Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2022

Pernicious anemia

Could be this, anyone got it Both my mother and my father’s brother had it. My symptoms symptoms seem to fit exactly. Basically it’s a deficiency in B12 What...

Could be this, anyone got it Both my mother and my father’s brother had it. My ...

Ronzy

•2 years ago

2 Replies

Continuing Prednisolone

Hi, my Rheumy signed me off about a year ago as the Synacthen test was negative. My recent CRP was 2.5 which seems reasonable, ESR 26 which seems a little high...

Hi, my Rheumy signed me off about a year ago as the Synacthen test was negative....

KCRoyals

•2 years ago

12 Replies

Big Hair Loss

Hi everyone. I guess the title says it all......I started on 60mg Pred Dec 21 and gradually have reduced to 6mg....so far so good, sort of. 4months ago I...

Hi everyone. I guess the title says it all......I started on 60mg Pred Dec 21 a...

MarksPoint

•2 years ago

39 Replies

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Pmr question about diet?

Curious what results pmr sufferers have had with trying gluten free diets? Or any other specific diet modifications.

Curious what results pmr sufferers have had with trying gluten free diets? Or a...

Sparky98

•2 years ago

18 Replies

Reducing (again)

Hello again wonderful people. I have been on 7mg Pred for what seems like a very long time - it's over a year for PMR and GCA. I few months ago I tried...

Hello again wonderful people. I have been on 7mg Pred for what seems like a ver...

Pippah45

•2 years ago

9 Replies

How do people with PMR bike, garden and hike?

I have PMR and osteopenia but can't lift arms much, typing wears out hands quickly, can't squat. Legs are wobbly. I walk daily for 2-3 km, slowly. Posts often...

I have PMR and osteopenia but can't lift arms much, typing wears out hands quick...

Greytree

•2 years ago

61 Replies

New to group

Hi, I have been looking for a support group for a while. I was diagnosed in January 2022. It seems that everyone experiences different symptoms and the...

Hi, I have been looking for a support group for a while. I was diagnosed in Janu...

Pegasu

•2 years ago

87 Replies

Back again and on prednisone

Hello....I am back again and would like some help. Last summer 2021, I was off prednisone for about a year. Could not get off the toilet seat and I knew it...

Hello....I am back again and would like some help. Last summer 2021, I was off...

cmybabyblues

•2 years ago

20 Replies

Uncontrollable itching

Hi. I have recently reduced my prednisolone to 3 mgs This has been a gradual reduction from 15 mgs over 4 yrs. however with this reduction I now have awful...

Hi. I have recently reduced my prednisolone to 3 mgs This has been a gradual r...

Wraysbury

•2 years ago

26 Replies

Thyroxine/PMR/Steroids/AA

I haven't been on here for a while but hopefully I will be offered some good advice from similar sufferers on here. I have been taking thyroxine since 1982...

I haven't been on here for a while but hopefully I will be offered some good adv...

Ricketts40

•2 years ago

10 Replies

Well that was the week that was

Since posting on here, its fair to say that most posts have been positive, I'm continuing to progress at a steady rate reducing the PREDS etc, then bang, out...

Since posting on here, its fair to say that most posts have been positive, I'm c...

Burnley1959

•2 years ago

22 Replies

Update

Had a flare a few weeks ago, increased pred to 5 mgs and have stayed there for now. have lost central vision in both eyes and having to type through...

Had a flare a few weeks ago, increased pred to 5 mgs and have stayed there for n...

merril

•2 years ago

14 Replies

Chest pain as per messages earlier today

You are all very kind and I thank you for your responses. I did ring 999 and have been having tests in A&E all day. Just got back. Oesophageal Spasms. Heart...

You are all very kind and I thank you for your responses. I did ring 999 and hav...

cmToddy

•2 years ago

11 Replies

Frustrated in the US

I believe my PMR is back. I had covid 4 weeks ago and now I'm experiencing the aches, pains, stiffness and fatigue typical of PMR. I was supposed to see my...

I believe my PMR is back. I had covid 4 weeks ago and now I'm experiencing the a...

Amkoffee

•2 years ago

42 Replies

Atypical PMG and Depo-Medrol

My rheumatologist says that I possibly have atypical PMG. My symptoms at their worst have been relatively minor. In mid-March I had a 120 mg shot of...

My rheumatologist says that I possibly have atypical PMG. My symptoms at their w...

Donaloge

•2 years ago

2 Replies

Membership

Hi everyone Iv just renewed my membership couldn’t be without you all. ❤️❤️

Uglow

•2 years ago

9 Replies

Yet another update

I’ve been suffering lately with really painful hips and shoulders and a new condition of swollen and painful hands. I was on 11mg of pred and my CRP was 29. I...

I’ve been suffering lately with really painful hips and shoulders and a new cond...

Griggser

•2 years ago

20 Replies

Chest spasms

Help again please. I have had PMR for over 2.5 years and was taking 4 mg Pred daily. I started with TMJ which was eased with Ibroprofen. A week later I had...

Help again please. I have had PMR for over 2.5 years and was taking 4 mg Pred da...

cmToddy

•2 years ago

11 Replies

Update 3 Getting the right treatment

Rollercoaster ride today ! Receptionist called back to say no prescription, the GP wants to do a blood test ! I had a complete meltdown. She said the advice...

Rollercoaster ride today ! Receptionist called back to say no prescription, the ...

Romilly2

•2 years ago

54 Replies

Worse tinnitus and some head pain

Hello everyone, Can tinnitus be a symptom of a GCA flare? I woke up a few weeks ago with loud roaring tinnitus, I thought something was going on...

Hello everyone, Can tinnitus be a symptom of a GCA flare? I woke up a ...

Mstiles

•2 years ago

32 Replies

Disappointing cortisol blood test

Hello everyone After a 9am cortisol blood test result of 240, I was switched from 4mg prednisolone to 25mg hydrocortisone spread over three doses eight weeks...

Hello everyone After a 9am cortisol blood test result of 240, I was switched fro...

Skodadet

•2 years ago

31 Replies

How long the taper

Hello, A couple of things, for some reason I stopped receiving the HU notifications? Hopefully by posting this question it puts me back in the swing of...

Hello, A couple of things, for some reason I stopped receiving the HU notificati...

Southmead

•2 years ago

8 Replies

Pain only when moving

I have posted fairly recently, saying two GPs and Rheumatologist are convinced I don’t have PMR My pains are lower back, buttocks, hips and legs, but I’m only...

I have posted fairly recently, saying two GPs and Rheumatologist are convinced I...

Carathedog

•2 years ago

27 Replies

GCA symptoms after one year of discontinuing prednisone

I was diagnosed with GCA/PMR in 2017. I had a very slow taper of prednisone since, and now have been off for almost exactly one year. Last month I started to...

I was diagnosed with GCA/PMR in 2017. I had a very slow taper of prednisone sin...

Pamk1949

•2 years ago

10 Replies

I know it is counterintuitive but...

I know it is counterintuitive but is it possible to feel better on days when you are taking less Pred? I am presently tapering from 5 mgs to 4 mgs on an...

I know it is counterintuitive but is it possible to feel better on days when you...

LBM1953

•2 years ago

3 Replies

Frustrated

My doctor agreed to my request for a blood test, which I have just had. I needed it to judge the level of PMR inflammation as some of my aches and pains are...

My doctor agreed to my request for a blood test, which I have just had. I neede...

Hidden

•2 years ago

10 Replies

VISIBLE TEMPLE ARTERY

Male age 20 and for this past 4 months have these visible artery on both side of my temple. What should i do?

Male age 20 and for this past 4 months have these visible artery on both side of...

HPYPSY

•2 years ago

6 Replies

Advice please. Could I have GCA?

Advice please I’ve had Pmr for 8 years and managed to be on under 5mg of pred for about the last 6 years Had a few flare ups but now on around 2 mg for...

Advice please I’ve had Pmr for 8 years and managed to be on under 5mg of pred fo...

Jankie

•2 years ago

17 Replies

Starting Methotrexate, Prednisone together? for

To cut a long story short, I have just been diagnosed with Spondyloarthropathy through private insurance after the public health care could not find what was...

To cut a long story short, I have just been diagnosed with Spondyloarthropathy t...

Jomox

•2 years ago

21 Replies

Good advice from all you lovely PMR sufferers

Having gotten my pred down to 3 and had quite a bit of pain and tried to forget about it so stupid I now realise as iam now having a flare,my gp says...

Having gotten my pred down to 3 and had quite a bit of pain and tried to forget ...

Harrywogan

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Pernicious anemia

Continuing Prednisolone

Big Hair Loss

Pmr question about diet?

Reducing (again)

How do people with PMR bike, garden and hike?

New to group

Back again and on prednisone

Uncontrollable itching

Thyroxine/PMR/Steroids/AA

Well that was the week that was

Update

Chest pain as per messages earlier today

Frustrated in the US

Atypical PMG and Depo-Medrol

Membership

Yet another update

Chest spasms

Update 3 Getting the right treatment

Worse tinnitus and some head pain

Disappointing cortisol blood test

How long the taper

Pain only when moving

GCA symptoms after one year of discontinuing prednisone

I know it is counterintuitive but...

Frustrated

VISIBLE TEMPLE ARTERY

Advice please. Could I have GCA?

Starting Methotrexate, Prednisone together? for

Good advice from all you lovely PMR sufferers

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