Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2021

Cymbalta

I explained to my rheumy at last visit that my symptoms intensify greatly for 2 weeks with each taper then slowly back down until the next taper. Now he wants...

I explained to my rheumy at last visit that my symptoms intensify greatly for 2 ...

Zareda

•3 years ago

40 Replies

PMR after Moderna 2 Doses

Stayed at 4.5mg/d Pred since 3/4 didn’t want to further increase a risk of a flare by dropping to 4mg. Dose 1 was 2/26. Had no side affects at all. Even my...

Stayed at 4.5mg/d Pred since 3/4 didn’t want to further increase a risk of a fla...

Boss302Fan

•3 years ago

3 Replies

Covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases

https://rheumatology.medicinematters.com/covid-19/vaccination/covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases/19009228? This applies to people...

https://rheumatology.medicinematters.com/covid-19/vaccination/covid-19-vaccines-...

PMRpro

Ambassador•3 years ago

17 Replies

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COVID vaccine question

Leilagirl

•3 years ago

54 Replies

Is infrared therapy helpful for pmr?

I have recently been diagnosed with fairly severe osteoarthritis in my knee and also pmr. Some research suggests infrared therapy is helpful in relieving...

I have recently been diagnosed with fairly severe osteoarthritis in my knee and ...

Supame3

•3 years ago

3 Replies

Flare Update

Advice on flare working so far. I was at 9 mg and having shoulder, neck and leg pains once again. Advice I got from PMRPRO was increase by 5 mg for 5-7 days...

Advice on flare working so far. I was at 9 mg and having shoulder, neck and leg ...

Alebeau

•3 years ago

11 Replies

Hi can anyone advise if a Keto diet will get rid of the pred weight please?

Hi can anyone advise if a Keto diet will get rid of the pred weight. I have been on pred for 5months and am now on 10mg and I have put on over a stone and...

Hi can anyone advise if a Keto diet will get rid of the pred weight. I have been...

Tayzee

•3 years ago

12 Replies

Increasing prednisone

Diagnosed PMR May 2020 & started on 20 mg.Did slow titration to 4mg & was fine until 2weeks ago then ugh pains+Weakness lethargy.Increased to 10mg with no...

Diagnosed PMR May 2020 & started on 20 mg.Did slow titration to 4mg & was fine u...

Glyngin

•3 years ago

4 Replies

TFCC Wrist Pain

Hi, I have pain in my left wrist and have been told its a tear in the triangular fibrocartilage complex (the cartilage in the wrist joint on the little finger...

Hi, I have pain in my left wrist and have been told its a tear in the triangula...

redpete99

•3 years ago

3 Replies

Update on sacroiliac joint pain

Sorry been so long on update . It turns out it’s not sacroiliac joints at all . Long story short I ended up in hospital and MRI scan showed old fracture plus...

Sorry been so long on update . It turns out it’s not sacroiliac joints at all ....

Looby60

•3 years ago

9 Replies

Update on Griggser from his OH

Breathing a sigh of relief. As you can see from his post he is much improved - finally the drugs are working. Can I just thank everyone who replied to my post...

Breathing a sigh of relief. As you can see from his post he is much improved - f...

JackyGT

•3 years ago

22 Replies

Weight/loss

Wow. I have had so many answers to my original post and thank you so much everyone who has bothered to reply. I really appreciate your efforts and...

Wow. I have had so many answers to my original post and thank you so much everyo...

Bagadash

•3 years ago

4 Replies

Showers!🥴

I think I will give up showering for good. I had a shower at 10am - it is now 11.45 and I am knackered! The only positive thing about it is I have less...

I think I will give up showering for good. I had a shower at 10am - it is now 1...

Constance13

•3 years ago

136 Replies

Update on fingers crossed

Well I saw the doc on Monday who prescribed 40mg of pred in case it’s GCA. Along with a couple of different drugs. Tuesday night the pain was unbearable so my...

Well I saw the doc on Monday who prescribed 40mg of pred in case it’s GCA. Along...

Griggser

•3 years ago

12 Replies

Reduction of 1 mg causing pain

Who would have thought that a taper of just1 my from 20 to 19 would cause the pain to return in just 24 hours - do I carry on and see how it goes? Been on 20...

Who would have thought that a taper of just1 my from 20 to 19 would cause the pa...

Fiddlersmum

•3 years ago

9 Replies

Flare after respiratory virus, increasing prednisone

I stress on 20mg of prednisone 8 months ago and have reduced to 9mg daily. 6 weeks ago I caught a virus (not covid) my husband had it first. He recovered I...

I stress on 20mg of prednisone 8 months ago and have reduced to 9mg daily. 6 wee...

Renesch

•3 years ago

18 Replies

Possible flare up of PMR

Having been diagnosed with PMR in September 2020 after having symptoms for over a year I was prescribed 15mg prednisolone by my GP. I have been reducing the...

Having been diagnosed with PMR in September 2020 after having symptoms for over ...

Roastcauli

•3 years ago

5 Replies

I have just discovered this site so am a newbie.

Female aged 83. Diagnosed with PMR in August 2019. Started on 15mg now down to 3.5mg. Been trying to get to 3mg with difficulty so am now tryingDSNS to see if...

Female aged 83. Diagnosed with PMR in August 2019. Started on 15mg now down to 3...

Bagadash

•3 years ago

2 Replies

Foot And Ankle Swelling As Prednisone Side Effect?

About two weeks ago I began to notice slight swelling in one foot only. Today it is getting quite a bit worse with swelling visible from just below the knee...

About two weeks ago I began to notice slight swelling in one foot only. Today it...

OldGolfer

•3 years ago

18 Replies

chronic biochemical non inflammatory pain ?

you may remember weeks ago I have been supporting a dear friend of mine who has been suffering with PMR for 4 years. Currently her pain is still not under...

you may remember weeks ago I have been supporting a dear friend of mine who has ...

larkthebark

•3 years ago

9 Replies

Interesting "debate" with pharmacist this morning

I had a medication review with my GP practice pharmacist this morning - the first in 4 years. I have always taken enteric coated pred before I go to bed on the...

I had a medication review with my GP practice pharmacist this morning - the firs...

Jontie

•3 years ago

77 Replies

Weight gain/loss

I have had PMR for almost 2years now and am having great difficulty in reducing prednisolone from 3.5mg to 3mg and have just started DSNS. My question is...

I have had PMR for almost 2years now and am having great difficulty in reducing ...

Bagadash

•3 years ago

21 Replies

Does tylenol help?

I have PMR and am on low dose 1mg prednisone. It works quite well, but not so well the fluey feeling and all over misery when high humidity. Is Tylenol any...

I have PMR and am on low dose 1mg prednisone. It works quite well, but not so w...

Jane424

•3 years ago

6 Replies

statistics

Are there published statistics of the number of people currently diagnosed with PMR in the UK (world); and is there any evidence that numbers are growing?

Are there published statistics of the number of people currently diagnosed with ...

Bennijax

•3 years ago

14 Replies

White spots

Anyone got any ideas. I have started developing “white spots” on my skin. They easily come off, but come back again. They appear to be located at hair...

Anyone got any ideas. I have started developing “white spots” on my skin. They...

Dcctrains

•3 years ago

6 Replies

Expected duration on pred for PMR and CGA patients

Has anyone read this study, published 26 February 2021? "Treatment Patterns, Disease Burden, and Outcomes in Patients with Giant Cell Arteritis and...

Has anyone read this study, published 26 February 2021? "Treatment Patterns, Di...

Joydeck

•3 years ago

8 Replies

Skin problems

I finished taking Prednisolone 12 months ago after 5 years for PMR. My skin problems started when I came off the steroids a year ago and I am wondering if...

I finished taking Prednisolone 12 months ago after 5 years for PMR. My skin p...

Wenben

•3 years ago

8 Replies

Cats claw

Has anyone got any experience of cats claw supplement? I believe it’s recommended for arthritis type conditions? I have had ongoing issues with my knee...

Has anyone got any experience of cats claw supplement? I believe it’s recommende...

Lochy

•3 years ago

13 Replies

PMR Info clip

I'm running a series of themed open mic events on Zoom for my students. This is my sixth one, which is Rock themed. I've made previous ones charitable events...

I'm running a series of themed open mic events on Zoom for my students. This is ...

Singr

•3 years ago

3 Replies

Alendronic Acid

I have a telephone appointment with my GP on Monday and want to tell her I’d prefer to stop taking Alendronic Acid. I was diagnosed with osteoporosis,...

I have a telephone appointment with my GP on Monday and want to tell her I’d pre...

Tinasleepyhead

•3 years ago

50 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2021

Cymbalta

PMR after Moderna 2 Doses

Covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases

COVID vaccine question

Is infrared therapy helpful for pmr?

Flare Update

Hi can anyone advise if a Keto diet will get rid of the pred weight please?

Increasing prednisone

TFCC Wrist Pain

Update on sacroiliac joint pain

Update on Griggser from his OH

Weight/loss

Showers!🥴

Update on fingers crossed

Reduction of 1 mg causing pain

Flare after respiratory virus, increasing prednisone

Possible flare up of PMR

I have just discovered this site so am a newbie.

Foot And Ankle Swelling As Prednisone Side Effect?

chronic biochemical non inflammatory pain ?

Interesting "debate" with pharmacist this morning

Weight gain/loss

Does tylenol help?

statistics

White spots

Expected duration on pred for PMR and CGA patients

Skin problems

Cats claw

PMR Info clip

Alendronic Acid

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