Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for April 2021

Recurring Hip Bursitis

Hi. PMRand GCA for 5 .5 years and just reducing from 1.25mgs to 1 mg over last 4 weeks. Coincidentally, coincides with another bout of hip bursditis! Had...

Hi. PMRand GCA for 5 .5 years and just reducing from 1.25mgs to 1 mg over last 4...

PhoebeMum

•3 years ago

18 Replies

Any advice please?

I’m confused. I was diagnosed with PMR in January when I finally rang the GP after months of pain getting progressively worse. That was diagnosed because I...

I’m confused. I was diagnosed with PMR in January when I finally rang the GP aft...

Hidden

•3 years ago

19 Replies

Feeling awful

I was due to have a hysteroscopy under GA last Thursday but it couldn't be done as my heart rate was too high. The anaesthetist thought they might have to...

I was due to have a hysteroscopy under GA last Thursday but it couldn't be done ...

maria40

•3 years ago

5 Replies

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Tiredness

I’m so tired so tired, iv gone fine from 20mg to 17.5mg. Has anyone had chemo on here it’s that kind of tiredness. Overwhelming. Advice needed please

I’m so tired so tired, iv gone fine from 20mg to 17.5mg. Has anyone had chemo o...

Uglow

•3 years ago

10 Replies

Muddled thinking

Hi, James here. Hoping for some help for my muddled thinking. Was diagnosed with pmr in Feb, even though I knew something wasn't right from the september...

Hi, James here. Hoping for some help for my muddled thinking. Was diagnosed wit...

Hidden

•3 years ago

24 Replies

Managing IBS and PMR

It seems my lifelong IBS is worse than usual. Any tips from fellow sufferers? Do you up prednisone during an attack? The endocrinologist suggested upping...

It seems my lifelong IBS is worse than usual. Any tips from fellow sufferers? Do...

Karenjaninaz

•3 years ago

21 Replies

New Side Effect From mRNA COVID Vaccines ?

This may be of interest since it relates to folks with autoimmune diseases. https://www.medpagetoday.com/infectiousdisease/covid19vaccine/92106

This may be of interest since it relates to folks with autoimmune diseases. http...

rocketman42

•3 years ago

11 Replies

Muscle tenderness

Does anyone experience muscle tenderness after being diagnosed with pmr or gca? I am a 69 year old female. I was diagnosed with pmr in February 2020 and gca,...

Does anyone experience muscle tenderness after being diagnosed with pmr or gca? ...

Cgt1151

•3 years ago

6 Replies

Covid antibodies v Prednisolone

Presently I am 3 yrs with PMR and have tapered to 3.5mg daily for the last year. Today I had my second AZ vaccine. My concern is how much the Prednisolone will...

Presently I am 3 yrs with PMR and have tapered to 3.5mg daily for the last year....

HamishPMR

•3 years ago

5 Replies

No antibodies update

Hi everyone, I seem to have opened up a can of worms regarding no antibodies and 2 vac of Astra Zeneca, I’m going to have another test in a few weeks to see...

Hi everyone, I seem to have opened up a can of worms regarding no antibodies a...

2013mayo

•3 years ago

12 Replies

PMR Stay

This is a follow up situation from my earlier posts i.e. is it PMR or not? Have seen a Physiotherapist (recommended by a member which I’m grateful for) re my...

This is a follow up situation from my earlier posts i.e. is it PMR or not? Hav...

GucciPaddy

•3 years ago

2 Replies

No antibodies for covid 19

Hi everyone, I have an interesting thing going on. I have been asked to take part in a trial for a company which is checking antibodies for covid 19. I have...

Hi everyone, I have an interesting thing going on. I have been asked to take p...

2013mayo

•3 years ago

49 Replies

Adcal d3

Hi, I have been prescribed Adcal d3 tablets for osteoprenia. These tablets making me sick and don't tast food. Any suggestions

Hi, I have been prescribed Adcal d3 tablets for osteoprenia. These tablets mak...

Yellow64

•3 years ago

10 Replies

Covid vaccination?

Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid...

Hi all This is a long shot but I've just been reading about the flu vaccine on h...

Beevbops

•3 years ago

1 Reply

GCA concern

Ok, so I’m sat watching tv and have just felt a bulging vein at my temple, is this likely to be GCA onset? Really worried about it. As you have probably...

Ok, so I’m sat watching tv and have just felt a bulging vein at my temple, is th...

Liby57

•3 years ago

35 Replies

Second Pfizer jab

Had yesterday. Sore arm but so far no other symptoms

Rosina1871

•3 years ago

2 Replies

Update on support socks

Hi all well picked up my support stockings today and wore them for about 6hrs and my my legs seem to be aching more now than before, not sure what I was...

Hi all well picked up my support stockings today and wore them for about 6hrs a...

Hidden

•3 years ago

8 Replies

Do steroids work straight away

Hi all I’m new to this forum I have been put on steroids 5 days ago for suspected gca 60mg and had a biopsy awaiting results, I really did not know there was...

Hi all I’m new to this forum I have been put on steroids 5 days ago for suspect...

Bauldy

•3 years ago

17 Replies

Morning stiffness

Can anyone tell me if the morning stiffness ever goes away? I was diagnosed 14 months ago with PMR, and 2 months later with GCA. I am down to 8mg of prednisone...

Can anyone tell me if the morning stiffness ever goes away? I was diagnosed 14 m...

Cgt1151

•3 years ago

8 Replies

Taking AlgaeCal plus and Strontium boost

I Just started taking this product for my bones. I have many fractures and am scared of all the drugs available to build bone. This product claims to build...

I Just started taking this product for my bones. I have many fractures and am s...

Linny3

•3 years ago

5 Replies

Parked at 4.5 mgm prednisone

It seems, that even when I try 1/4 mgm decreases, I feel ill. My rheumatologist ordered a morning cortisol level after a 24 hour “fast” from prednisone. The...

It seems, that even when I try 1/4 mgm decreases, I feel ill. My rheumatologist ...

Karenjaninaz

•3 years ago

18 Replies

A question for those still menstruating or using cyclical HRT

Quite a niche one! Do you feel that your symptoms (pain, inflammation, fatigue) are affected by your cycle? I'm experiencing a little more pain and stiffness...

Quite a niche one! Do you feel that your symptoms (pain, inflammation, fatigue) ...

Hidden

•3 years ago

12 Replies

Alondronic Acid

Does everyone take this to protect against osteoporosis when taking prednisone? GP suggested it when discussing steroid ( which I have not taken yet) but a few...

Does everyone take this to protect against osteoporosis when taking prednisone? ...

TURQ8

•3 years ago

26 Replies

Appointment with endocrinologist

My GP referred me to an endocrinologist saying my cortisol levels are low. Had a telephone call with him yesterday. He said everyone taking pred has low...

My GP referred me to an endocrinologist saying my cortisol levels are low. Had a...

PMRSUE

•3 years ago

11 Replies

Anyone taking Melatonin? (if you can't sleep here's a great book! ) (two birds..one stone!)

I just too melatonin the other night. I have taken it before and I was exhausted. REALLY thought it was a flare... just exhausted. and NOW I read that they do...

I just too melatonin the other night. I have taken it before and I was exhausted...

yogabonnie

•3 years ago

23 Replies

Has anyone experienced a jump in their inflammation markers a week after receiving their covid vaccine? My sed rate jumped from 32 to 58.

I have GCA (3 and a half years in, 7 mg prednisone)and got my first Pfizer a week ago-exactly. Felt good until Thursday morning when weakness and chills...

I have GCA (3 and a half years in, 7 mg prednisone)and got my first Pfizer a we...

Blurry62

•3 years ago

28 Replies

Pain in calf/foot after hip bursa shot

Steroid shot to the left hip's bursa helped my pain immensely but the remaining pain in the calf, sometimes going down to the foot has been discouraging in as...

Steroid shot to the left hip's bursa helped my pain immensely but the remaining...

pegpowell

•3 years ago

10 Replies

Total shock re operation

Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My last op was cancelled just as lockdown started. The op is for muscle...

Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My ...

2013mayo

•3 years ago

18 Replies

Astra Zeneca Vaccine / prednisolone

I am due to have 2nd AZ vaccine but with all the news about possible blood clots am now feeling a little apprehensive despite having had the 1st vaccine....

I am due to have 2nd AZ vaccine but with all the news about possible blood clots...

Liby57

•3 years ago

39 Replies

Quick update

I have just spoken to receptionist at Doctors surgery for blood results. Doctor has marked them as normal, no follow up. My CRP is 12 which is what it was...

I have just spoken to receptionist at Doctors surgery for blood results. Doctor ...

jules1955

•3 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Recurring Hip Bursitis

Any advice please?

Feeling awful

Tiredness

Muddled thinking

Managing IBS and PMR

New Side Effect From mRNA COVID Vaccines ?

Muscle tenderness

Covid antibodies v Prednisolone

No antibodies update

PMR Stay

No antibodies for covid 19

Adcal d3

Covid vaccination?

GCA concern

Second Pfizer jab

Update on support socks

Do steroids work straight away

Morning stiffness

Taking AlgaeCal plus and Strontium boost

Parked at 4.5 mgm prednisone

A question for those still menstruating or using cyclical HRT

Alondronic Acid

Appointment with endocrinologist

Anyone taking Melatonin? (if you can't sleep here's a great book! ) (two birds..one stone!)

Has anyone experienced a jump in their inflammation markers a week after receiving their covid vaccine? My sed rate jumped from 32 to 58.

Pain in calf/foot after hip bursa shot

Total shock re operation

Astra Zeneca Vaccine / prednisolone

Quick update

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