Aches and pains: Hi am just wondering if this is a... - PMRGCAuk

PMRGCAuk

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Aches and pains

Flosy profile image
8 Replies

Hi am just wondering if this is a flare or not.have real bad pains in my arms,neck and shoulders and legs.over the last 2 weeks.or is it because I've lower my dose from 5 til 4 I reduce by 1mg a month.thank you.any advice please.

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Flosy profile image
Flosy
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8 Replies
PMRpro profile image
PMRproAmbassador

It could well be - are the pains similar to what you had with PMR at the start? You aren't reducing relentlessly to zero, you are looking for the lowest effective dose and that may well be 5mg for now. It doesn't mean you won't get lower - just not yet.

Flosy profile image
Flosy in reply to PMRpro

Hi.yes they are.so do you think I should go back to 5mg.thank you for your reply.

Koalajane profile image
Koalajane in reply to Flosy

I struggled to reduce from 5mg. In fact it took me a year to get to 4mg and I ended up reducing by ,25mg each time. 5 to 4 is a big drop so maybe you should get it under control and then drop by .5mg

Flosy profile image
Flosy in reply to Koalajane

Thank you.

PMRpro profile image
PMRproAmbassador in reply to Flosy

I think it is the first thing to try - and as Koalajane suggests, once it is under control again, try just 1/2mg . Do you use a slowed taper like DSNS or DorsetLady's one?

Flosy profile image
Flosy in reply to PMRpro

Thank you.will try that.

piglette profile image
piglette

It sounds very much as if you have gone below your comfortable level. Personally I would go back to the point I last felt OK for a while, then reduce in smaller amounts if possible. Reducing 5mg to 4mg is a 20% reduction which is quite a lot.

Flosy profile image
Flosy in reply to piglette

Thank you.

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