Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for June 2022

Another annoyance - is this PMR or bad luck?

I have always looked after my feet - seen a podiatrist regularly and I am aware that it is a big no no to cut your toe nails at an angle. But over the last 18...

I have always looked after my feet - seen a podiatrist regularly and I am aware ...

AnniesRyder5

•2 years ago

48 Replies

DSNS when to start in the tapering process?

I have read all the information on slowing down the tapering process in the FAQs (and thank you for putting this section in an easily accessible place) but at...

I have read all the information on slowing down the tapering process in the FAQs...

Dochaz

•2 years ago

2 Replies

reduction in Preds

Good morning people , its been a while since I posted, so just a little update. Got a Cardiology appointment today all be it over the telephone but hey ho,...

Good morning people , its been a while since I posted, so just a little update. ...

Burnley1959

•2 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Wish me luck!

Today I’m starting to taper to 1mg. On alternate days. As advised by Rheumy nurse.😬. On 2mg, I have eventually started to have more energy, and some days...

Today I’m starting to taper to 1mg. On alternate days. As advised by Rheumy nurs...

Alazarin

•2 years ago

9 Replies

Tapering

This is my first post. I was diagnosed with PMR in 2015. I have struggled to reduce my steroid dose had about 5 flares the latest in January 2022 ( when I go...

This is my first post. I was diagnosed with PMR in 2015. I have struggled to r...

Beavy

•2 years ago

39 Replies

PMRpro your 2022 Superstar.

Taken this morning.

jinasc

•2 years ago

14 Replies

Prednisolone and depression

Does anyone else feel that Prednisolone causes depression? I seem to get depressed and anxious for no reason and it goes as quickly as it comes. It is not like...

Does anyone else feel that Prednisolone causes depression? I seem to get depress...

Shalimar

•2 years ago

12 Replies

GCA exhaustion and joint/muscle pain

I was diagnosed with GCA a year ago and would be grateful for some advice please. Is it normal to feel so exhausted I can hardly put one foot in front of the...

I was diagnosed with GCA a year ago and would be grateful for some advice please...

Hidden

•2 years ago

19 Replies

Steroid dosage pre synactin test

Dear team I know you will have good advice. I am a 61yr with PMR for the last 3.5 years. I have used the tapering regime and on my second attempt got to...

Dear team I know you will have good advice. I am a 61yr with PMR for the last ...

Sueloucam

•2 years ago

16 Replies

Can overdoing it cause a flair

I've been doing fine on 3mg for a while. I'm a gardener and was hedge cutting a low but wide hedge last Tuesday. Bending over, arms outstretched welding a...

I've been doing fine on 3mg for a while. I'm a gardener and was hedge cutting a ...

Jontie

•2 years ago

13 Replies

Still in hospital following Wedding Trip/Hospital now 12 days …Questions

The good news is they haven’t found anything wrong after MRI, CT Scan and constant monitoring and I gradually felt better. I’m still in hospital but on Friday...

The good news is they haven’t found anything wrong after MRI, CT Scan and consta...

KerryIreland

•2 years ago

8 Replies

Low Dose Naltrexone?

Hi all-I am 3.5 years with PMR in the U.S., now at 7mg pred using Dead Slow Method on my way to 6.5. My legs are quite painful these days and Dr prescribed...

Hi all-I am 3.5 years with PMR in the U.S., now at 7mg pred using Dead Slow Meth...

Neck680

•2 years ago

10 Replies

Struggling to get the right treatment !

Hi everyone, always wonderful supportive advice on these groups ! I’m struggling at the moment getting a confirmed diagnosis of PMR , and consequently being...

Hi everyone, always wonderful supportive advice on these groups ! I’m struggling...

Romilly2

•2 years ago

64 Replies

Newly diagnose GCA

Hi, I am Sue, and I have learned such a lot from this forum over the last 7- 8 years when my husband was diagnosed with GCA . We were living in France and...

Hi, I am Sue, and I have learned such a lot from this forum over the last 7- 8 y...

essujay

•2 years ago

16 Replies

Not a Disease but a State/Condition.

I'm going to stop referring to PMR/GCA as a disease. It is a condition which presents itself to us in various states depending on our circumstances and...

I'm going to stop referring to PMR/GCA as a disease. It is a condition which pr...

cycli

•2 years ago

14 Replies

Newly diagnosed

Hello to one and all. I started taking prednisone to say as my GP. Thinks I may have ONE And GCA.. So has started me off on 40 mg per day until Tuesday next...

Hello to one and all. I started taking prednisone to say as my GP. Thinks I may ...

Purplecheeks

•2 years ago

8 Replies

Hip pain

I have been on steroids only 5 days 15mg. At first it was great but the last two days I have hip pain also my stomach is not good, very uncomfortable. I would...

I have been on steroids only 5 days 15mg. At first it was great but the last two...

PickleballWetheral

•2 years ago

12 Replies

Prednisolone Toxicity

I have been on prednisolone for over 13 years now and I can't seem to get down. I have been told by my consultant, Mr Hughes , following a scan two years ago,...

I have been on prednisolone for over 13 years now and I can't seem to get down. ...

Stkeyna

•2 years ago

62 Replies

Help Please

Had my first rheumatologist appointment on Thursday, he too, like my two GPs are convinced it’s not Polymyalgia. He’s suggesting bursitis, or tendonitis. I had...

Had my first rheumatologist appointment on Thursday, he too, like my two GPs are...

Carathedog

•2 years ago

29 Replies

Advice please

I’ve had PMR for 2 years now and am staying at 5mg pref as this seems to be right for me. However I have a very bad right shoulder and limited mobility in my...

I’ve had PMR for 2 years now and am staying at 5mg pref as this seems to be righ...

Bandittabby

•2 years ago

3 Replies

Reducing Prednisolone and normal test results.

I saw a consultant for the first time in April this year and he suggested slowly reducing prednisolone until I reached 2mg. I was diagnosed with PMR two...

I saw a consultant for the first time in April this year and he suggested slowl...

Buzybe

•2 years ago

19 Replies

Update to Unexplained Thigh, Knee and Leg Pain

Good morning all, update to a post I made a few weeks ago. I had severe and excruciating pain in my right thigh spreading through my knee into my shins. Spoke...

Good morning all, update to a post I made a few weeks ago. I had severe and excr...

Bcol

•2 years ago

10 Replies

Twitching in my neck (muscles)

I have been experiencing a strange twitching of my neck and I’m not sure if it’s my muscles or…my carotid artery. I have GCA, on methotrexate 12.5 mg,...

I have been experiencing a strange twitching of my neck and I’m not sure if it’s...

USAGCA

•2 years ago

1 Reply

DOES ANYONE HAVE EXPERIENCE TAKING METFORMIN AS A PREVENTIVE MEASURE

I AM A 66-year old female who was in top condition 18 months ago. It was a year before I received the PMR diagnosis and it's been 12 weeks since I've been on...

I AM A 66-year old female who was in top condition 18 months ago. It was a year ...

CroquetGirl

•2 years ago

10 Replies

Guidelines for tapering

I will be surprised if GP’s / Health professional are unaware of the national guidelines for the treatment of PMR/GCA. I came across this from West Sussex...

I will be surprised if GP’s / Health professional are unaware of the national gu...

Hidden

•2 years ago

52 Replies

Free prescriptions in UK could be reduced

There is a proposal to change the rules on who gets free prescriptions in UK....

piglette

•2 years ago

43 Replies

What should I expect?

Hello, this is my first post on your very helpful site. I’m 67, diagnosed with PMR November 2021. Started Prednisolone on 40 mg last December, GP reduced dose...

Hello, this is my first post on your very helpful site. I’m 67, diagnosed with P...

Dorsetdame

•2 years ago

31 Replies

Deadline to reduce to 7.5 mg!

Hi everyone! I saw my rheumatologist yesterday and got a renewal on the 5 mg pred with refill! She's "ok" with the method I want to use to slow taper but it's...

Hi everyone! I saw my rheumatologist yesterday and got a renewal on the 5 mg pre...

catdance

•2 years ago

68 Replies

Vertigo

Has any one else had an attack of Vertigo? I had one 3 days ago and still reeling from it. I get my Actemra infusion next week and am hoping it will not...

Has any one else had an attack of Vertigo? I had one 3 days ago and still reeli...

phebamom

•2 years ago

35 Replies

Sunshine

Hi all I have been on steroids for month now for PMG Doctor said to start taper I am on 15mg Doctor said go down to 12.5mg it was short Conversation on phone...

Hi all I have been on steroids for month now for PMG Doctor said to start taper ...

Bowred

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Another annoyance - is this PMR or bad luck?

DSNS when to start in the tapering process?

reduction in Preds

Wish me luck!

Tapering

PMRpro your 2022 Superstar.

Prednisolone and depression

GCA exhaustion and joint/muscle pain

Steroid dosage pre synactin test

Can overdoing it cause a flair

Still in hospital following Wedding Trip/Hospital now 12 days …Questions

Low Dose Naltrexone?

Struggling to get the right treatment !

Newly diagnose GCA

Not a Disease but a State/Condition.

Newly diagnosed

Hip pain

Prednisolone Toxicity

Help Please

Advice please

Reducing Prednisolone and normal test results.

Update to Unexplained Thigh, Knee and Leg Pain

Twitching in my neck (muscles)

DOES ANYONE HAVE EXPERIENCE TAKING METFORMIN AS A PREVENTIVE MEASURE

Guidelines for tapering

Free prescriptions in UK could be reduced

What should I expect?

Deadline to reduce to 7.5 mg!

Vertigo

Sunshine

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive