Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for July 2018

Dizzy

Hi Ladies...I have just reduced steroids from 7.5mgs to 7mgs in the last week. Now I have started to go dizzy with some nausea on rising from chair and bed....

Hi Ladies...I have just reduced steroids from 7.5mgs to 7mgs in the last week. N...

Xanthe12345

•6 years ago

8 Replies

Second opinion might be worth the fight

I've just had a second opinion after lodging a complaint about the first Rheumatologist and the inaccurate report he wrote. I've struggled with GPs who clearly...

I've just had a second opinion after lodging a complaint about the first Rheumat...

Singr

•6 years ago

5 Replies

PREDNISOLONE?

In sorting out my pills for the week, I found some larger, round, white pills in with my 5 mgs Prednisolone tablets. I believe them to be left over 10 mg...

In sorting out my pills for the week, I found some larger, round, white pills in...

Hidden

•6 years ago

54 Replies

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PMR or Not

Its a long time since i have written, i was dx with possible PMR a year ago then saw Rheumatologist said no its frozen shoulder . I managed to get off the Pred...

Its a long time since i have written, i was dx with possible PMR a year ago then...

am64

•6 years ago

42 Replies

Feeling pleased

IhVe excelled myself today. Cut bushes at the front (thank you Jane for the thought), cut 14 bushes at the back garden, weeded, and gone in the pond with...

IhVe excelled myself today. Cut bushes at the front (thank you Jane for the thou...

morrison

•6 years ago

15 Replies

We deserve fun!

I went to my nephews wedding yesterday, a couple of hours away from here. I cried during the ceremony (of course...) and then laughed and drank the night away...

I went to my nephews wedding yesterday, a couple of hours away from here. I crie...

Mikb

•6 years ago

9 Replies

Here's to you DL.. OP Tomorrow....

Wishing you, dear DorsetLady, all the best for your knee op, tomorrow..16 July.May all go exceedingly well, and that you would soon be pain-free. mUCH LOVE.XX

Wishing you, dear DorsetLady, all the best for your knee op, tomorrow..16 July.M...

karools16

•6 years ago

73 Replies

Tapering and lab results - do the stars always align?

Responding to another post earlier I mentioned I’m down to 5 (ready to go lower as it’s been a month with no issues) and my lab results from this week showed...

Responding to another post earlier I mentioned I’m down to 5 (ready to go lower ...

Nitrobunny

•6 years ago

13 Replies

Fed up

Fed up and totally confused have been on Prednisone now for 3 years started at 30mg been up and down after flare ups now at 10 mg after slow tapering but...

Fed up and totally confused have been on Prednisone now for 3 years started at 3...

Lynylou57

•6 years ago

45 Replies

"A little bit of what you fancy, does you good"!

As my dear old Gran used to say; mainly when she had a glass of milk stout in her hand.;-) When I could eventually eat solid foods I had cravings for...

As my dear old Gran used to say; mainly when she had a glass of milk stout in he...

Primarose

•6 years ago

2 Replies

Hip/Knee replacements and polymyalgia

A retired doctor proposed to me that my double knee replacements had put too much strain on my immune system which could have contributed to me having...

A retired doctor proposed to me that my double knee replacements had put too muc...

Suedeshayes

•6 years ago

18 Replies

Crazy Hot Weather Beaned Out Already!

Can it be 1976 again!! Minister for water required! Never mind Brexit & all the B- locks! Almost runner beaned out here already! Haven't tried them with...

Can it be 1976 again!! Minister for water required! Never mind Brexit & all the ...

Hidden

•6 years ago

18 Replies

Electric wheelchair

Hi there forum ! Can anyone recommend a light weight wheelchair that can go into my car boot I want an electric one please! Lol

Hi there forum ! Can anyone recommend a light weight wheelchair that can go into...

Jamie345

•6 years ago

7 Replies

PMR GCA FIBRO

Extreme fatigue is my worse symptom. I was feeling so horrible. I tried acupuncture, meditation/relaxation/deep diaphragmatic breathing , and stretching using...

Extreme fatigue is my worse symptom. I was feeling so horrible. I tried acupunct...

Dream21

•6 years ago

22 Replies

The Lighter Side: Ohhh.. The PMR / Pred Tapering Paradox. More or Less - When, Why, and How. Answers on a Postcard Please..? ;-)

Greetings to all Polymylingerers and GCA Survivors worldwide. As usual (for me!), quite a long Post: but I hope it stimulates some interest and discussion...

Greetings to all Polymylingerers and GCA Survivors worldwide. As usual (for me...

markbenjamin57

•6 years ago

96 Replies

TAPER

This DSNS seems so perfect and has been working well, however - I’m anticipating future tapers and I like splitting the dose so it has gotten very complicated!...

This DSNS seems so perfect and has been working well, however - I’m anticipating...

ConventCassie

•6 years ago

8 Replies

Holiday Trauma

Hi everyone, I thought I would let you know about my recent problems when travelling on holiday with my husband. We were travelling by car from our home in...

Hi everyone, I thought I would let you know about my recent problems when travel...

PatB1948

•6 years ago

25 Replies

PMR and GCA what does it mean?

What does PMR and GCA stand for? Thank you

Badsideeffects

•6 years ago

3 Replies

Is this what it feels like?

Yesterday No 1 son helped No 2 son move house, including a large american style fridge freezer. These things are HEAVY! When he got home he was complaining...

Yesterday No 1 son helped No 2 son move house, including a large american style ...

scats

•6 years ago

8 Replies

WENT TO SEE MY RHEUMATOLOGIST yesterday

went to see my consultant seems the same evey time . says im doing okay need to get off the steriods (i'm taking them for fun)! I managed to get down to 3.5...

went to see my consultant seems the same evey time . says im doing okay need to ...

Flrchrs

•6 years ago

1 Reply

Never again!

On Thursday we went to visit our daughter in Kent. She lives on an estate and her house is next to a steep ‘cliff’ covered in brambles and loads of dense...

On Thursday we went to visit our daughter in Kent. She lives on an estate and h...

Suet3942

•6 years ago

33 Replies

Good news bad news

The good news: my 3 yr PMR journey continues smooth after 2 years of hiccups, and I have started a DSNS reduction of Prednisolone to 3.5 from 4 mg per day....

The good news: my 3 yr PMR journey continues smooth after 2 years of hiccups, an...

Valnvaughan

•6 years ago

9 Replies

Stowmarket gathering

We have a get-together at The Osier Cafe, Museum of East Anglian Life, Stowmarket, on Thursday, 19th July. All are welcome.

We have a get-together at The Osier Cafe, Museum of East Anglian Life, Stowmarke...

Vanner460

•6 years ago

4 Replies

Reducing Prednisolone

I have now been on Pred for PMR for 5 years. I managed to get down to less than 1mg a day when PMR crept back - so was back on 15 mgs - 3 years ago. Since...

I have now been on Pred for PMR for 5 years. I managed to get down to less than...

Jenden

•6 years ago

3 Replies

Another question for you lovely lot!!

When I first read the side effects of Prednisolone one of my many concerns was Glaucoma. I thought, how would I know if I had it. I made an appointment with...

When I first read the side effects of Prednisolone one of my many concerns was G...

Primarose

•6 years ago

2 Replies

What are flares?

What are flares like. I have just back from my holiday and on the last day or two I got the awful lower back muscle spasm in my right hip this time. It so...

What are flares like. I have just back from my holiday and on the last day or ...

Berylholley

•6 years ago

17 Replies

Hi

Hello everyone. I’m joining this community for support/advice/information because I’ve now been diagnosed by elimination with Temporal Arteritis. Current...

Hello everyone. I’m joining this community for support/advice/information becaus...

Hidden

•6 years ago

9 Replies

London Support Group Meeting

Due to issues at the library we can't meet on our normal day, which would have been Monday 23 July. So our meeting will now be on Thursday 2 August at Artizan...

Due to issues at the library we can't meet on our normal day, which would have b...

Green_girl

•6 years ago

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little sad news.........

Just a short and sad note to say that my friend's daughter has miscarried. She is 39 and her gp says she can still have a baby, but I know they must be...

Just a short and sad note to say that my friend's daughter has miscarried. She i...

karools16

•6 years ago

26 Replies

Aneamia & Ferrous Sulphate

When I became aneamic,I was told to eat iron-rich foods and bloods will be tested again after a month. My own GP is on holiday and I saw a different one this...

When I became aneamic,I was told to eat iron-rich foods and bloods will be teste...

Carol-mc

•6 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Dizzy

Second opinion might be worth the fight

PREDNISOLONE?

PMR or Not

Feeling pleased

We deserve fun!

Here's to you DL.. OP Tomorrow....

Tapering and lab results - do the stars always align?

Fed up

"A little bit of what you fancy, does you good"!

Hip/Knee replacements and polymyalgia

Crazy Hot Weather Beaned Out Already!

Electric wheelchair

PMR GCA FIBRO

The Lighter Side: Ohhh.. The PMR / Pred Tapering Paradox. More or Less - When, Why, and How. Answers on a Postcard Please..? ;-)

TAPER

Holiday Trauma

PMR and GCA what does it mean?

Is this what it feels like?

WENT TO SEE MY RHEUMATOLOGIST yesterday

Never again!

Good news bad news

Stowmarket gathering

Reducing Prednisolone

Another question for you lovely lot!!

What are flares?

Hi

London Support Group Meeting

little sad news.........

Aneamia & Ferrous Sulphate

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