Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for May 2019

Reducing from 1mg prednisilone

Hi, I've been on prednisilone for 8 years, starting at 60mg, I'm down to 1 mg now. How do I reduce from 1 mg? Do I just halve it, then quarter or just stop...

Hi, I've been on prednisilone for 8 years, starting at 60mg, I'm down to 1 mg no...

heli13

•5 years ago

13 Replies

Can you explain the difference between PMR pain and withdrawal symptoms?

I siffer from pain but I don’t know which sort of pain. Have you experienced withdrawal symptoms and can tell me about how you differ that pain from PMR...

I siffer from pain but I don’t know which sort of pain. Have you experienced w...

Pirnilla

•5 years ago

7 Replies

Anyone familiar with this study?

...it seems to turn a lot of what we think we know on its head: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5098760/

...it seems to turn a lot of what we think we know on its head: https://www.ncb...

Devedaaee

•5 years ago

47 Replies

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Coated/uncoated advice

Have been on 15mg Prednisolone for past 5 weeks - firstly uncoated with Omeprazole then because of problems with the PPI switched to coated. Because of delayed...

Have been on 15mg Prednisolone for past 5 weeks - firstly uncoated with Omeprazo...

jaycee444

•5 years ago

7 Replies

Coated tablets

I was just wanting to know about the coated tablets because I take this medication at night and if something were to happen to it I wouldn't be able to breathe...

I was just wanting to know about the coated tablets because I take this medicati...

Kaybord

•5 years ago

11 Replies

I was just wondering if anyone knew how long does it take for a coated tablet to get into your bloodstreamI know it takes about 30 minutes f

K a b o r d

Kaybord

•5 years ago

8 Replies

How good am I supposed to feel on prednisone

I have been on 10 mg of prednisone for 2 weeks. I certainly feel much, much better. The pain is gone from the hips and thighs, collarbone, and much of my...

I have been on 10 mg of prednisone for 2 weeks. I certainly feel much, much bett...

Navion

•5 years ago

30 Replies

Sedimentation number

After three months I had blood work done to see Rhemy next week. I have reduced from 11 to 9mg of pred since seeing him. My last sed rate was 2 and this one...

After three months I had blood work done to see Rhemy next week. I have reduced ...

Robinsnest72

•5 years ago

18 Replies

“Polymyalgia Rheumatic vs late-onset Rheumatoid Arthritis”

https://academic.oup.com/rheumatology/article/48/2/93/1788833

daworm

•5 years ago

12 Replies

Hip impingement

I posted a month or so ago about groin pain. It then started to include hip area. After a short pred increase with no relief, I saw GP. GP thought bursitis...

I posted a month or so ago about groin pain. It then started to include hip area...

bunnymom

•5 years ago

38 Replies

Do you exercise?

Hi folks For me it is Zumba Gold the low impact, low intensity version. I think keeping moving for as long as you can has to have lots of benefits. It also...

Hi folks For me it is Zumba Gold the low impact, low intensity version. I think...

keepfitdoll

•5 years ago

95 Replies

Raising money for PMRGCAuk tomorrow!

Only one more sleep until some friends and I do The 5k Colour Obstacle Rush at Windsor Race Course. If anyone would like to donate to a cause very close to all...

Only one more sleep until some friends and I do The 5k Colour Obstacle Rush at W...

Janicecm

•5 years ago

2 Replies

Sending a Reply

I've been on the forum for over four years with no problems sending posts and writing replies. Now, all of sudden I find myself unable to send replies to...

I've been on the forum for over four years with no problems sending posts and wr...

Charlie1boy

•5 years ago

19 Replies

PMRGCA North East - July meeting

The next PMRGCA North East Support Group meeting is on Tuesday 16th July at 1.00pm - 3.30pm at St. Aidan’s Parish Hall, Front Street, Framwellgate Moor, Durham...

The next PMRGCA North East Support Group meeting is on Tuesday 16th July at 1.00...

Skinnyjonny

•5 years ago

6 Replies

Too much too soon’

I have had PMR/GCA for 3yrs starting at 60 mg prednisone. Year one, I couldn’t get up from a chair, year two, after 3xs weekly gym/swim visits and strict no...

I have had PMR/GCA for 3yrs starting at 60 mg prednisone. Year one, I couldn’t g...

Mgeorge

•5 years ago

26 Replies

A bit discouraged / pred dosing advice

I've had PMR for a year and five months now and rather than being able to taper I've had to increase my pred dose from 7.5mg to 10mg over this period. I read...

I've had PMR for a year and five months now and rather than being able to taper ...

Ozark

•5 years ago

23 Replies

Membership

I’m a member and joined some time last year - will I get a prompt/reminder when year is up? Or is there another online way I can check please?

I’m a member and joined some time last year - will I get a prompt/reminder when ...

Pongo13

•5 years ago

3 Replies

Delightful hospital experience at Endocrinology

Hi everyone, this morning I was lucky to see a fabulous Endocrinologist. He was a very charming and excitable Greek gentleman who had to keep standing up to...

Hi everyone, this morning I was lucky to see a fabulous Endocrinologist. He was...

Hellyowl

•5 years ago

30 Replies

Finishing Prednisone

Hi All, I haven’t posted on here for a long while. I was put on 30mg Prednisone May 2017, I have tapered down 1mg a month as advised with hardly any problems...

Hi All, I haven’t posted on here for a long while. I was put on 30mg Prednisone ...

misschris

•5 years ago

61 Replies

Advice about meds for osteoporisis

I have developed 3 stress fractures in a little over a years time. Like many here I am very afraid of the bones meds that are offered. I told myself I would...

I have developed 3 stress fractures in a little over a years time. Like many h...

Linny3

•5 years ago

24 Replies

Still doing okay

Hi everyone I wanted to update on my progress and just think it’s important when you get off steriods not to think you’ve reached the end. I am enjoying a...

Hi everyone I wanted to update on my progress and just think it’s important when...

JulieR2

•5 years ago

13 Replies

Looking for advice

I have been slowly reducing my Rayos and doing pretty good. I am down to 12mg from 15mg from December. 2 nights ago I woke in incredible pain in my hip, knee...

I have been slowly reducing my Rayos and doing pretty good. I am down to 12mg fr...

Linny3

•5 years ago

8 Replies

Hip surgery

Anyone had anterior hip replacement and got hematoma as a result? 14 days now, entire leg including foot extremely swollen and painful. Ended up in ER, did...

Anyone had anterior hip replacement and got hematoma as a result? 14 days now, e...

casse

•5 years ago

9 Replies

Feels like it's gone......... could that be?

So I was at 5mg. and now have dropped to 4.5 with NO side effects at all. And I suddenly feel differently. I feel like myself again. could it be? how fast...

So I was at 5mg. and now have dropped to 4.5 with NO side effects at all. And I ...

yogabonnie

•5 years ago

19 Replies

Pred timing, hunger and insomnia

Hi I'm only 4 weeks into my Pred journey for PMR; 3 weeks at 15mg, now 8 days at 12.5mg. So far, almost all the previous symptoms of pain, stiffness etc are...

Hi I'm only 4 weeks into my Pred journey for PMR; 3 weeks at 15mg, now 8 days at...

Cross-stitcher

•5 years ago

21 Replies

is it coincidence or not

after haveing night shoulder pain with pmr for a long time. and reading about tumeric i thought i may aswell try it, and blow me down 5 days later...

after haveing night shoulder pain with pmr for a long time. and reading ab...

pollyg263

•5 years ago

14 Replies

PMR with low sed rate

I have had three different doctors for PMR, all with a different idea on Prednisone dosage and tapering. My most frustrating issue is that I have had near...

I have had three different doctors for PMR, all with a different idea on Predni...

fishingnut

•5 years ago

15 Replies

I'm new here

I am 61 and was diagnosed with PMR 3 months ago after changing my GP. I now realise I have suffered with this for at least 5 years . My previous GP put...

I am 61 and was diagnosed with PMR 3 months ago after changing my GP. I now real...

Blues1

•5 years ago

26 Replies

Dental work

Hi - I’m new here - have been putting off dental work for ages but my nieces wedding is coming up and I want my teeth to look good! I was diagnosed with GCA...

Hi - I’m new here - have been putting off dental work for ages but my nieces wed...

digby1

•5 years ago

12 Replies

How to finally get off steroids

I have been on steroids for GCA for nearly 5 years. After some ups and downs I have now been on 1 mg for about two months. I had a hip replacement 3 weeks...

I have been on steroids for GCA for nearly 5 years. After some ups and downs I ...

PenelopeVita-Finzi

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Reducing from 1mg prednisilone

Can you explain the difference between PMR pain and withdrawal symptoms?

Anyone familiar with this study?

Coated/uncoated advice

Coated tablets

I was just wondering if anyone knew how long does it take for a coated tablet to get into your bloodstreamI know it takes about 30 minutes f

How good am I supposed to feel on prednisone

Sedimentation number

“Polymyalgia Rheumatic vs late-onset Rheumatoid Arthritis”

Hip impingement

Do you exercise?

Raising money for PMRGCAuk tomorrow!

Sending a Reply

PMRGCA North East - July meeting

Too much too soon’

A bit discouraged / pred dosing advice

Membership

Delightful hospital experience at Endocrinology

Finishing Prednisone

Advice about meds for osteoporisis

Still doing okay

Looking for advice

Hip surgery

Feels like it's gone......... could that be?

Pred timing, hunger and insomnia

is it coincidence or not

PMR with low sed rate

I'm new here

Dental work

How to finally get off steroids

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