PMR GCA FIBRO: Extreme fatigue is my worse symptom... - PMRGCAuk

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PMR GCA FIBRO

Dream21
Dream21

Extreme fatigue is my worse symptom. I was feeling so horrible. I tried acupuncture, meditation/relaxation/deep diaphragmatic breathing , and stretching using 7 yoga stretches. It has helped with pain and given me a some more energy. I am retired and thought my stress was low, but doing this every morning I see how tight and tense my muscles are. I am teaching my muscles to relax more which helps. Stress is is a big trigger for me and increases my symptoms. I focus on keeping a relaxed state, keep my muscles stretched and relaxed and no longer multitask. Has anyone experienced similar symptoms? I went to swimming 3/4 miles 5 times a week to a short 20 minute walk once a week and some light errands. It has been a dramatic change in my lifestyle.

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PMRpro
PMRproAmbassador

Fatigue is the only thing I really have a problem with - stiffness and pain became such a factor in the 5 years I wasn't on pred that I regard them as a minimal inconvenience. But fatigue - when my brain just switches off and all I can do is lie down and sleep is my bete noire. A recent flirt with methotrexate resulted in me feeling worse than I ever have due to PMR - so that'll be a no then!!!!

But fatigue IS a primary factor in autoimmune disorders - though I do find that a bit of exercise helps a lot. We normally walk for about 1/2 hour each day and I do miss it when it isn't an option due to weather or OH not being up to it. I know I should go out on my own but the other bad aspect of PMR for me is the lack of motivation.

Fatigue was my biggest complaint after I was diagnosed and started on prednisone. Sleep didn’t even touch it. The fatigue for me, started lifting as I have tapered below 10 mg. I am currently on 6. Hopefully yours will respond the same.

PMRpro
PMRproAmbassador
in reply to Tinkermore1941

When I recently got down to 7mg the fatigue was awful - I was wading through treacle...

I always say to people there may be answers for pain and stiffness....but nothing can treat fatigue....or not that I know of!....My d-in-law has never quite "got" PMR....but has recently had the deathly fatigue due to severe lack of iron and Vit D....she has completely changed her attitude to me....saying it`s nothing compared to tiredness!!…….

Even the resting becomes boring....if it doesn't solve it....I sympathise with you, just wish I could suggest something...….

Dream21
Dream21
in reply to Longtimer

I agree. The exhaustion is unbearable at times.

The fatigue has always been the biggest problem with me, I'm not able to do much at all as relatively small amounts of exercise seem to knock me out. I feel it's a vicious circle where the less I do the less I'm able to do but whenever I try to increase exercise even fairly gently I seem to end up overdoing it

Same here.......😟

Glad I'm not the only one!

That sounds exactly what I experience. It is for me the hardest part to deal with.

I get awful fatigue but not everyday.Yesterday was a DF day ,I felt like a zombie and my head was full of cotton wool.I could of slept standing up but we were out so kept on going!.I didn't sleep that well last night though😣

Dream21
Dream21
in reply to Sandradsn

That foggy brain is hard to explain to others. I feel like a dingbat when it happens...forgetful, scattered, ...

Fatigue is my top symptom too. Beats me how I can be so exhausted and never, ever sleep well!

Longtimer
Longtimer
in reply to joyce69

Yes, I agree....I am exhausted just sitting here deciding to go and lie down!...when I do walk down the garden (my safe place) because of needing to move my muscles...my balance is terrible....thinking of using a stick....where does it end?

PMRpro
PMRproAmbassador
in reply to Longtimer

Lots of people have found using a pair of walking poles helps their balance a lot - and once they have the confidence to walk more as a result their balance improves. In some areas there are Nordic walking courses for the elderly - so not so sporty - and at one in the NE of England one lady who needed a zimmer to get about was able to walk using poles and after about 6 months didn't need the zimmer at all.

Longtimer
Longtimer
in reply to PMRpro

I will look into that thank you...

Longtimer
Longtimer
in reply to PMRpro

Just a thought...with all this extra dizziness and balance,dry mouth etc, do you thinking doctor would agree to an adrenal test of any sort of I'm at 9mg?......thank you....

PMRpro
PMRproAmbassador
in reply to Longtimer

They might - though I doubt it somehow.

Dream21
Dream21
in reply to PMRpro

It was what is working for me. I did not ask you to try it. A counselor I saw who has Multiple Sclerosis said she does the same throughout the day. Gentle stretching and diaphragm breathing. She did 3 deep breaths and gentle stretching throughout the day. It helped me get off the couch where I sat for 2 months, so for me at has helped ease some symptoms. It is not a miraculous cure.

Dream21
Dream21
in reply to Dream21

Sorry I wrote that. I thought you were responding to my post. When I looked back, you were responding to something else. My apologies. Sorry.

PMRpro
PMRproAmbassador
in reply to Dream21

That's fine - I was wracking my brain trying to work out what I had said.

Dream21
Dream21
in reply to PMRpro

Thank you. I have always have appreciated your insights. I will be more careful next time.

Dream21
Dream21
in reply to Longtimer

I am so sorry your balance is off and you have extreme tiredness. It can be very difficult to deal with constant exhaustion.

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