Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for July 2018

Decided to go ahead with carpal tunnel surg

Thank you all for your support. I will get it done Tuesday. On 8mg of Pred. Will do my very best for optimal healing and be positive. Take care All!

Thank you all for your support. I will get it done Tuesday. On 8mg of Pred. Will...

Leilagirl

•6 years ago

21 Replies

Language sorted!

I've now got myself back into English after my short and unintended foray into Spanish. Phew!

I've now got myself back into English after my short and unintended foray into S...

maria40

•6 years ago

6 Replies

Body Pain

14 months of dosing down my prednisone and at new dose of 4 mgs. Also taking weekly Actemra injection without side effects. Prior to developing GCA/PMR I was...

14 months of dosing down my prednisone and at new dose of 4 mgs. Also taking we...

Leeleep

•6 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Why is my page coming up in Spanish?

I wanted to post about frozen bananas which someone mentioned the other day and I wanted to say thank you as I stuck one in my freezer, duly forgot it, found...

I wanted to post about frozen bananas which someone mentioned the other day and ...

maria40

•6 years ago

3 Replies

My Estimate! Pepperdoggie 4 Ratty 0.!!

Don't enjoy this but who wants "Weils Disease" as well? One off sachets supposed to do the job in one hit! They are going & a lot more humane than other...

Don't enjoy this but who wants "Weils Disease" as well? One off sachets supposed...

Hidden

•6 years ago

9 Replies

Another GCA related question.

A week or so before I was rushed into A & E my tongue went black. When I asked about it no one could give me a reason. Anyone know if there is a connection...

A week or so before I was rushed into A & E my tongue went black. When I asked ...

Primarose

•6 years ago

39 Replies

Bed Making!

I can't believe how much energy goes into making a bed !! I made mine yesterday and was more or less 'out of it' for the rest of the day. Even today after a...

I can't believe how much energy goes into making a bed !! I made mine yesterday ...

stellafmdm

•6 years ago

62 Replies

Oh goody, more good news!

"Autoimmune Disorders Linked to Psychosis" https://www.psychologytoday.com/us/blog/finding-new-home/201807/autoimmune-disorders-linked-psychosis...

"Autoimmune Disorders Linked to Psychosis" https://www.psychologytoday.com/us/b...

Hidden

•6 years ago

75 Replies

Feeling weak first thing in the morning.

Hi everyone. I’m GCA and now down to 5mg Pred ( been at 5mg for the last month)....18 months since diagnosis. I feel pretty good most of the time but the last...

Hi everyone. I’m GCA and now down to 5mg Pred ( been at 5mg for the last month)....

Judy211

•6 years ago

17 Replies

One thing after another!

18 months ago it was found that I had an adrenal adenoma which they think is benign. Now the consultant is telling me that I have an narrow renal artery. Got...

18 months ago it was found that I had an adrenal adenoma which they think is ben...

Suet3942

•6 years ago

6 Replies

What's this obsession with Alendronic Acid?

I rang the help line for Rheumatology this morning as the shoulder and necks pains I have been getting are worse. They eventually returned my call, said the...

I rang the help line for Rheumatology this morning as the shoulder and necks pai...

Primarose

•6 years ago

37 Replies

Taking Pred the right way

Hello Peeps. I have recently got my dose of pred down to 7mg by dividing the dose during the day. I found taking the whole dose of 8mg in the morning no...

Hello Peeps. I have recently got my dose of pred down to 7mg by dividing the dos...

Suffolklady

•6 years ago

45 Replies

Achilles - our tendons and the value of searching this forum !!

Hi Everyone Well there isn't much I haven't been able to find at least something out about on this fab forum - and now I see there is a possible relationhsip...

Hi Everyone Well there isn't much I haven't been able to find at least something...

Rimmy

•6 years ago

30 Replies

And the good news is . . .

It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of...

It took just 10 minutes final assessment yesterday for Keith (hospital rheumatol...

sondya

•6 years ago

57 Replies

Sleep boost!

Scrolling through the Holland and Barrett half price sale- as you do at 5am in the morning- spotted this item ... New! Yes to Cucumbers - A Calming Sleep Mask...

Scrolling through the Holland and Barrett half price sale- as you do at 5am in t...

Cyclegirl54

•6 years ago

8 Replies

Results of my wheat experiment

I have concluded that I most certainly have a problem with wheat. I ate wheat for a month and day by day my symptoms increased, the worst of which was extreme...

I have concluded that I most certainly have a problem with wheat. I ate wheat fo...

SheilasPMR

•6 years ago

12 Replies

Hearing

Does PMR/GCA cause hearing problems

Mgeorge

•6 years ago

21 Replies

Getting old etc

Eyes tested, new specs ordered, getting them on the 25th. Cateracts are no problem, eyesight with the new glasses ok for driving. Just got to get rid of the...

Eyes tested, new specs ordered, getting them on the 25th. Cateracts are no probl...

Vanner460

•6 years ago

9 Replies

Artery spraying spots of blood under the skin

I thank all of you. You are invaluable. I have GCA and PMR. Occasionally I get a slight itching and tight feeling in my lower leg on the side, near the Tibia...

I thank all of you. You are invaluable. I have GCA and PMR. Occasionally I get a...

Asbeck

•6 years ago

7 Replies

PMR/GCA LOOSE JAW

I am on a cruise to the Norwegian Fjords and have been OK untill yesterday when I suddenly had the muscle problem in my lower right side. So I booked a...

I am on a cruise to the Norwegian Fjords and have been OK untill yesterday when ...

Berylholley

•6 years ago

4 Replies

Positive thinking! Cold Bath before The Game! For Me!

Didn't mention a glass or two! Put it down to Pred. nerves or well! Whatever! As they say!

Didn't mention a glass or two! Put it down to Pred. nerves or well! Whatever! As...

Hidden

•6 years ago

10 Replies

Name of the drug that as been refused funding byNICE ! this year again that can help with polymyaglia and giant cell?

i have someone who wants to help me but I need the name of this drug?

Jamie345

•6 years ago

12 Replies

Predisinone not working

I have just been on to my rheumy nurse and told her that I still feel really ill in fact from day one that predisinone gave me no relief at all I got down to...

I have just been on to my rheumy nurse and told her that I still feel really ill...

Jamie345

•6 years ago

16 Replies

July 11, 1991

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/11/july-11-1991/ Warning; This blog post may contain some strong language. If you are...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/07/11/july...

Hidden

•6 years ago

46 Replies

I've even washed the dusters - by hand!!

Good morning all! I've Just upped my preds to the last time I remember being pain free - around 5mg. Reason - hip and wrist pain. My doc said the hip pain was...

Good morning all! I've Just upped my preds to the last time I remember being pa...

MamaBeagle

•6 years ago

22 Replies

Pred feet!

From one extremity to the other!;-) On coming back from my treks while on high doses of prednisolone I would notice that my feet were bright red and slightly...

From one extremity to the other!;-) On coming back from my treks while on high ...

Primarose

•6 years ago

2 Replies

Could it be GCA? I really hope not!

I had my hip replacement nearly 3 weeks ago and am making a good recovery. This morning, about an hour ago, I started having some visual disturbances in my...

I had my hip replacement nearly 3 weeks ago and am making a good recovery. This ...

suzy1959

•6 years ago

17 Replies

GCA Article Daily Mail

In the Heath Section of the Daily Mail Tuesday 10th July is a really good article on a new treatment and raising awareness of GCA. It explains what happens if...

In the Heath Section of the Daily Mail Tuesday 10th July is a really good articl...

Estellemac

•6 years ago

7 Replies

Prednisolone and Omeprazole

Hi everyone I hope you are all enjoying the lovely weather and progressing well with our common health issue. I recently asked about taking Alendronic Acid and...

Hi everyone I hope you are all enjoying the lovely weather and progressing well ...

Mitziecat

•6 years ago

42 Replies

Not diagnosed with GCA - never heard of it till recently, sorry 😕 - but worried as ESR high and GP suggested it as possible diagnosis...

Dear folks, I have had "weird" headaches *(stabbing/ electric shock feeling on the left handside of my skull together with a tender scalp)* over the last few...

Dear folks, I have had "weird" headaches *(stabbing/ electric shock feeling on ...

flossiew

•6 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2018

Decided to go ahead with carpal tunnel surg

Language sorted!

Body Pain

Why is my page coming up in Spanish?

My Estimate! Pepperdoggie 4 Ratty 0.!!

Another GCA related question.

Bed Making!

Oh goody, more good news!

Feeling weak first thing in the morning.

One thing after another!

What's this obsession with Alendronic Acid?

Taking Pred the right way

Achilles - our tendons and the value of searching this forum !!

And the good news is . . .

Sleep boost!

Results of my wheat experiment

Hearing

Getting old etc

Artery spraying spots of blood under the skin

PMR/GCA LOOSE JAW

Positive thinking! Cold Bath before The Game! For Me!

Name of the drug that as been refused funding byNICE ! this year again that can help with polymyaglia and giant cell?

Predisinone not working

July 11, 1991

I've even washed the dusters - by hand!!

Pred feet!

Could it be GCA? I really hope not!

GCA Article Daily Mail

Prednisolone and Omeprazole

Not diagnosed with GCA - never heard of it till recently, sorry 😕 - but worried as ESR high and GP suggested it as possible diagnosis...

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