Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,498 members • 38,476 posts

All posts for March 2021

how long should one wait between tapers?

Hallo wonderful people, I completed a Dorset Lady taper of pred. from 7 1/2 to 7 mg. on February 29. All seems to be fairly static, and although I know we are...

Hallo wonderful people, I completed a Dorset Lady taper of pred. from 7 1/2 to 7...

humlies

•3 years ago

14 Replies

Vaccine

I received this for those on Pred. Might be of interest. https://www.ouh.nhs.uk/rheumatology/documents/risk-stratification-letter.pdf

I received this for those on Pred. Might be of interest. https://www.ouh.nhs...

Liby57

•3 years ago

1 Reply

GCA symptoms

Following on from yesterday I am wondering if anyone who has had GCA or is knowledgeable about it can identify with any of the following symptoms that I was...

Following on from yesterday I am wondering if anyone who has had GCA or is knowl...

90planetree

•3 years ago

45 Replies

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Pred and Lactose Intolerance?

Hi all, I’m back on Pred as my “putting up with PMR” didn’t last long! I’m finding this forum very helpful. I started 15mg pred in March last year and it...

Hi all, I’m back on Pred as my “putting up with PMR” didn’t last long! I’m fin...

KerryIreland

•3 years ago

5 Replies

Weird PMR

Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is very much localized in just one area - i.e. lower righthand side of my neck....

Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is ve...

GucciPaddy

•3 years ago

18 Replies

PMR and Ocular Shingles

I’m Griggser’s wife and I’m just updating on his current condition as I’m really worried at the moment. I know he posted at the weekend that he had a pain in...

I’m Griggser’s wife and I’m just updating on his current condition as I’m really...

JackyGT

•3 years ago

69 Replies

Returning to the PMR/GCA site

I finally came off Pred. in April 2020 after starting it in 2018.Despite having had a second opinion (a bias towards Lupus) it was never absolutely confirmed...

I finally came off Pred. in April 2020 after starting it in 2018.Despite having ...

ragdollcat4

•3 years ago

7 Replies

PMR/GCA

Such a relief: doctor called and my ESR well below average as were other inflammation markers. Panic over, back to 5mgs a day and hopefully a lull in...

Such a relief: doctor called and my ESR well below average as were other inflam...

Lollybygolly

•3 years ago

22 Replies

Long Covid more common in white, middle-aged women

I read this in the Times Covid news: "Long-term Covid-19 symptoms after hospital treatment are more common in women, the middle-aged and white patients,...

I read this in the Times Covid news: "Long-term Covid-19 symptoms after hospita...

whitefishbay

•3 years ago

8 Replies

Prednisolone & the vaccine

Hello everyone! I was diagnosed with PMR at the beginning of the month and this is now my third week on 15mg Prednisolone. It has worked wonders both...

Hello everyone! I was diagnosed with PMR at the beginning of the month and thi...

LeighDelaine

•3 years ago

13 Replies

PMR question.

I am currently at 2 mg and my pharmacist was suggesting I might want to speak to my doctor about methotrexate in order hopefully get off of the prednisone and...

I am currently at 2 mg and my pharmacist was suggesting I might want to speak to...

remission

•3 years ago

47 Replies

RA/GCA Emergency

A year ago I was diagnosed with RA, having ground to a halt physically was joyous that 30mgs Pred gave me my life back. Painted around 70-80 pictures this...

A year ago I was diagnosed with RA, having ground to a halt physically was joyou...

Lollybygolly

•3 years ago

12 Replies

Debilitation

Is there any way of reducing the terrible debilitation associated with PMR?

ChrisinNam

•3 years ago

7 Replies

H Pylori Stomach Acid/Pain

Hello, So I was diagnosed with H Pylori a few months back now, I have been given, two courses of antibiotics, the doctor says it can take a while to clear up...

Hello, So I was diagnosed with H Pylori a few months back now, I have been given...

cupcake921

•3 years ago

7 Replies

Taking pred at the exact same time each day

Does it matter if you are not that strict about taking your pred at the exact same time each day? I’ve always been flexible about routines and since...

Does it matter if you are not that strict about taking your pred at the exact...

Mstiles

•3 years ago

28 Replies

Struggling

Hi all I view site everyday & find it very useful, started on 20 Prednisolone last August & was reducing okay until I tried to reduce below 10and symptoms...

Hi all I view site everyday & find it very useful, started on 20 Prednisolone l...

90planetree

•3 years ago

11 Replies

Hello, it's been a while.

It’s been several months since I last posted and thought it was time for a bit of an update. Particularly, as a person who was deadly scared of covid and ended...

It’s been several months since I last posted and thought it was time for a bit o...

nuigini

•3 years ago

8 Replies

40mg Pred for GCA Flare & breathing not so good

I saw my Consultant at Hospital beginning of last week about my recent flare and she increased my Pred to 40mg. All GCA pain is gone now but I'm feeling more...

I saw my Consultant at Hospital beginning of last week about my recent flare and...

HappyDiamonds

•3 years ago

4 Replies

Advice

I'm new here and have been reading all the posts with interest they are very helpful. I have had pmr for just over a year and have reduced to a 3 mg. I am...

I'm new here and have been reading all the posts with interest they are very hel...

Bee2222

•3 years ago

5 Replies

alendronic acid pmr-like side effects

Painful muscles and joints are listed as a common side effect of alendronate, but I haven't seen much discussion of it on this forum. I've been on prednisone...

Painful muscles and joints are listed as a common side effect of alendronate, bu...

1234v

•3 years ago

10 Replies

Lack of sleep and bleeding under skin

My covid jab seems to have provoked my body. I had PMR 9 years ago and was on pred for 2 years and had geat difficulty getting off it. This return of PMR...

My covid jab seems to have provoked my body. I had PMR 9 years ago and was on p...

tallgal

•3 years ago

6 Replies

Hi

Hi everyone, I'm new to this group and glad to find you! I was diagnosed with PMR last year and the relief to be on 20mg Pred was great. I managed to reduce...

Hi everyone, I'm new to this group and glad to find you! I was diagnosed with PM...

Jooster

•3 years ago

5 Replies

MrHave PMR currently reducing am on 8mg...now have shingles should I increase pred?

PMR and Shingles

Devon21

•3 years ago

14 Replies

Inflammation anaemia?

Morning All Comparative newbie here. I was diagnosed (age 53) with PMR and RA in early Feb. I had the typical, nigh on miraculous, reaction to the initial 15mg...

Morning All Comparative newbie here. I was diagnosed (age 53) with PMR and RA in...

Hidden

•3 years ago

11 Replies

LPR

After having a camera inserted thru my nose to examine my throat I was told I had LPR. Was given Rabeprazole which I have now stopped due to side effects....

After having a camera inserted thru my nose to examine my throat I was told I ha...

Allot

•3 years ago

19 Replies

Help needed with PMR diagnosis

Hi everyone, After weeks of frantic googling, I have stumbled upon this group and it's honestly the first time things have started to make a little sense......

Hi everyone, After weeks of frantic googling, I have stumbled upon this group an...

RayDog

•3 years ago

33 Replies

GUT issues

Hi all - me again - I would like some advice please. Prednisolone thins the mucosal lining in the stomach. I have always taken the non gastric resistant one...

Hi all - me again - I would like some advice please. Prednisolone thins the muco...

Slosh

•3 years ago

29 Replies

Hair thinning at crown and seems to be breaking. Short wisps flying. Help anyone?

I believe this is one of the side effects of pred. Anyone have any tips short of a wig that may ease this symptom? I am very vain where it concerns my hair....

I believe this is one of the side effects of pred. Anyone have any tips short ...

pomeranion

•3 years ago

31 Replies

Mixed emotions today

Hi all hope yr all well. I always knew since diagnosed it was going to be a long road ahead but i font think i prepared myself enough or even really knew how...

Hi all hope yr all well. I always knew since diagnosed it was going to be a long...

Hidden

•3 years ago

22 Replies

Dosage

Hi all, Could anyone on this lovely forum tell me if 15mg of Pred is a moderate or low dose and what kind of side effects to expect? Thank you 😍

Hi all, Could anyone on this lovely forum tell me if 15mg of Pred is a moderate ...

Pangolin43

•3 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2021

how long should one wait between tapers?

Vaccine

GCA symptoms

Pred and Lactose Intolerance?

Weird PMR

PMR and Ocular Shingles

Returning to the PMR/GCA site

PMR/GCA

Long Covid more common in white, middle-aged women

Prednisolone & the vaccine

PMR question.

RA/GCA Emergency

Debilitation

H Pylori Stomach Acid/Pain

Taking pred at the exact same time each day

Struggling

Hello, it's been a while.

40mg Pred for GCA Flare & breathing not so good

Advice

alendronic acid pmr-like side effects

Lack of sleep and bleeding under skin

Hi

MrHave PMR currently reducing am on 8mg...now have shingles should I increase pred?

Inflammation anaemia?

LPR

Help needed with PMR diagnosis

GUT issues

Hair thinning at crown and seems to be breaking. Short wisps flying. Help anyone?

Mixed emotions today

Dosage

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