I have developed 3 stress fractures in a little over a years time. Like many here I am very afraid of the bones meds that are offered. I told myself I would consider one of the drugs if I have another fracture . I was just diagnosed yesterday with another stress fracture in my foot. I know all the dangers and have read about the many bad experiences with these drugs.
I would like to hear from people who are taking a bone drug and are doing better than expected on them. I need a little positive reinforcement.
Thanks a lot
Written by
Linny3
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I took AA from the beginning without much problem other than the inconvenience of how we need to take them.
However, following breast cancer l was placed on Zolendronic Acid after Chemo as part of a new adjuvant therapy to try to prevent spread into my bones.
I have completed the course now One Infusion every Six Months for Three Years & have had no issues whatsoever ever.
After hearing and reading others experience with AA I would try and avoid that one, unless it was the only option which it is not. One of them you only take about twice a year, if I remember correctly.
National Osteoporosis website has all the information you need, theros.org.uk/
It lists all the alternative to AA and you can then choose which road you take, it is a personal decision as always as all of us a different, wonderful human beings.
Have you had a Dexa Scan and got the results...............you need to know if you need any at all and not 'just in case'.
I had a Dexa scans after six months and then either yearly or two yearly all the time I was on pred and high doses because I had GCA. Bones never moved.
If you do need it then yes, but there are yearly injections.
Some people are fine on them. My sister has been on alendronic acid for a while with no side effects. But you do need to see the dentist and have any work done before you start them. Do you know your t score by any chance?
OK. You do need to be even more proactive. Have you been on the Bone Health forum? There might be some people there who have been on AA or similar. HeronNS has been able to reverse less negative scores (hope that makes sense).
However go to the website, I put in the previous answer and look at them all, perhaps if you want to you could ask for the yearly one and then it won't be on your mind every week.
Thank you. I will do. I did ask if there were other options and was told no unless AA couldn’t be tolerated. I have an X-ray in a couple of weeks which I had to insist on to check my lower back and hips as they are painful and I’ll discuss further the treatment then
Broke pelvis skiing and 3 yrs later hip - with almost immediate pmr, but a long wait for diagnosis. Dexa scans and fact that neither accident was that impactful, led me to conclude I take AA. So far so good but of course it’s what it does long term - we don’t know. By then I expect I’ll be away with the fairies anyway.
A friend of mine has taken them for years with no ill effects and they have prevented Osteoporosis which is horrible. I’m on them at the moment and am fine. It does sound as if you are vulnerable to fractures and it shouldn’t be a problem to try them out. You can always stop them when you want to and we need extra protection while on Pred.
I have had PMR for three years, I hade a dexa scan 18 months ago and showed osteoporosis in lower back so have Been on AA ever since without problems xx good luck xx
I’ve been on AA for about two years with no problems. Started after Bone scan - 2.5 lower back. Had no problems apart from no being able to have a cuppa first thing have to wait half hour
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