Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,024 posts

All posts for August 2021

Should I go give up on trying to reduce preds

I have been taking preds for pmr now for over 8 yrs . I reduced down to 2 mg at one period but had to increase again due to a return of symptoms then staying...

I have been taking preds for pmr now for over 8 yrs . I reduced down to 2 mg at ...

Johnone1940

•3 years ago

11 Replies

Ode

Ode to Healthunlocked ⭐️⭐️⭐️ Pred up Pred down I’m just wearing a frown, Do you own me or do I own you! Inflammation is the contamination to our bodies...

Ode to Healthunlocked ⭐️⭐️⭐️ Pred up Pred down I’m just wearing a frown, Do y...

Uglow

•3 years ago

8 Replies

Just a thought

I was "diagnosed" with PMR last May, was put on the usual 15mg of Pred but that had absolutely no effect. Then went to 25mg for a week and, hey-presto, all...

I was "diagnosed" with PMR last May, was put on the usual 15mg of Pred but that ...

Flivoless

•3 years ago

16 Replies

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Has anyone found acupuncture helps with the aches and pains of PMR?

I’m booked in for an acupuncture session on Friday as I am so sick of the aches in my sit bones. I’m still on Pred and tapering …at 9.5 atm but the whole time...

I’m booked in for an acupuncture session on Friday as I am so sick of the aches ...

Lilly-Gee

•3 years ago

21 Replies

COVID after 2 vaccines and PMR flareup

Covid & PMR I wonder if anyone else has had covid after two vaccines ( Moderna) and experienced PMR flareup. I was ill with covid for 2 weeks loss of taste is...

Covid & PMR I wonder if anyone else has had covid after two vaccines ( Moderna) ...

Pawscat11

•3 years ago

11 Replies

Help with final taper

Hi I am a newby on this site and I am looking for help with a final taper. 5 years on Prednisolone and last few years on 7 mg, apart from mini flare ups. I...

Hi I am a newby on this site and I am looking for help with a final taper. 5 yea...

Glynbo123

•3 years ago

8 Replies

After effects of sugar

The day before yesterday, at our usual coffee house, we were given some milk chocolate along with our drinks. Not a huge amount, but I haven't eaten any...

The day before yesterday, at our usual coffee house, we were given some milk cho...

Pr0jection

•3 years ago

3 Replies

The Unexpected!

Good Morning everyone. I'm currently near Looe in Cornwall, in a small holiday apartment with a stunning view across a beautiful bay. Arriving yesterday...

Good Morning everyone. I'm currently near Looe in Cornwall, in a small holiday...

Kendrew

•3 years ago

80 Replies

PMR, Pred or my eyes?

I’m currently on 8mg of pred and into my 3rd week at this dose. This last week I’ve felt awful! Very disoriented and spaced out. Not really dizzy though. I’ve...

I’m currently on 8mg of pred and into my 3rd week at this dose. This last week I...

Decsgran

•3 years ago

10 Replies

Tapering commenced. What should I expect?

Tapered from 30 mg to 25 mg in two 2.5 mg drops (two weeks apart). All OK so far. Plan is to keep dropping 2.5 mg every two weeks until I get to 15 mg then...

Tapered from 30 mg to 25 mg in two 2.5 mg drops (two weeks apart). All OK so fa...

LBM1953

•3 years ago

3 Replies

Blood test to check cortisol

I am due for the pre 9 am blood test. Do I take prednisolone prior or do I need to wait till after the blood test?

I am due for the pre 9 am blood test. Do I take prednisolone prior or do I need ...

Jesse-Cat

•3 years ago

35 Replies

Balance

Good morning lovely people! Does anyone else have balance issues? I'm currently on 13mg pred, and find my balance is all over the place. Probably due to...

Good morning lovely people! Does anyone else have balance issues? I'm current...

ChrisinNam

•3 years ago

51 Replies

To increase or not to increase during in a stressful time.

Am at present down to 5mg Pred since April. Now find myself under increasing stress due to inlaws being sick/dying, us getting a new puppy next week and all...

Am at present down to 5mg Pred since April. Now find myself under increasing str...

DodiR

•3 years ago

6 Replies

Just because you are vaccinated doesn't make you safe! Reinforcement ...

https://www.medicalnewstoday.com/articles/massachusetts-outbreak-demonstrates-delta-variants-transmissibility?utm_source=Sailthru%20Email&utm_medium=Email&utm_c

https://www.medicalnewstoday.com/articles/massachusetts-outbreak-demonstrates-de...

PMRpro

Ambassador•3 years ago

74 Replies

Just started reducing from 15mg to 12.5mg of prednisilone.

Woke up during the night with painful legs and shoulders and I’ve been completely exhausted all day. Is this a normal response?

Woke up during the night with painful legs and shoulders and I’ve been completel...

Joneskye

•3 years ago

25 Replies

Blood tests GCA

When bloods done for GCA should the ESR level and the Serum C reactive protein marker be tested.. The nurse seems to have stopped requesting the latter.

When bloods done for GCA should the ESR level and the Serum C reactive protein m...

Crommie

•3 years ago

11 Replies

Severe pain in heal with PMR?

Can anyone shed some light on this. I have severe acute pain in my right heal comes from nowhere and goes it’s so bad I can’t drive when it’s there! No damage...

Can anyone shed some light on this. I have severe acute pain in my right heal co...

_multistrada

•3 years ago

29 Replies

PMR or something else

Hi everyone, I have the most awful pain in my rib area at back it feel like Iv pulled muscles with burning pain. My shoulder starting to ache too. I can hardly...

Hi everyone, I have the most awful pain in my rib area at back it feel like Iv p...

Uglow

•3 years ago

29 Replies

First real flare-up, any advice welcome

Hi, I’m four months into my PMR diagnosis and after a long, slow start on 15mg pred, I have managed to reduce slow,y to 9 mg, managing to lead a normal life...

Hi, I’m four months into my PMR diagnosis and after a long, slow start on 15mg p...

Laineydee

•3 years ago

6 Replies

is a person with history of PMR and RS3PE considered to be "immunocompromised"?

Hello all, Is a long term history (15 years) of intermittent PMR and RS3PE considered to be a characteristic of an "immunocompromised" person? Here in the US,...

Hello all, Is a long term history (15 years) of intermittent PMR and RS3PE cons...

Danrower

•3 years ago

7 Replies

Soft tissue massage and relief, relief, relief!!!

I noticed yesterday afternoon my left Tubi-grip on my leg was wet. My leg was leaking a clear liquid...no open sore, just coming through the tissue. In the...

I noticed yesterday afternoon my left Tubi-grip on my leg was wet. My leg was l...

Grammy80

•3 years ago

11 Replies

Hi my husband who is 67 has dropped very slowly thanks to all of you down to 4.5 and was doing great . Pain came back alittle at 4.

He went up to 9mg 4 days ago. Feels better but not great. Does he need to go higher because of the flare ? He does not want to. He wants to drop back to 4.5...

He went up to 9mg 4 days ago. Feels better but not great. Does he need to go hig...

rescuedogs

•3 years ago

4 Replies

How long to stay at higher dose after a flare

Hello all, I would appreciate a refresh about this. I was on 11 mg tapering to 10 when I flared with the classic shoulder pain. Also very painful back...

Hello all, I would appreciate a refresh about this. I was on 11 mg tapering t...

Mstiles

•3 years ago

5 Replies

Prednisone

Prednisone gas now become my friend. When I first took it within 6 hours I was reborn well sort of! But the pain I was in was excruciating I couldn’t work out...

Prednisone gas now become my friend. When I first took it within 6 hours I was r...

Uglow

•3 years ago

12 Replies

Should I increase pred. ?

Started at 20mg 13th June for PMR. Instant effect but reversed after 4 days. Realised concurrent GCA so doubled dose on 23rd June to 40mg. That was 6 weeks...

Started at 20mg 13th June for PMR. Instant effect but reversed after 4 days. Rea...

cycli

•3 years ago

22 Replies

anyone experience a torn menincus in their knee ?

I fell twice over the winter on ice and both times my left knee bent in half while my right leg went straight out. Both times I got up and was relieved to not...

I fell twice over the winter on ice and both times my left knee bent in half whi...

Paperroses

•3 years ago

17 Replies

It was a pred increase I needed.

Update from this morning. Stuck with 15mg increase from 10mg. Once my stiff back eased (because I’d spent most of the last three days in bed) I went on to...

Update from this morning. Stuck with 15mg increase from 10mg. Once my stiff back...

MiloCollie

•3 years ago

9 Replies

Can I drive

While visiting rheumie several months ago I mentioned driving and he told me I may never drive again and why would I want to considering how bad the traffic...

While visiting rheumie several months ago I mentioned driving and he told me I m...

ancientprune

•3 years ago

70 Replies

Prednisolone and Formication

Has anyone experienced Formication when taking Prednisolone. After feeling as though some insect was crawling lightly on my skin I looked it up on the...

Has anyone experienced Formication when taking Prednisolone. After feeling as t...

Pon12

•3 years ago

14 Replies

Sharing something helpful to me...

Try not to get caught up in the beauty of my leg......... I was wearing Tubi-Grip for compression and I wore it from the ankle up. When I did that my arch...

Try not to get caught up in the beauty of my leg......... I was wearing Tubi-Gri...

Grammy80

•3 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Should I go give up on trying to reduce preds

Ode

Just a thought

Has anyone found acupuncture helps with the aches and pains of PMR?

COVID after 2 vaccines and PMR flareup

Help with final taper

After effects of sugar

The Unexpected!

PMR, Pred or my eyes?

Tapering commenced. What should I expect?

Blood test to check cortisol

Balance

To increase or not to increase during in a stressful time.

Just because you are vaccinated doesn't make you safe! Reinforcement ...

Just started reducing from 15mg to 12.5mg of prednisilone.

Blood tests GCA

Severe pain in heal with PMR?

PMR or something else

First real flare-up, any advice welcome

is a person with history of PMR and RS3PE considered to be "immunocompromised"?

Soft tissue massage and relief, relief, relief!!!

Hi my husband who is 67 has dropped very slowly thanks to all of you down to 4.5 and was doing great . Pain came back alittle at 4.

How long to stay at higher dose after a flare

Prednisone

Should I increase pred. ?

anyone experience a torn menincus in their knee ?

It was a pred increase I needed.

Can I drive

Prednisolone and Formication

Sharing something helpful to me...

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