New, if reluctant, exclusive club member - PMRGCAuk

PMRGCAuk

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New, if reluctant, exclusive club member

Frewen1 profile image
20 Replies

Hello everyone,

Just joining today, after diagnosis of GCA in early August. A condition I’d never heard of, but I now realise is directly connected to the Polymyalgia Rheumatica my father had 30 years ago.

Thanks already for the Kate Gilbert recommendation.

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Frewen1 profile image
Frewen1
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20 Replies
alvertta profile image
alvertta

Welcome. This site will be very helpful to you.

PMRpro profile image
PMRproAmbassador

Eeeeh - nowt exclusive about this club! ;) But all comers are welcome :)

tangocharlie profile image
tangocharlie in reply to PMRpro

ha ha you're right they'll let anybody in. Not even any dress code

PMRpro profile image
PMRproAmbassador in reply to tangocharlie

Now then - we did reject the person who wanted to arrive in his budgy smugglers ...

tangocharlie profile image
tangocharlie in reply to PMRpro

Was his name Boris?

PMRpro profile image
PMRproAmbassador in reply to tangocharlie

We didn't wait to find out ...

tangocharlie profile image
tangocharlie in reply to PMRpro

:) :) :)

123-go profile image
123-go in reply to tangocharlie

Perish the thought!!!!!!

Lookingforideas profile image
Lookingforideas in reply to PMRpro

😂😂😂

Estellemac profile image
Estellemac in reply to tangocharlie

Who wears clothes these days?Its just covering the visible bits up for Zoom init?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi, and welcome,

this might help as well - healthunlocked.com/pmrgcauk...

tangocharlie profile image
tangocharlie

Do you have Viking genes?

Frewen1 profile image
Frewen1

Not significantly, I don't think... French back in 1066 on father's side

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Frewen1

Bit iffy then! 😳 😂😂

fmkkm profile image
fmkkm in reply to Frewen1

They say those Vikings were pretty prolific!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to fmkkm

Certainly were- as most of us can attest to!

diana1998 profile image
diana1998

Her book really helped me! 👍

keeptalking profile image
keeptalking

Welcome. Glad you found us and I’m sure you’ll learn much from others experiencing similar problems. So keep posting.

Luciejc profile image
Luciejc

Welcome! You will get much support, guidance and true understanding of what it's like to have this diagnosis on this forum. I was diagnosed 9/19 and am so grateful to all here who have helped me this past year. It's not an easy road but knowing you are not alone really is a blessing. Good luck and looking forward to sharing with you. Jean

Frewen1 profile image
Frewen1 in reply to Luciejc

Thanks so much, it’s very kind of people to respond. Of course what you want is the magic wand, (no weak joints, moon face etc) - it’s getting one’s head round the fact that, rather like Sars Covid, one’s kind of stuck with it!

Karen

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