I've just had a second opinion after lodging a complaint about the first Rheumatologist and the inaccurate report he wrote. I've struggled with GPs who clearly don't understand the condition we have and have been misdiagnosed, given wrong information, wrong medication, omissions of medication needed yada yada yada...oh and told me to stop making PMR my life and you lot are a bunch of negative moaners.
I did feel that my symptoms extended beyond PMR and it may be right. New Rheumy thinks it might be fybromyalgia and not Osteo arthritis as first one said. He also wants me to see the senior consultant so that they can collaborate. So finally they are listening and giving it more consideration. Also doing what they should be doing ....consulting.
This time I did not feel insulted, belittled and treated like "the little woman".
Don't get me wrong, the fight has been costly. I'm exhausted but feeling we might get somewhere now.
Keep up the fight if you can. Get others to help you when you feel overwehlmed.
I really feel that we need some kind of advocacy services to help us.