Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for May 2019

Tapering Prednisone - symptoms

My rheumatologist put me on 15 mg for 2 months then has me tapering to 12.5 mg for 2 weeks then 10 mg for 6 weeks. I am on the 12.5 mg right now but I think...

My rheumatologist put me on 15 mg for 2 months then has me tapering to 12.5 mg f...

Ladyartist

•5 years ago

4 Replies

What's The Latest?

Have heard that there is a new guide out to help towards tapering Preds?

Seagu11

•5 years ago

2 Replies

I have my life back

What a difference a week makes. This time last week I was in absolute agony and unable to move because of the pain from two inflamed bulging disks and a PMR...

What a difference a week makes. This time last week I was in absolute agony and...

Oxford8

•5 years ago

29 Replies

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Newly PMR Allendronic acid

Hi newly diagnosed PMR been on steroids about 10 days. I phoned in to give an update with my doctor who advised re preds, but also prescribed allendronic acid...

Hi newly diagnosed PMR been on steroids about 10 days. I phoned in to give an u...

Daisyfield

•5 years ago

52 Replies

nutrition?

Any suggestions for a lifetime vegetarian with gastroparesis? I try to adhere to the FODMAP diet but am not as faithful as I should be. thanks! Diagnosed...

Any suggestions for a lifetime vegetarian with gastroparesis? I try to adhere t...

composition

•5 years ago

9 Replies

One of the most frightening scenarios with GCA

I'm wondering if anyone has experienced vision loss, gotten the 1000 mg of IV prednisone I've read about , and willing to tell the tale?

I'm wondering if anyone has experienced vision loss, gotten the 1000 mg of IV pr...

Blurry62

•5 years ago

15 Replies

Update re / hospital / PET scan, has any one else been in this situation.... and what would you do

hello lovely people I posted an up date 2 weeks ago , re being sent home from 10 days in hospital, having my Preds reduced from 25mg to 15mg , had scans....

hello lovely people I posted an up date 2 weeks ago , re being sent home from 1...

mad-country-lover

•5 years ago

21 Replies

Am I being stupid?

Your expert opinions would be appreciated. I started 15mg pred in Dec 2016 after being diagnosed with PMR. I had Dexascan in Feb 2017 which showed Neck of...

Your expert opinions would be appreciated. I started 15mg pred in Dec 2016 afte...

Urtica

•5 years ago

42 Replies

Holiday

I was diagnosed just two years ago with PMR and possibly GCA. I won't bore you all with the story but after many months on a very high dose of Pred I have...

I was diagnosed just two years ago with PMR and possibly GCA. I won't bore you ...

Janann25

•5 years ago

27 Replies

Pain killers

Do any of you get a guilty feeling when you are on long term pain killers? Practically everywhere you read "do not take for more than 10 days". How does that...

Do any of you get a guilty feeling when you are on long term pain killers? Prac...

Constance13

•5 years ago

44 Replies

Polymiagle Hoping to be free of Very soon

I was diagnosed with polymyalgia May 2017 my 73 birthday. I am very active and at first thought I had been over doing it. I started on 15 mg. of prednisone a...

I was diagnosed with polymyalgia May 2017 my 73 birthday. I am very active and ...

Polymiagle1943

•5 years ago

8 Replies

I think it could be..........

Last week I my heart started THUMPING - i was light headed - I was reliving the menopause with hot flushes - my sleeping which hasn't been good for yonks -...

Last week I my heart started THUMPING - i was light headed - I was reliving the ...

MamaBeagle

•5 years ago

17 Replies

PMR AND GCA??

I had a very high CRP result last December. Consequently I was started on 40 mags of pred. Doctor explained that I didn’t need a biopsy for GCA as often the...

I had a very high CRP result last December. Consequently I was started on 40 mag...

Wayfair

•5 years ago

9 Replies

Advice please

Have slowly reduced over the past year from 20mg to 5.5. It's been almost a fortnight since the last .5 reduction and I'm finding muscle soreness and bones on...

Have slowly reduced over the past year from 20mg to 5.5. It's been almost a for...

Hidden

•5 years ago

18 Replies

Could the be a symptom of GCA?

I was diagnosed with GCA in March this year. Apart from the usual symptoms I have a symptom which I first noticed in January and I wonder if anyone else has...

I was diagnosed with GCA in March this year. Apart from the usual symptoms I hav...

Omanain

•5 years ago

25 Replies

PMR Stages

Hello, have had PMR for 1 year and 10 months. Have been keeping active with moderate exercise and stretching. My shoulders are fine now. But my upper...

Hello, have had PMR for 1 year and 10 months. Have been keeping active with mod...

NOTL

•5 years ago

11 Replies

shingles

Hello all I am back i have had a bad time ,my back was bad and i had shingles .Istill have pain .has any one had them ,i do not think it is normal stillto have...

Hello all I am back i have had a bad time ,my back was bad and i had shingles .I...

ballyboy

•5 years ago

11 Replies

Any idea what this could be?

My husband has broken out with these all over, has anyone any idea as to what is going on?

My husband has broken out with these all over, has anyone any idea as to what is...

JanboC

•5 years ago

51 Replies

Any advice for first Rheumatology Appointment please?

It is a little over 4 weeks ago that the panic button was hit and I was suspected of having GCA - whacked on 60 prednisolone and that was swiftly followed by...

It is a little over 4 weeks ago that the panic button was hit and I was suspecte...

Pippah45

•5 years ago

11 Replies

Biopsy follow up

I had no idea the biopsy scar would be so long. I got the dressing off with some difficulty as it was all stuck to my hair. It was only by soaking it that I...

I had no idea the biopsy scar would be so long. I got the dressing off with some...

polymy

•5 years ago

9 Replies

Leflunomide not working

Hi I was formally diagnosed with RA about a year ago and started treatment with Plaquenil which resulted in a rash so switched to Humira with only fair...

Hi I was formally diagnosed with RA about a year ago and started treatment with ...

yogastarter

•5 years ago

1 Reply

Inflammatory arthritis

Hi all wrote a little while ago about my stiff pip joints, Rheumy had x-rays done he was sure it was OA but no sign of OA on x-rays, Rheumy wrote just to carry...

Hi all wrote a little while ago about my stiff pip joints, Rheumy had x-rays don...

valrene

•5 years ago

10 Replies

Grass cutting

What a chore, but no more for me😃Bought myself a robomow and it’s the best thing I’ve bought in years. No more carrying the lawnmower too and fro from the...

What a chore, but no more for me😃Bought myself a robomow and it’s the best thin...

Griggser

•5 years ago

17 Replies

leg pain

PMR hit my legs ffirst-- behind my knees and down the calf. I am on 5 mg. and my legs still feel different. Have some neuropathy and psoriasis on my lower...

PMR hit my legs ffirst-- behind my knees and down the calf. I am on 5 mg. and ...

stonecreek

•5 years ago

18 Replies

MIXING PRED WITH IBUPROFEN AND OMEPRASOLE

Saw my GP this morning for advice on knee flare up 11 weeks after total knee replacement. Advised I should go back to taking ibuprofen as that works well for...

Saw my GP this morning for advice on knee flare up 11 weeks after total knee rep...

Mary63

•5 years ago

19 Replies

Thanks Pred, pain gone but so hungry! I hate my moon face and the extra 20lbs...

I’m new here so little nervous posting. After 4 months diagnosed with PMR with relief that at least some help with the pain and fatigue . Started off at 15...

I’m new here so little nervous posting. After 4 months diagnosed with PMR wit...

Enfin

•5 years ago

23 Replies

How long is this journey?

I am 66. I was diagnosed in January 2013, prescribed 20mg Pred and advised by GP it would last about 2-3 years. It’s now more than 6 years. I’ve learned to...

I am 66. I was diagnosed in January 2013, prescribed 20mg Pred and advised by GP...

Janet57

•5 years ago

11 Replies

Turning up again...now what?

As I told you I have had to turn up again from 5/3.75 mgs because of pain in my lower back and stiffness in the right side of my neck. I have now tried 8.75...

As I told you I have had to turn up again from 5/3.75 mgs because of pain in my ...

Pirnilla

•5 years ago

5 Replies

Was told by the rummy I also have sarcoidosis.

I have no lung issues. This is crazy I waiting to speak with him in person! how does one know for sure they have sarcoidosis ???what is the test !!! I do...

I have no lung issues. This is crazy I waiting to speak with him in person! ho...

Mjhollywood1

•5 years ago

7 Replies

Increased heart rate from Pred??

I am having problems with increased heart rate with any exertion. I did a stress echo test this week and am waiting for results. I reached my target heart...

I am having problems with increased heart rate with any exertion. I did a stres...

Duffer55

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Tapering Prednisone - symptoms

What's The Latest?

I have my life back

Newly PMR Allendronic acid

nutrition?

One of the most frightening scenarios with GCA

Update re / hospital / PET scan, has any one else been in this situation.... and what would you do

Am I being stupid?

Holiday

Pain killers

Polymiagle Hoping to be free of Very soon

I think it could be..........

PMR AND GCA??

Advice please

Could the be a symptom of GCA?

PMR Stages

shingles

Any idea what this could be?

Any advice for first Rheumatology Appointment please?

Biopsy follow up

Leflunomide not working

Inflammatory arthritis

Grass cutting

leg pain

MIXING PRED WITH IBUPROFEN AND OMEPRASOLE

Thanks Pred, pain gone but so hungry! I hate my moon face and the extra 20lbs...

How long is this journey?

Turning up again...now what?

Was told by the rummy I also have sarcoidosis.

Increased heart rate from Pred??

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