Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for July 2018

My Friend is Dying

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/19/my-friend-is-dying/ Warning; If you're having a good day, upbeat and happy......

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/19/my-f...

Hidden

•6 years ago

59 Replies

Dose error just now

I just got messed up on my prednisone dose. I’m down to 4 mgs a day. I accidentally took my 4 pills out of the 2.5 mgs bottle, because husband handed me the...

I just got messed up on my prednisone dose. I’m down to 4 mgs a day. I acciden...

Leeleep

•6 years ago

9 Replies

‘Feel good’ show

Went into London yesterday to see Strictly Ballroom. I do get anxious before we go out to London for various reasons, but had such a lovely day. Walked from...

Went into London yesterday to see Strictly Ballroom. I do get anxious before we ...

Suet3942

•6 years ago

27 Replies

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Cardiff Meeting

The next meeting is on Wednesday 25th July at 1pm in the Central Library, 5th floor. Anyone is welcome to come.

The next meeting is on Wednesday 25th July at 1pm in the Central Library, 5th fl...

slewis

•6 years ago

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Surgery today

Prayers requested please! Spinal operation in an hour 🙏🏼🙏🏼🙏🏼 Bill

billinSurbiton

•6 years ago

19 Replies

Pilates and PMR

Since I got diagnosed with PMR 1.5 years ago, I’ve managed to keep up Pilates around 2/3 Times a week though have cut out other gym activities. I also find...

Since I got diagnosed with PMR 1.5 years ago, I’ve managed to keep up Pilates ar...

Casia

•6 years ago

13 Replies

Dr. Said I should feel almost 100% on 15 mg.?

Saw the Dr. today and she said when she upped the prednisone to 15mg, two weeks ago, within 2 days I should have been feeling 80-100% better; which I didn't. I...

Saw the Dr. today and she said when she upped the prednisone to 15mg, two weeks ...

Linny3

•6 years ago

21 Replies

Chickenpox!

On my way to visit my grandchildren and have just been told they possibly have chickenpox! Now I had chickenpox as a child but wondered is it safe to be in...

On my way to visit my grandchildren and have just been told they possibly have c...

Griggser

•6 years ago

31 Replies

The Chronicles of Ozzy and his mum with PMR part 3. A very big adventure today.

Quite a long read if you have time, I’m getting good at typing. Hi peeps, I hope you are all as well as you can be, all things considered. I’m not. My mum had...

Quite a long read if you have time, I’m getting good at typing. Hi peeps, I hope...

peace_lover

•6 years ago

18 Replies

Do you keep a diary?

I am on my second diary. Without it I would be lost as I can go back for reference any time I am not doing great. I know exactly what dose of preds I have...

I am on my second diary. Without it I would be lost as I can go back for refere...

Primarose

•6 years ago

24 Replies

New to group

Hi there I am 56 year old living in London and was diagnosed with Pmr last October. I know I was probably naive but I honestly thought I would be feeling...

Hi there I am 56 year old living in London and was diagnosed with Pmr last Octo...

Osteoqueen

•6 years ago

46 Replies

Is it joints or ligaments

Hi Everyone I am confused. What is being inflamed? The joints or the ligaments. I understood it was a disease of the ligaments and tendons and not so much the...

Hi Everyone I am confused. What is being inflamed? The joints or the ligaments. ...

Linny3

•6 years ago

13 Replies

My new mantra

Found in shed , now prominently displayed. Carol

Chrob

•6 years ago

15 Replies

Newbie questions (yes .... more)

Just wondered if a) anybody jogs or runs when pain free b) anybody takes milk-thistle thanks in advance

Just wondered if a) anybody jogs or runs when pain free b) anybody takes milk-th...

Theziggy

•6 years ago

30 Replies

Travel and PMR

Have had PMR for 18mths have tapered down to 6.5mg from 15mg cant seem to get lower at present. Was anxious about a 5 wk holiday planned to Western Canada and...

Have had PMR for 18mths have tapered down to 6.5mg from 15mg cant seem to get lo...

mtrafter

•6 years ago

22 Replies

methotrexate giving me pain

My rheumatologist increased my methotrexate to seven 7.5mg tabs a week (I take them all at once, once a week). I took it on Sunday and have been experiencing...

My rheumatologist increased my methotrexate to seven 7.5mg tabs a week (I take t...

Hidden

•6 years ago

27 Replies

When you try so hard...

All set to do a months worth! And my Blood Pressure Med has just been recalled!!! 😱

All set to do a months worth! And my Blood Pressure Med has just been recalled!!...

ConventCassie

•6 years ago

10 Replies

Oh well, here we go, more medication...

Ah well, it had to happen. Phone call with GP. I finally got the results of the Dexascan I had in October 2017. Before I really started on Pred. A score of 3.5...

Ah well, it had to happen. Phone call with GP. I finally got the results of the ...

peace_lover

•6 years ago

36 Replies

Does pred cure or simply suppress symptoms?

I was diagnosed with PMR just under 2 years ago and luckily managed to reduce my pred to 3 mg in a year and a half. Unfortunately my CRP and ESR have shot up...

I was diagnosed with PMR just under 2 years ago and luckily managed to reduce my...

Casia

•6 years ago

13 Replies

No More Mr Nice Guy!

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/17/no-more-mr-nice-guy/ Warning; This blog post may contain... Oh! Nope it doesn't!...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/17/no-m...

Hidden

•6 years ago

60 Replies

Statin update - and thanks to all who helped!

After my horror at being told I need to take statins for cholesterol - I went to my GP and told her I would prefer to try do it with diet - to see if I can get...

After my horror at being told I need to take statins for cholesterol - I went to...

powerwalk

•6 years ago

22 Replies

Shoulders & Neck Sore & Burning Today!

With wife on a day trip yesterday thought I 'd tackle defrosting the fridge freezer before we had to put a couple of bricks there to stop the door opening!!...

With wife on a day trip yesterday thought I 'd tackle defrosting the fridge free...

Hidden

•6 years ago

23 Replies

More swelling as I reduce??

At the beginning of June I was at 25 mg, then had two episodes of ocular migraines and went back up to 30 twice. Then reduced back to 25, 22.5, and now...

At the beginning of June I was at 25 mg, then had two episodes of ocular mig...

Mstiles

•6 years ago

40 Replies

Should I up the preds again?

Latest bloods show crp now 17 which is up from 10. I had increased the preds from 12 to 15 when crp was 10 so now unsure what to do. Still in quite a bit of...

Latest bloods show crp now 17 which is up from 10. I had increased the preds fro...

Griggser

•6 years ago

20 Replies

Wrong typing.

Meant deathly fatigue has hit. X

morrison

•6 years ago

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Oops

Spoke to soon. No pain after yesterday but the dealt hybrid fatigue has hit big time. Just to let you know. Xx

Spoke to soon. No pain after yesterday but the dealt hybrid fatigue has hit big ...

morrison

•6 years ago

13 Replies

Actemera

Just been reading different reports on here! Just a thought! It does seem that those of you on Actemera dont seem to have problems with your adrenals...

Just been reading different reports on here! Just a thought! It does seem tha...

Xanthe12345

•6 years ago

19 Replies

Overdid it and, boy, am I paying for it!

BEWARE windgy moan ahead -After having spent the last 18 or so months turning down outings with friends for fear of the repercussions on my body I have...

BEWARE windgy moan ahead -After having spent the last 18 or so months turning do...

Purplegirl70

•6 years ago

8 Replies

My PMR Journey

I was diagnosed last September 2017 and started on 20mg of prednisone. I think I’ve had PMR longer though. My rheumatologist had me down to 6mg prednisone now....

I was diagnosed last September 2017 and started on 20mg of prednisone. I think I...

Lanakay

•6 years ago

21 Replies

GCA and people not understanding

I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the...

I have just come back from a wonderful but tiring holiday in Cornwall. I am so m...

christine2715

•6 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

My Friend is Dying

Dose error just now

‘Feel good’ show

Cardiff Meeting

Surgery today

Pilates and PMR

Dr. Said I should feel almost 100% on 15 mg.?

Chickenpox!

The Chronicles of Ozzy and his mum with PMR part 3. A very big adventure today.

Do you keep a diary?

New to group

Is it joints or ligaments

My new mantra

Newbie questions (yes .... more)

Travel and PMR

methotrexate giving me pain

When you try so hard...

Oh well, here we go, more medication...

Does pred cure or simply suppress symptoms?

No More Mr Nice Guy!

Statin update - and thanks to all who helped!

Shoulders & Neck Sore & Burning Today!

More swelling as I reduce??

Should I up the preds again?

Wrong typing.

Oops

Actemera

Overdid it and, boy, am I paying for it!

My PMR Journey

GCA and people not understanding

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