Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,270 members • 37,949 posts

All posts for July 2018

Off Subject

Just wondering if any of you UK folk can tell me what kind of “cream” it is they use for Wimbledon’s ‘Strawberries & Cream’. I’m such a fan of it all...some...

Just wondering if any of you UK folk can tell me what kind of “cream” it is they...

ConventCassie

•6 years ago

48 Replies

WHAT A RESULT

Just to let you all know that my Appeal was allowed. I can claim my disability allowance from DWP again and will not be reassessed for the next year. The...

Just to let you all know that my Appeal was allowed. I can claim my disability...

morrison

•6 years ago

39 Replies

Inflammatory Arthritis

I was diagnosed with GCA 4 years ago in May 14. I have been steadily reducing the steroids and came off them altogether in April 2018. In February, on a...

I was diagnosed with GCA 4 years ago in May 14. I have been steadily reducing th...

Wengen

•6 years ago

4 Replies

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Prednisone and Rotator Cuff Surgery

Hi PMRpro, Having rotator cuff surgery in two days. I am on 6 1/2 mg of prednisone but surgeon wanted me to discontinue completely but he and the rheumy...

Hi PMRpro, Having rotator cuff surgery in two days. I am on 6 1/2 mg of predni...

CEAGLE

•6 years ago

19 Replies

ANISOCYTOSIS+1: ALWAYS SOMETHING ELSE!

Recently got latest lab work back ordered by rheumatologist. My RBC and H&H normal, but anisocytosis+1 was there; never have seen this blood test result...

Recently got latest lab work back ordered by rheumatologist. My RBC and H&H norm...

Christophene47

•6 years ago

3 Replies

Reducing pred weight loss

I was taking 20 mil of pred and went from ten stone four pounds to twelve stone ten pounds. In the last two weeks or so I have been taking 17 and a half mil of...

I was taking 20 mil of pred and went from ten stone four pounds to twelve stone ...

Snookerball

•6 years ago

8 Replies

Waiting and waiting....

Hi Further to my earlier post I saw my GP who requested a dexa scan in February. Apparently if I haven't heard about the appointment by September I have to...

Hi Further to my earlier post I saw my GP who requested a dexa scan in February....

wendythom

•6 years ago

4 Replies

A Second opinion for my PMR diagnosis .. ?

Hi again, I’m just wanting to ask you PMR pros out there if any of you have been misdiagnosed along the line? I’m now just getting my head round my diagnosis...

Hi again, I’m just wanting to ask you PMR pros out there if any of you have been...

chillipeppergirl32

•6 years ago

33 Replies

PNP Procollagen test for Osteoporosis

Has anyone been told they should have a PNP Procollagen blood test as a base line before handing out osteoporosis drugs such as bisphosphonates?

Has anyone been told they should have a PNP Procollagen blood test as a base lin...

piglette

•6 years ago

10 Replies

Advice please post flair.

Hello all, I’m now 18 months into my PMR journey, it’s been complicated by having to deal with bladder cancer which was only discovered during a PMR related...

Hello all, I’m now 18 months into my PMR journey, it’s been complicated by havin...

Toolmart

•6 years ago

7 Replies

skin issues

Happy 4th of July from the middle of the USA!!!! My question this morning is how does prednisone affect the skin besides being dry, and thin, & somewhat...

Happy 4th of July from the middle of the USA!!!! My question this morning is h...

pwalker801

•6 years ago

9 Replies

A Mother's Worst Nightmare

Four years ago today, while visiting the USA, I received a call from my youngest daughter; she called to tell me she had been diagnosed with Ovarian Cancer and...

Four years ago today, while visiting the USA, I received a call from my youngest...

Hidden

•6 years ago

31 Replies

Forgotten dose

Are there any conclusions to be drawn here? I have just discovered that I didn’t take my prednisolone yesterday morning. I am on 2.5/3 mg. I didn’t have any...

Are there any conclusions to be drawn here? I have just discovered that I didn’t...

margiebell4

•6 years ago

5 Replies

Stronger Than I Realised

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/03/stronger-than-i-realised/ Warning; This blog post contains some strong language. If...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/03/stro...

Hidden

•6 years ago

66 Replies

After Match Analysis! Stress Markers Sky High!!

After that game & ref. Not a peep from me for a few days! Think I have sore throat coming on! Nigh nigh.

After that game & ref. Not a peep from me for a few days! Think I have sore thro...

Hidden

•6 years ago

26 Replies

Shingles! And stressful rheumy visit.

After rheumy appt yesterday which. Stared off like always, her grilling me about why I’m on 22.5 and haven’t reduced to where she wants me, you need the...

After rheumy appt yesterday which. Stared off like always, her grilling me a...

Mstiles

•6 years ago

10 Replies

Is this schedule too fast?

My dr. just changed my prednisone to ; 15mg/day x2 weeks, then 12.5mg/day x2 weeks, then 10mg/day x2 weeks, then 9mg/day thereafter. continue reducing every...

My dr. just changed my prednisone to ; 15mg/day x2 weeks, then 12.5mg/day x2 wee...

Linny3

•6 years ago

11 Replies

PMR and anemia

Hi Everyone I was wondering if many here suffer with anemia because of the pmr? I am white as a ghost, usually I have a very pink complexion. I am so tired...

Hi Everyone I was wondering if many here suffer with anemia because of the pmr? ...

Linny3

•6 years ago

15 Replies

Wimbledon!

Doesn't look like being rained off this year!

Hidden

•6 years ago

8 Replies

WHEN TO TAKE PREDNISOLONE

If the Rheumatologist is to be believed and to quote him 'my PMR/GCA has now well and truly gone and in fact GCA only lasts two years' I need to wean off...

If the Rheumatologist is to be believed and to quote him 'my PMR/GCA has now wel...

Heather270240

•6 years ago

33 Replies

Lots of awful pain.

I’m at 4.5 prednisone and take Actemra weekly. Been on prednisone around 14 months. Was as high as 60. I’m basically grain and sugar free diet and no...

I’m at 4.5 prednisone and take Actemra weekly. Been on prednisone around 14 mon...

Leeleep

•6 years ago

14 Replies

Diagnosed GCA Severe Pain in Legs

Can anyone give advise. Have severe pain in both legs and now experiencing numbness in both feet. Should I see the Doctor or is this another side effect of...

Can anyone give advise. Have severe pain in both legs and now experiencing numb...

Cairn

•6 years ago

5 Replies

The palps are back!

Reduced down to 7.5 on Sunday and have noticed slight palpitations again. When I had reduced to 5mg last year the palpitations were so bad that I had to have...

Reduced down to 7.5 on Sunday and have noticed slight palpitations again. When I...

Suet3942

•6 years ago

6 Replies

How can it be

Down to 3 mg this week feeling not too bad at all in fact pleased with myself as I am able to help my daughter who has developed a disease which means she is...

Down to 3 mg this week feeling not too bad at all in fact pleased with myself as...

Perkey

•6 years ago

23 Replies

Possible pred side effects !

SheffieldJane talked of tummy upsets in one of her posts. Does anyone else experience Episodes of diarrhoea & vomiting ? Have had tests for this which proved...

SheffieldJane talked of tummy upsets in one of her posts. Does anyone else exper...

Annie1001

•6 years ago

14 Replies

Any idea?

Sorry everyone. I don’t know what happened there. Anyway I had another appointment with the shoulder consultant regarding the huge bursa that was drained a few...

Sorry everyone. I don’t know what happened there. Anyway I had another appointme...

polymy

•6 years ago

12 Replies

Let’s hear it for rheumies

I had my regular six month appointment at my local rheumatology department last week. Didn’t see the boss lady, who has been pretty good in the past, but her...

I had my regular six month appointment at my local rheumatology department last ...

DDKRM

•6 years ago

9 Replies

Any idea?

I had

polymy

•6 years ago

Be the first to reply

Way forward?

Haven't posted for a while. I'm struggling at 15mg of pred, no longer taking hydroxychloroquine. The last time I saw the rheumy I had got down to 12mg of pred,...

Haven't posted for a while. I'm struggling at 15mg of pred, no longer taking hyd...

Griggser

•6 years ago

6 Replies

I was almost there

Hi everyone not been on here for a long time as I have been doing really well until now,I have had GCA for nearly two years and have been slowly reducing my...

Hi everyone not been on here for a long time as I have been doing really well un...

Gran6

•6 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Off Subject

WHAT A RESULT

Inflammatory Arthritis

Prednisone and Rotator Cuff Surgery

ANISOCYTOSIS+1: ALWAYS SOMETHING ELSE!

Reducing pred weight loss

Waiting and waiting....

A Second opinion for my PMR diagnosis .. ?

PNP Procollagen test for Osteoporosis

Advice please post flair.

skin issues

A Mother's Worst Nightmare

Forgotten dose

Stronger Than I Realised

After Match Analysis! Stress Markers Sky High!!

Shingles! And stressful rheumy visit.

Is this schedule too fast?

PMR and anemia

Wimbledon!

WHEN TO TAKE PREDNISOLONE

Lots of awful pain.

Diagnosed GCA Severe Pain in Legs

The palps are back!

How can it be

Possible pred side effects !

Any idea?

Let’s hear it for rheumies

Any idea?

Way forward?

I was almost there

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