Successful taper?: For the first time in 3 years I... - PMRGCAuk

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Successful taper?

Suet3942 profile image
7 Replies

For the first time in 3 years I have managed to get to decrease to 6.5mg pred after many false starts. I used DLs slow taper and this time it seems to have worked . Fingers crossed.

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Suet3942 profile image
Suet3942
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7 Replies
SheffieldJane profile image
SheffieldJane

That’s really great Sue! Fingers crossed for you. Let us know!

Suet3942 profile image
Suet3942 in reply to SheffieldJane

I e got everything crossed Jane. Xx

Well done. I managed to recently get down to 6.5mg too, sadly PMR/ GCA symptoms returned so had to increase again. I wish you all the luck in your tapering regime. I used the DLs method....so far for me since diagnosis it's been twenty months.

HappyDiamonds profile image
HappyDiamonds

So pleased for you, it means so much to us doesn't it?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Double fingers crossed 😊

Viv54 profile image
Viv54

Good for you , this is where i am atm ! but due to Chest infection and other factors ,im staying at this level for now !. Well done.

Japsquar profile image
Japsquar

Fingers crossed indeed! I’m also trying DL’s slow taper trying to reduce from 20. Tried unsuccessfully before - to 17.5 and 15 - but am encouraged by you and others that it might work this time. Complicated by the fact that I’m just getting properly walking again after ankle surgery and some muscles are getting a shock and unsurprisingly stiff. I get a 2 hour window from about 6am before neck and shoulders seize up. Does anyone else find that?

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