Good news bad news: The good news: my 3 yr PMR... - PMRGCAuk

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Good news bad news

Valnvaughan profile image
9 Replies

The good news: my 3 yr PMR journey continues smooth after 2 years of hiccups, and I have started a DSNS reduction of Prednisolone to 3.5 from 4 mg per day. After a visit to my hip replacement surgeon, my new right hip is doing well and I can start swimming, not breast stroke, and driving again, though not in my sports car. I have started to cook dinner occasionally, much to hubbie's delight. I can dance at our Golden Wedding Anniversary.

The bad news: the increasing demands on my left hip as I get mobile again are causing severe pain in that hip and knee. The surgeon says the left hip is mentioned in the original paperwork and he will lseek permission from NHS to replace left hip on original referral, speeding up the process. So I told Hubbie he will be back on full time carer soon! The raised toilet seat has to be used so re-borrowed from Red Cross, and I must stay on 2 crutches. Fingers crossed .....sorted and recovering before Christmas.

Valerie

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Valnvaughan profile image
Valnvaughan
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9 Replies
PMRpro profile image
PMRproAmbassador

Just as well every cloud has a silver lining!! You sound pretty upbeat about it though! All the best.

Valnvaughan profile image
Valnvaughan in reply to PMRpro

Thanks

yogabonnie profile image
yogabonnie

oh I wish you well!!! Love your attitude. Hang on to it! And hooray for your golden anniversary!

Valnvaughan profile image
Valnvaughan in reply to yogabonnie

Positive attitude helps recovery. I've had depression in 90s after an operation, I was determined not to go there. With 2 new hips I'll be bionic woman after years of staggering old lady who held the coats whilst others DID.

Rosbud profile image
Rosbud

Had both of mine done within A year and felt fantastic till PMR came and bit me in my bum , you really will feel the difference when you've had the second one done x

pmrkitty profile image
pmrkitty

Keep that attitude! Hope all goes smoothly and you're up and walking in no time.

Perkey profile image
Perkey

Yes like Rosbud I had the two hips fairly quickly which have been marvellous but like Rosbud after the second one I was gripped with the dreaded pmr which I had never heard of until I got it. Two and half years on still reducing preds down to 2. The only discomfort now is my lead legs but I am convinced they are with me for always. Unfortunately can’t walk for longer than 15 minutes which is a shame not to use my lovely new hips 😿

Telian profile image
Telian

You sound pretty positive and I hope you continue to improve - not too much jigging though - it's our Golden soon too, we used to love 'bopping' but OH can only just about stand now - but that's what the man did anyway - so might prop him up for the occasion! Best wishes.

Valnvaughan profile image
Valnvaughan

Thanks for all your encouraging comments.

I have accepted my limitations at present. Yesterday we were due to meet friends at National Trust property for picnic whilst enjoying Jazz in the garden. So I phoned the day before and reserved a wheelchair. At entrance swapped my crutches for their wheelchair and was able to enjoy our friends company in the hot sunshine, and return home for tennis and football climaxes. Very hard to push a wheelchair on gravel paths.

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