Update 2 : Getting the right treatment

[Romilly2]

Just rung the doctors as the 48hrs in which I was told I would have a reply , is up . Didn’t hold out much hope of anything. But the receptionist said oh yes we’ve had a report back from advice and guidance but the doctor isn’t in on a Thursday 🙄 So I said can you tell me what it said and lo and behold she did! they said ‘ start a trail of 15mg prednisolone’ OMG . I just burst into tears ! I will be reading all the posts tonight about being on Prednisolone. Hopefully my life can begin again ….

[DorsetLady PMRGCAuk volunteer]

Good luck…..

[Romilly2 in reply to DorsetLady]

Thankyou!

[PMRpro Ambassador]

Good - but if it works well - do NOT rush around catching up with the things you haven't been doing!!!

[Romilly2 in reply to PMRpro]

Will do ! Already learned so much . In a way if I’d have been diagnosed straight away I wouldn’t have found myself on here . Always looking for the positives !

[jinasc]

Good for you and please as PMRpro says - do not rush, treat yourself like a Precious Princess and the most important words are:

"I know I don't look sick but it is an auto-immune illness and MOST important LEARN TO SAY NO (nicely of course".

You Tube 'You Are Not Alone' video - for family and friends. Link in FAQ's

Please remember to update your profile with start date of Pred and how much started on ie today's date and 15mg.

[Romilly2 in reply to jinasc]

Gosh you must know me , the least precious princess there ever was ! Keep meaning to learn but 65 years too late 😂 Will look at the video and when I have the drugs I my hot death hands will update my profile . Remember I had breast cancer 18 years ago , surgeries, radiotherapy and drug therapy and the most often comment was ‘ you look fine ‘ 😩 So much for all the efforts. One friend even said was it the real form of BC as you always seemed ok 🙄

[Romilly2 in reply to Romilly2]

Meant to say sweaty hands !!

[jinasc in reply to Romilly2]

No I don't know you - not a witch (well sometimes).

However I have found, over many years, that is seems to me that it is the "copers, helpers, empathisers and people you rely on' who seem to develop PMR etc.

No there is not any reason at all, scientifically, but just my observations.

[Romilly2 in reply to jinasc]

That’s so interesting, certainly all of the above seem to apply to me 🙈

[PMRpro Ambassador in reply to jinasc]

Is it do you think - or are we the ones who are most frustrated and what it stops us doing? And then make more noise?

[jinasc in reply to PMRpro]

Ah never thought about that angle, did think about pro-active (excuse the pun). 😉

[PMRpro Ambassador in reply to jinasc]

Nothing active about me!!!!!

[jinasc in reply to PMRpro]

Your 🧠🧠🧠🧠's - you daft bat..................😊😈

[cycli in reply to jinasc]

vampire rather than fruit I'm thinking.

[SheffieldJane]

I hope you get the Pred miracle and soon find yourself out of pain. 👏👏👏

[MiloCollie]

But don’t be scared to speak up if you’ve not got good relief. You may need a bit more than 15mg but hopefully not. I didn’t. Fingers crossed for you. Let us know how you get on xx

[Romilly2 in reply to MiloCollie]

Thankyou for the support 😊 Just rung the surgery to see if the doctor has done anything yet. Apparently only looks at her tasks at the end of the day and ofcourse it’s Friday 🙁 So I literally begged the receptionist to alert her and get me a prescription. I know after 5 months a couple of days shouldn’t matter but it’s so nearly within my reach ……

[MiloCollie]

No I think you’ve done the right thing. Last year I chased and questioned everything and I was let down all the time. Good for you but yes a couple more days won’t matter that much if they don’t do it. You’ll just be excited to start now and get some relief. Good luck xx