Replies

Sunshine

I have finally got appointment on Thursday with rheumatologist been waiting since March I let all no

I have finally got appointment on Thursday with rheumatologist been waiting sinc...

Bowred

•2 years ago

9 Replies

Rheumy appt....fighting my corner..

Hello fellow warriors...tapering at 8.5. Rheumy appt last Friday...I have calmed down. Knew it was going to be difficult when he was 45 mins behind and rushed...

Hello fellow warriors...tapering at 8.5. Rheumy appt last Friday...I have calmed...

Temoral

•2 years ago

22 Replies

Am I heading for a PMR flareup?

After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild...

After feeling very smug with myself for reducing my prednisolone down to 15mg si...

Washingup

•2 years ago

28 Replies

Sunshine

Hi have PMR in steroids 15.mg taper down to 12.5mg last two weeks in last to days I have tingling on face is it anything to do with PMR or steroids

Hi have PMR in steroids 15.mg taper down to 12.5mg last two weeks in last to day...

Bowred

•2 years ago

1 Reply

COVID WHILE ON PREDNISOLONE

I have been on pred for over 3 years and just tested positive for covid. Am I at a greater risk? Should I consult my GP on possible covid treatments to limit...

I have been on pred for over 3 years and just tested positive for covid. Am I at...

Broomser

•2 years ago

14 Replies

A Rheumatologist who Understands

Finally, after a year in no-mans-land with them I have just had a consultation with one who listens and will work WITH me to resolve my condition. I was nearly...

Finally, after a year in no-mans-land with them I have just had a consultation w...

cycli

•2 years ago

38 Replies

GCA -conflicting advice

Hi I am new to this group and being treated for GCA since April after headaches, jaw pain, blurred vision and abnormal blood tests. I was on 60 mg of...

Hi I am new to this group and being treated for GCA since April after headaches...

Hazeleyes48

•2 years ago

32 Replies

GP refusing rheumatology referral

My daughter who is 44 has all the symptoms of PMR, with pain not responding to paracetamol. Even though she is now struggling to dress herself her doctor is...

My daughter who is 44 has all the symptoms of PMR, with pain not responding to ...

Vaggers

•2 years ago

15 Replies

Coated and. On Coated Prednisolone

106 Hello again it's some time since I posted on this fabulous site, but read new posts every single morning. I have looked back but can't find the post...

106 Hello again it's some time since I posted on this fabulous site, but read ...

Maggie1313

•2 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Update 2 : Getting the right treatment

To all especially those who helped me

up dose?

Can't Access Alerts!

What next

Moderna!!

IMAb for PMR

I just want to thank everyone for their advise.

Early morning discomfort in chest

Catarracts

French travel advice

Afternoon nap

5mg and sticking but a question.

Muscles

Adrenal struggling?

Ibuprofen

Turmeric supplements

A book recommendation

Temporal artery Biopsy

Update : getting the right treatment

How to watch the webinars

Sunshine

Rheumy appt....fighting my corner..

Am I heading for a PMR flareup?

Sunshine

COVID WHILE ON PREDNISOLONE

A Rheumatologist who Understands

GCA -conflicting advice

GP refusing rheumatology referral

Coated and. On Coated Prednisolone

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