Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for August 2021

What is the best slow reduction

Still looking for best slow reduction

Harrywogan

•3 years ago

9 Replies

Temperal biopsy

Hi🥰I had a temperal biopsy a week ago and even though all drs have made it sound like its not a big deal,my head is aching more than usual ,got burning...

Hi🥰I had a temperal biopsy a week ago and even though all drs have made it soun...

Sharice21

•3 years ago

29 Replies

Possible return of GCA

In 2015 I was diagnosed with GCA. I was on steroids for 5 yrs, Having been off steroids for 1 year I have been experiencing left side temple tenderness over...

In 2015 I was diagnosed with GCA. I was on steroids for 5 yrs, Having been off s...

Annie3737

•3 years ago

7 Replies

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Stressful

So I had an appointment with my consultant yesterday and advised to go back to 15mg. I also had another ct scan which has shown enlarged lymph nodes around my...

So I had an appointment with my consultant yesterday and advised to go back to 1...

Joneskye

•3 years ago

19 Replies

PMR QUESTION

Managed to ween off of prednisone over a month ago and on the suggestions of the forum here did not use the celebrex to do so, but then started feeling achy...

Managed to ween off of prednisone over a month ago and on the suggestions of the...

remission

•3 years ago

5 Replies

Methotrexate issues

For those who have been on this drug; how long were you on the drug before you tried to reduce the prednisone? Also did you get floaters in the eyes from it? I...

For those who have been on this drug; how long were you on the drug before you t...

Linny3

•3 years ago

32 Replies

Gca or long covid

Hi everyone, im currently on 9mg of pred from 40mg 15 months ago started but i have complete exhaustion, Breathlessness after few steps and feel like im in a...

Hi everyone, im currently on 9mg of pred from 40mg 15 months ago started but i h...

Ambientman

•3 years ago

5 Replies

Rheumy consultant at Queens Hospital

Further to my post last week about the lovely consultant I saw at Queens in Romford his name is Dr Omar Farooqui. His secretary contacted me today and she is...

Further to my post last week about the lovely consultant I saw at Queens in Romf...

Suet3942

•3 years ago

10 Replies

Aches and pains

Hi am just wondering if this is a flare or not.have real bad pains in my arms,neck and shoulders and legs.over the last 2 weeks.or is it because I've lower my...

Hi am just wondering if this is a flare or not.have real bad pains in my arms,ne...

Flosy

•3 years ago

8 Replies

Is it common for newby PMR sufferers to have a low-level headache for a day or so?

I have rarely suffered headaches in the past, but this came on yesterday and I am wondering if it is a common occurrence in people on Prednisolone.

I have rarely suffered headaches in the past, but this came on yesterday and I a...

HalleysComet

•3 years ago

12 Replies

Leg problem giving walking difficulties

About a week ago I started getting aching muscles in both legs, my right leg is totally ok now but my left leg has got worse and I can hardly walk. It doesn't...

About a week ago I started getting aching muscles in both legs, my right leg is ...

HappyDiamonds

•3 years ago

23 Replies

More pred ??

I suspected a flare so went up to 12.5 from 11 now on 15mg for 2 days pains not settling should I go up to 17.5 where I started off 😢 don’t want to but need...

I suspected a flare so went up to 12.5 from 11 now on 15mg for 2 days pains not ...

Uglow

•3 years ago

9 Replies

Need to ‘up’ dose, advice please

I was diagnosed with PMR in June 2019 and, as 15 mgs and 25 mgs didnt ease the pain, I was put on 40 mgs plus Methotrexate. I quickly dropped MTX and have been...

I was diagnosed with PMR in June 2019 and, as 15 mgs and 25 mgs didnt ease the p...

Vaggers

•3 years ago

3 Replies

It's all good now!

Pmr hit just about three years ago. I am now reporting one month at zero pred, down from thirty originally. Fingers crossed that that is the end of it. If not...

Pmr hit just about three years ago. I am now reporting one month at zero pred, d...

Harbel

•3 years ago

27 Replies

Carpal Tunnel Syndrome

Hi all, change in topic for me. I'm pretty certain that I have had CTS for a fair while and it has definitely got worse as I have reduced my Pred (down to 5mg...

Hi all, change in topic for me. I'm pretty certain that I have had CTS for a fa...

Bcol

•3 years ago

22 Replies

Is it advisable to stay at ...say 8mg pred?

I have had PMR & GCA since Feb 2017. It has been a rocky ride with all sorts of complications including Pulmonary Embolism & Pneumonia. Have got down to 6mg...

I have had PMR & GCA since Feb 2017. It has been a rocky ride with all sorts of...

Gypdyp45

•3 years ago

6 Replies

Fatigue (again!) what does it mean?

After PMR diagnosis last MArch, 15, up to 25 mg pred, then a few attempts to reduce that always failed by 12.5mg, Probable GCA diagnosed this March, 60 mg...

After PMR diagnosis last MArch, 15, up to 25 mg pred, then a few attempts to red...

Sharitone

•3 years ago

18 Replies

Coronavirus Anti Body Test

OK, I got my Covid antibody test result back today from Covidence. The result has come back positive which I guess is good as it shows I have some antibodies,...

OK, I got my Covid antibody test result back today from Covidence. The result ha...

Bcol

•3 years ago

15 Replies

Possible flare help

Back in June I managed i thought successfully to reduce to 11.25. However before my next decrease I managed to use my arm which is affected by spondylitis too...

Back in June I managed i thought successfully to reduce to 11.25. However before...

Clucket

•3 years ago

7 Replies

Do I have to go into work

Hi everyone, Can anyone help me please,I m being bullied by my boss s,as some of u know I m a housekeeper/cook,one of their daughters has come down with the...

Hi everyone, Can anyone help me please,I m being bullied by my boss s,as some of...

Canarylady

•3 years ago

68 Replies

Successful taper?

For the first time in 3 years I have managed to get to decrease to 6.5mg pred after many false starts. I used DLs slow taper and this time it seems to have...

For the first time in 3 years I have managed to get to decrease to 6.5mg pred af...

Suet3942

•3 years ago

7 Replies

Synacthen test today!

I have it arranged at the hospital for 4 pm. I have been told not to take my pred (3mg) this morning. Seems like an awful long time from 9am yesterday. I’ll...

I have it arranged at the hospital for 4 pm. I have been told not to take my pre...

York54

•3 years ago

15 Replies

Root Canal Treatment

Hi, Has anyone had root canal treatment? What was the outcome? I have read tooth can hurt after and turn black. A crown might be needed after six months. So...

Hi, Has anyone had root canal treatment? What was the outcome? I have read to...

Digon7215

•3 years ago

27 Replies

I’ve got Covid!

Such a surprise to have suddenly started shivering last Wednesday. Yes a temperature was there and mild cough starting, with runny nose and sneezing a lot. My...

Such a surprise to have suddenly started shivering last Wednesday. Yes a temper...

Silver-Babe

•3 years ago

27 Replies

4 years later

Hi All Some advice appreciated please. I started my PMR journey almost 4 years when I was 49, and after a couple of bumps along the way am now at 1. 5/1mg of...

Hi All Some advice appreciated please. I started my PMR journey almost 4 years ...

AllyRobson

•3 years ago

10 Replies

prednisolone and blood clots in lung

I have been on prednisolone for almost 2 years now, for PMR,starting on 10mg and now down to 7mg. Last Sunday, I went to hospital after feeling unwell for a...

I have been on prednisolone for almost 2 years now, for PMR,starting on 10mg an...

polyputthekettleon

•3 years ago

9 Replies

Extra pain

Hi all.Question,can you rib pain for no particular reason when you have PMR?? I ask because 3 times since the PMR onset,I've had this pain on breathing in...

Hi all.Question,can you rib pain for no particular reason when you have PMR?? I...

Nursey30

•3 years ago

8 Replies

Actemra/tocilizumab

Hi, I’m looking for any of you who have experience with these infusions. I’ 14 months in and can’t seem to taper off Prednisone., also taking Methatroxate....

Hi, I’m looking for any of you who have experience with these infusions. I’ 14...

Suzorand

•3 years ago

5 Replies

Is it possible to have pmr without pain and stiffness?

I can almost see your faces on this one. I know what I have been going through, I just talked with someone that told me they were diagnosed with...

I can almost see your faces on this one. I know what I have been going through,...

Paperroses

•3 years ago

15 Replies

Low Carb Diet makes a difference?

Does a low carb diet really help? After 5 years of PMR, down to 8 mg daily pred and overweight, I'm ready to try cutting carbs. What has been anybody's diet...

Does a low carb diet really help? After 5 years of PMR, down to 8 mg daily pred ...

salparadise127

•3 years ago

41 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

What is the best slow reduction

Temperal biopsy

Possible return of GCA

Stressful

PMR QUESTION

Methotrexate issues

Gca or long covid

Rheumy consultant at Queens Hospital

Aches and pains

Is it common for newby PMR sufferers to have a low-level headache for a day or so?

Leg problem giving walking difficulties

More pred ??

Need to ‘up’ dose, advice please

It's all good now!

Carpal Tunnel Syndrome

Is it advisable to stay at ...say 8mg pred?

Fatigue (again!) what does it mean?

Coronavirus Anti Body Test

Possible flare help

Do I have to go into work

Successful taper?

Synacthen test today!

Root Canal Treatment

I’ve got Covid!

4 years later

prednisolone and blood clots in lung

Extra pain

Actemra/tocilizumab

Is it possible to have pmr without pain and stiffness?

Low Carb Diet makes a difference?

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