Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for March 2021

Prednisone

Do alot of people get the shakes from a large dose of prednisone that last for quite awhile and come and go?

Do alot of people get the shakes from a large dose of prednisone that last for q...

MoeLane

•3 years ago

21 Replies

CBD oil

Just wondered if any of you fellow PMR sufferers have tried CBD oil and if so did it help at all .

Just wondered if any of you fellow PMR sufferers have tried CBD oil and if so di...

Swdai

•3 years ago

12 Replies

Exhaustion

I was diagnosed with PMR in October 2020 due to the excruciating pain in my shoulders and neck and difficulty walking . Blood tests revealed only slightly...

I was diagnosed with PMR in October 2020 due to the excruciating pain in my shou...

Ashington52

•3 years ago

6 Replies

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New pmr diagnosis

Hi. I was diagnosed with pmr recently and started taking 15mg prednisolone on Jan 29th. I also have an ongoing hip flexor problem and a neck problem, which...

Hi. I was diagnosed with pmr recently and started taking 15mg prednisolone on J...

Clucket

•3 years ago

21 Replies

Testing negative

Has anyone been diagnosed with PMR when two lots of blood tests, show the inflammation markers as being normal? I seem to have all the symptoms but because of...

Has anyone been diagnosed with PMR when two lots of blood tests, show the inflam...

Hidden

•3 years ago

9 Replies

No news is Good News

The definition of pain is, 'A highly unpleasant physical sensation caused by illness or injury'. Of course there is also the silent pain of mental or emotional...

The definition of pain is, 'A highly unpleasant physical sensation caused by ill...

Kendrew

•3 years ago

78 Replies

Stopping prednisolone before blood test

Every two months I have blood tests to check, amongst other things, my inflammation levels. Should I stop taking the prednisolone before I have my tests, and...

Every two months I have blood tests to check, amongst other things, my inflammat...

Pr0jection

•3 years ago

11 Replies

Update on my previous DEXA post

I have finally managed to get the actual results of my DEXA scan, think my Docs admin department have been going through an "interesting" time recently.......

I have finally managed to get the actual results of my DEXA scan, think my Docs ...

Bcol

•3 years ago

8 Replies

Anxiety

Hi all, I've never been one for getting ill maybe got cough cold sore throat every few yrs tge occasional headache but nothing that was worth even mentioning...

Hi all, I've never been one for getting ill maybe got cough cold sore throat eve...

Hidden

•3 years ago

6 Replies

Determined

Today my friend Liz was cremated. 5 years younger than me. 2years ago she thought she had polymyalgia but it was bone cancer. A year ago today my other friend...

Today my friend Liz was cremated. 5 years younger than me. 2years ago she though...

Devonspinner

•3 years ago

21 Replies

COVID Vaccine question

Hello. I've been following a thread here from people who have experienced flares after getting their COVID vaccinations. I'm scheduled to get my first shot...

Hello. I've been following a thread here from people who have experienced flare...

colmarin

•3 years ago

49 Replies

Warm face

Hi all, does anyone have a warm tingle feeling in face especially cheeks

Hidden

•3 years ago

11 Replies

God bless the Conquest (follow up)

Thank you to everybody on this forum for your kind messages while I was in hospital this week with blinding headaches. It seems they were Tension headaches,...

Thank you to everybody on this forum for your kind messages while I was in hospi...

Zebedee44

•3 years ago

14 Replies

Latest list of GCA symptoms

Yesterday I was asked for a list of GCA symptoms. Has anyone got one or knows where I can find it? The person who asked me was my optometrist. I'm getting him...

Yesterday I was asked for a list of GCA symptoms. Has anyone got one or knows wh...

prunus

•3 years ago

10 Replies

GCA and sore throat

Hello.Day 4 on 60 mgs of Pred for GCA from E.D eye hospital.Pain in temples and back of head had been dreadful but lightened up a little today..still awful. My...

Hello.Day 4 on 60 mgs of Pred for GCA from E.D eye hospital.Pain in temples and ...

LaPainting

•3 years ago

37 Replies

Very late stage GCA flare?

Diagnosed with GCA two and half years ago. Very slow prednisolone taper from 5mg to 0.5mg over last 15 months. Reduced to 0.25mg a week ago and have had...

Diagnosed with GCA two and half years ago. Very slow prednisolone taper from 5m...

sagegreen

•3 years ago

7 Replies

Adrenal Insufficiency

I made mistakes all my life but at 83 they seem to occur more often I meant to write Adrenal and not Renal Insuffiency in the post below

I made mistakes all my life but at 83 they seem to occur more often I meant to w...

VicSat

•3 years ago

6 Replies

Omeprazole/Lansoprazole

Hi, can anyone give me some advice please? I had been taking 30mg Lansoprazole since January, but it was causing terrible diarrhoea 3 or 4 times a day. This...

Hi, can anyone give me some advice please? I had been taking 30mg Lansoprazole s...

Yealink

•3 years ago

48 Replies

Vaccine &Immunity

I signed up for the C-19 Zoe study which collects daily data on health of respondents and also provides regular updates on cases in your area along with Free...

I signed up for the C-19 Zoe study which collects daily data on health of respon...

LJhome

•3 years ago

3 Replies

Enlarged red blood cells.

Has anyone had any experience with enlarged red blood cells showing up in Haematology results? This is new to me and am wondering whether this issue is...

Has anyone had any experience with enlarged red blood cells showing up in Haemat...

AncientMariner

•3 years ago

9 Replies

Piriformis Syndrome

Hi everyone I was diagnosed with PMR in March 2020, started on 15 mg. Reduced by 1mg each month, had to return to 10 mg in January 2021. Decreasing slowly...

Hi everyone I was diagnosed with PMR in March 2020, started on 15 mg. Reduced...

Tinasleepyhead

•3 years ago

20 Replies

Sciatica

Hi, Long time not writing.Maybe a stupid question , but here goes anyway. Was a terrible sufferer many years back with Sciatica. Got PMR Sept 2018......

Hi, Long time not writing.Maybe a stupid question , but here goes anyway. Was a ...

Stifffingers

•3 years ago

8 Replies

Pred Spread

Can anyone point me towards any sensible articles on Pred Spread. Whilst I have reduced my BMI to 27 I do seem to have more fat on my tummy and love handles...

Can anyone point me towards any sensible articles on Pred Spread. Whilst I have ...

HamishPMR

•3 years ago

4 Replies

Dilemma

I'm not sure what to do next I've managed so far after a rollercoaster of preds to get down to 5mg from a starting dose of 20mg which began in Dec 2019 (14...

I'm not sure what to do next I've managed so far after a rollercoaster of preds...

Leepeelee

•3 years ago

9 Replies

Advice please?

Hi friends - thank you all for being here and being so generous with your advice and support. I'm not expert enough to give any information or suggestions to...

Hi friends - thank you all for being here and being so generous with your advice...

Joannarosa

•3 years ago

15 Replies

Jaw pain?

Hi all, have not felt well for about a wk now but in last few hrs I think I might have pain when eating, well just as I have 1st mouthful then nothing after...

Hi all, have not felt well for about a wk now but in last few hrs I think I migh...

Hidden

•3 years ago

6 Replies

Leg pain

Diagnosed in November2020 , now on 6mg. Over the lasts 2 weeks if I sit on a hard chair after a few minutes I have pain in the backs of my thighs. Does anyone...

Diagnosed in November2020 , now on 6mg. Over the lasts 2 weeks if I sit on a har...

Marigold3

•3 years ago

4 Replies

Flare, hospital increase 12.5 - 15 - 20 now 30?

I had to contact Hospital again on Monday as the increase in Pred to 20mg was still not doing the trick. A lovely Registrar called me back within 20 minutes...

I had to contact Hospital again on Monday as the increase in Pred to 20mg was st...

HappyDiamonds

•3 years ago

8 Replies

COVID-19: New study to examine vaccine responses in patients with impaired immune systems

https://news.sky.com/story/covid-19-new-study-to-examine-vaccine-responses-in-patients-with-impaired-immune-systems-12233737 Someone flagged this up on the...

https://news.sky.com/story/covid-19-new-study-to-examine-vaccine-responses-in-pa...

PMRpro

Ambassador•3 years ago

17 Replies

Positive outcome

Had a telephone consultation with my rumy on Monday inflammation markers down enough to start reducing steroids 5mg per week looks like the Tocilìzumab is...

Had a telephone consultation with my rumy on Monday inflammation markers down e...

Rosh99

•3 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2021

Prednisone

CBD oil

Exhaustion

New pmr diagnosis

Testing negative

No news is Good News

Stopping prednisolone before blood test

Update on my previous DEXA post

Anxiety

Determined

COVID Vaccine question

Warm face

God bless the Conquest (follow up)

Latest list of GCA symptoms

GCA and sore throat

Very late stage GCA flare?

Adrenal Insufficiency

Omeprazole/Lansoprazole

Vaccine &Immunity

Enlarged red blood cells.

Piriformis Syndrome

Sciatica

Pred Spread

Dilemma

Advice please?

Jaw pain?

Leg pain

Flare, hospital increase 12.5 - 15 - 20 now 30?

COVID-19: New study to examine vaccine responses in patients with impaired immune systems

Positive outcome

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