Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for May 2019

Reduction of Predisolone after a flare up.

Hello. Just wondering when I have a flare and up the dose by double as instructed by my Rheumatologist ( with illness not pain to support the system ) then...

Hello. Just wondering when I have a flare and up the dose by double as instructe...

Suffolklady

•5 years ago

33 Replies

Foot issues with PMR/GCA?

I have ha PMR/GCA at least a decade, probably longer. not diagnosed until 2017. 7 trips to Mayo clinic in Rochester, MN, US. For years I have had terrible...

I have ha PMR/GCA at least a decade, probably longer. not diagnosed until 2017. ...

phebamom

•5 years ago

22 Replies

Smile - I did it at last!!!

At last I managed to nominate the charity on my Amazon account! I have tried previously but in vain. I didn't realise it required the whole name and not just...

At last I managed to nominate the charity on my Amazon account! I have tried pre...

MamaBeagle

•5 years ago

39 Replies

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Other things have made

Other things

Emerlad_70

•5 years ago

9 Replies

timing of 20 mg. prednisone?

Dr. said take it twice a day [new rheumatologist] but previously to this flare up i was taking 20 mg. in the a.m. Is there any difference at all? I keep...

Dr. said take it twice a day [new rheumatologist] but previously to this flare u...

composition

•5 years ago

4 Replies

Hobby I can do

Can’t do much at the moment due to exhaustion so I thought I would sit quietly and see

Can’t do much at the moment due to exhaustion so I thought I would sit quietly ...

Emerlad_70

•5 years ago

16 Replies

Artificially sweetened beverages

Some interesting research into quantity of ASDs and stroke/cardiovascular risks might be worth considering for us?...

Some interesting research into quantity of ASDs and stroke/cardiovascular risks ...

Soraya_PMR

•5 years ago

18 Replies

We did it!!

Well we did it - we completed the Colour Obstacle Rush in Windsor on Saturday!! I managed 12 of the 20 obstacles so feel very proud of myself. Total rest...

Well we did it - we completed the Colour Obstacle Rush in Windsor on Saturday!! ...

Janicecm

•5 years ago

11 Replies

Bit shaky after first taking pred

Hi Diagnosed in Jan 19. Currently on 10mg of prednisilone and doing ok. A little achy first thing until I’ve taken pred. However, within an hour of taking it,...

Hi Diagnosed in Jan 19. Currently on 10mg of prednisilone and doing ok. A little...

Rosina1871

•5 years ago

24 Replies

Adrenal glands

How long can a person go on without their adrenal.glands working?

Invention

•5 years ago

17 Replies

Steroid withdrawal

I stopped using my Breo inhaler, fluticasone furoate 200 mcg and vilanterol 25 mcg inhalation powder. Some people try to tell me it's not possible to be in...

I stopped using my Breo inhaler, fluticasone furoate 200 mcg and vilanterol 25 m...

Invention

•5 years ago

19 Replies

A brief tapering question

When does one know when it is time to start tapering? Should one be "completely" free of pain and stiffness, or can one still have some slight degree of...

When does one know when it is time to start tapering? Should one be "completely"...

Ozark

•5 years ago

10 Replies

Sense of Healing and Tapering

I'm on 15 mg of prednisone after recently been diagnosed with PMR. I tapered from 20 mg after about 3 weeks. I take the prednisone about 7 every morning and...

I'm on 15 mg of prednisone after recently been diagnosed with PMR. I tapered fro...

Hidden

•5 years ago

24 Replies

Leflunomide or methotrexate

I’ll be seeing my rheumatologist in a couple of weeks and as usual like to go prepared. I’ve been on hydroxychloroquine since end of November 2018 and then...

I’ll be seeing my rheumatologist in a couple of weeks and as usual like to go pr...

Lochy

•5 years ago

1 Reply

Moving house. 74yrs old and feeling it.

Feeling a little better at the moment, last Sunday I tried to pull a weed out but it was deep rooted and snapped, the pain at the top of my arm was...

Feeling a little better at the moment, last Sunday I tried to pull a weed out bu...

Whippetygirl

•5 years ago

9 Replies

Tendon issues

I tore my calf muscle over twenty years ago, but I had a bout of very painful tendinitis two years ago, doctor said it would go in a few months, but it lasted...

I tore my calf muscle over twenty years ago, but I had a bout of very painful te...

Wayfair

•5 years ago

9 Replies

Constipation

I've been as regular as clockwork, daily, for as long as I can remember. But now it's becoming difficult and on some days non-existent. Could it be pred? I've...

I've been as regular as clockwork, daily, for as long as I can remember. But now...

Roy46

•5 years ago

19 Replies

Additional autoimmune disease now.

After 30 odd years with fibromyalgia I started developing more intense symptoms and lost 1/4 of my body weight. At that time was diagnosed with GCA /PMR ....

After 30 odd years with fibromyalgia I started developing more intense symptoms ...

Aleish

•5 years ago

11 Replies

Payment

I need to pay registration fee £15sorry

Pegpooch

•5 years ago

6 Replies

How to avoid stress when moving!!

DONT DO IT!! I can seriously say moving house with pmr is not to be recommended. I thought I had made it stress free by arranging the movers do all the...

DONT DO IT!! I can seriously say moving house with pmr is not to be recommended....

Yellowbluebell

•5 years ago

45 Replies

Osteoporosis/PMR treatment

Good morning all, I wondered if you can give me some guidance please. I have PMR and have been taking Pred for 10 weeks now, started on 20mg, tapered to 17.5...

Good morning all, I wondered if you can give me some guidance please. I have PMR...

Birdyloo

•5 years ago

11 Replies

New GCA diagnosis & overwhelmed

Official diagnosis of gca 1 week ago. Tab negative, but sed & crp extremely high. Given injection of prednisone plus 4 days of 40mg 3 weeks ago as a trial...

Official diagnosis of gca 1 week ago. Tab negative, but sed & crp extremely hi...

Spanky2019

•5 years ago

12 Replies

Woodbridge, Suffolk - Tea and chat

Come and join us next week on Thursday 23rd May at 2.00pm Dobbies Garden Centre Grundisburgh Road Woodbridge Suffolk IP13 6HX

Come and join us next week on Thursday 23rd May at 2.00pm Dobbies Garden Centre ...

Soosie56

•5 years ago

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Why so tired???

I was quickly "diagnosed" with PMR 7 mths ago, still waiting for a 2nd opinion. Made it down to 2.5 mg of prednisone and then wham pain just like 6 mths...

I was quickly "diagnosed" with PMR 7 mths ago, still waiting for a 2nd opinion. ...

Musiclady18

•5 years ago

25 Replies

Memory impairment?

I have been diagnosed for about 6 moths. On 4g Pred. Last few weeks really noticed memory probs. Should I be worried. Is it the PMR or pred?

I have been diagnosed for about 6 moths. On 4g Pred. Last few weeks really not...

Marjorie237

•5 years ago

35 Replies

True

Just how I feel

Emerlad_70

•5 years ago

7 Replies

60mg Pred and outbreak of Herpes Simplex

Herpes simplex break out on buttocks after starting 60mg pred for GCA I have had PMR or over a year but wanted to do it ‘my way’. Ibuprofen 200mg twice daily....

Herpes simplex break out on buttocks after starting 60mg pred for GCA I have had...

Umufu

•5 years ago

6 Replies

GCA and Actemra.

Hello all, I have been on Actemra (tocilizumab) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one...

Hello all, I have been on Actemra (tocilizumab) for GCA for 1 yr 9 months. I was...

christine2715

•5 years ago

17 Replies

Best timing for pred dose

I am currently on 12.5mg uncoated pred for PMR, to be taken (according to my GP) in the morning with food, i.e. normally between 8.00 and 9.00 am (I am fully...

I am currently on 12.5mg uncoated pred for PMR, to be taken (according to my GP)...

Cross-stitcher

•5 years ago

11 Replies

Sending a Reply.

Just to thank all of you who replied to my post on this subject yesterday. All appears to be ok again now, yet I did nothing, so somebody must have done...

Just to thank all of you who replied to my post on this subject yesterday. All a...

Charlie1boy

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Reduction of Predisolone after a flare up.

Foot issues with PMR/GCA?

Smile - I did it at last!!!

Other things have made

timing of 20 mg. prednisone?

Hobby I can do

Artificially sweetened beverages

We did it!!

Bit shaky after first taking pred

Adrenal glands

Steroid withdrawal

A brief tapering question

Sense of Healing and Tapering

Leflunomide or methotrexate

Moving house. 74yrs old and feeling it.

Tendon issues

Constipation

Additional autoimmune disease now.

Payment

How to avoid stress when moving!!

Osteoporosis/PMR treatment

New GCA diagnosis & overwhelmed

Woodbridge, Suffolk - Tea and chat

Why so tired???

Memory impairment?

True

60mg Pred and outbreak of Herpes Simplex

GCA and Actemra.

Best timing for pred dose

Sending a Reply.

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