Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for January 2018

SYMPTOMS OF REDUCING STEROIDS?

Ive gone from 2 1/2 to 2 prednisolene daily in the last week, was doing it alternative days, then went for the 2 a day. Now I find I wake up early with a...

Ive gone from 2 1/2 to 2 prednisolene daily in the last week, was doing it alter...

Reethebeat

•7 years ago

12 Replies

Sunami warning

There has been an earth quake in Alaska and a sunami warning for the Washington coast. My OH is flying there right now, to visit our daughter and family. I...

There has been an earth quake in Alaska and a sunami warning for the Washington ...

Gaijin

•7 years ago

7 Replies

Flu Outbreak

Just out of interest- with many folk being exposed to and catching the flu is it advisable if you contract the flu to contact your GP and ask for tamiflu?...

Just out of interest- with many folk being exposed to and catching the flu is it...

Jackoh

•7 years ago

10 Replies

Want to take advantage of all our features? Just log in!

hi i'm jenny and new to having giant cell arteritis

hi 3 weeks before Christmas i was having 5 head pains on one side of my head each hour ,i went to see my doctor and it all went mad from there as she thought...

hi 3 weeks before Christmas i was having 5 head pains on one side of my head eac...

jennytheartist

•7 years ago

43 Replies

Stay on 10mg Pred for 1 year? Thoughts?

62 yr old female, almost finished from 15-12.5 mg, Diagnosed GCA May, 2017, USA...

Insight329

•7 years ago

12 Replies

GCA and frustrated

Just came from the doctor. Inflamatory markers are up again. I just can not seem to get them down. This time I do have a cold last time a uti. It seems as...

Just came from the doctor. Inflamatory markers are up again. I just can not seem...

mngirl

•7 years ago

17 Replies

GCA, PMR or graves disease

Hello everyone, I'm new here and feeling very confused with symptoms of both Graves and GCA/PMR. Last summer I was diagnosed with Graves, had antibodies for...

Hello everyone, I'm new here and feeling very confused with symptoms of both Gra...

Mstiles

•7 years ago

9 Replies

Tired & Emotional! Is it the Roids?

Hard to express! I'm blaming the Roids! Stuck in roadworks bollocks when I cracked. Blasting 'Dancing in the Dark' bought on the tears. What was that...

Hard to express! I'm blaming the Roids! Stuck in roadworks bollocks when ...

Hidden

•7 years ago

27 Replies

why are you here?

Dorsetlady, Thank you for the fine description of the disorder.. I have a better idea of it now. I've never been given the diagnosis, but have some symptoms...

Dorsetlady, Thank you for the fine description of the disorder.. I have a better...

23bethy

•7 years ago

35 Replies

Medication advice please

Hello I am currently on holiday in Jamaica with a stinking cold and a dry tickly cough keeping me (and everyone else) awake practically all night. My friend...

Hello I am currently on holiday in Jamaica with a stinking cold and a dry tickly...

Zhenya

•7 years ago

4 Replies

Not strictly a PMR problem

Managed to get appointment with usual GP this morning to discuss recent back Xray results. This was done to further investigate the right sided leg muscle...

Managed to get appointment with usual GP this morning to discuss recent back Xra...

Wenben

•7 years ago

10 Replies

A bad nights sleep!

Well last night seemed like a bad night. Went to bed at my normal time, watched a couple of YouTube videos as normal. Turned my phone, but sleep refused to...

Well last night seemed like a bad night. Went to bed at my normal time, watched ...

JulianJ

•7 years ago

19 Replies

The Lighter Side: On the Up, after being so Down - The 'Toggle' Factor..? ;-)

New Year's Greetings to Fellow Poly-my-Lingerers, Friends and Pred Playmates in this great and supportive Community.. :-) [Disclaimer 1: the following is NOT...

New Year's Greetings to Fellow Poly-my-Lingerers, Friends and Pred Playmates in ...

markbenjamin57

•7 years ago

20 Replies

Loving My Weighted Blanket!

I promised an update and here it is... I am hooked! My blanket weighs 17 pounds, so its a little unweilding to get situated, but once in place, it's like a...

I promised an update and here it is... I am hooked! My blanket weighs 17 pounds...

Hidden

•7 years ago

14 Replies

PMR pain vs ESR/CRP test results

Greetings to the nice people in this forum. I read a lot of helpful posts and would like to share my experiences and ask for advices. I am a 56 years female...

Greetings to the nice people in this forum. I read a lot of helpful posts and w...

RedMaple

•7 years ago

25 Replies

New poll live - for people with GCA

On Tuesday we have the second NICE meeting to consider tocilizumab for GCA. It would help us to have one or two statistics ready in case we need them. One is...

On Tuesday we have the second NICE meeting to consider tocilizumab for GCA. It w...

Polywotsit

PMRGCAuk team member•7 years ago

7 Replies

Depo Medrol shot for Flare

Hi everyone, I am on Actemra for PMR. I am also currently on 4mg of Rayos (time released Prednisone). I recently had a flare because I reduced too quickly....

Hi everyone, I am on Actemra for PMR. I am also currently on 4mg of Rayos (time...

Marie1479

•7 years ago

4 Replies

Methotrexate or leflunomide

Hello all in now at the end of my tether :( after being diagnosed with GCA/PMR in 2013 and forever on high doses as I start to reduce I get a flare and go back...

Hello all in now at the end of my tether :( after being diagnosed with GCA/PMR i...

suszannah

•7 years ago

92 Replies

THE 'POLITICS' OF ILLNESS AND AI DISEASES

Hello Everyone Watching a recent documentary (available to watch on many platforms) made by a rather brilliant woman called Jennifer Brea and called 'Unrest' I...

Hello Everyone Watching a recent documentary (available to watch on many platfor...

Rimmy

•7 years ago

10 Replies

Dosing Prednisone at end.

Because my thrush is not leaving while on Prednisone and all GCA symptoms are in remission I need to get off Prednisone ASAP. I’m at 6 mgs for 8 days. I saw...

Because my thrush is not leaving while on Prednisone and all GCA symptoms are in...

Leeleep

•7 years ago

15 Replies

Worth a watch I think

Hi everyone, just wanted to share this here to see what you guys think of it? Although I was a bit freaked and overwhelmed by the amount information I found it...

Hi everyone, just wanted to share this here to see what you guys think of it? Al...

Allsgrandso

•7 years ago

7 Replies

Not so NICE for GCA? - Fantastic response from patients!

New drug for GCA? Just a month ago (18 December) we posted about the decision of NICE not to approve Tocilizumab (actemra) for GCA. The next stage will be on...

New drug for GCA? Just a month ago (18 December) we posted about the decision of...

Polywotsit

PMRGCAuk team member•7 years ago

3 Replies

Virus

I’m tying to recover from a really nasty virus , GP not sure if flu or a virus that raised its head and started affecting people in December , I keep thinking...

I’m tying to recover from a really nasty virus , GP not sure if flu or a virus t...

ALLYMAC88

•7 years ago

16 Replies

Getting to the right level

Hi,I am Carole age 63 and have just joined, I was diagnosed with pmr last August and put on 20g of prednisone decreasing gradually, I went from 12 and 1/2g to...

Hi,I am Carole age 63 and have just joined, I was diagnosed with pmr last August...

Caroleanne190554

•7 years ago

3 Replies

Look at me!

Look at me, only 8 weeks in and up from 45 to 80 mg; but now, today, down from 80 mg to 75! Wooooo Hoo! One step forward, two steps back. On a positive...

Look at me, only 8 weeks in and up from 45 to 80 mg; but now, today, down from 8...

Hidden

•7 years ago

8 Replies

Aortic dissection

Diagnosed with GCA in May 2016. Treated with prednisone 50mg gradually reduced to 3mg then had thoracic dissection in March 2017. Had open heart surgery in...

Diagnosed with GCA in May 2016. Treated with prednisone 50mg gradually reduced t...

Mumme

•7 years ago

9 Replies

PMR and PIP Award

Good afternoon everyone. Well, being only 54 when diagnosed with PMR I eventually took early retirement from my job as a Special Needs teacher as I couldn't...

Good afternoon everyone. Well, being only 54 when diagnosed with PMR I eventuall...

cmj33g

•7 years ago

11 Replies

Hit 1mg then...

... aches and pains came again. Had ESR check and it was 24, CRP normal. Now what I'm wondering is rather than start again on 15 mg and restart taper is it...

... aches and pains came again. Had ESR check and it was 24, CRP normal. Now wha...

KCRoyals

•7 years ago

11 Replies

Fuming!

I am absolutely fuming! Brief background: Diagnosed with PMR in June 2017 and prescribed 15 mg Prednisolone plus Adcal D3. Had tender, swollen vein in left...

I am absolutely fuming! Brief background: Diagnosed with PMR in June 2017 and pr...

loopeyloo72

•7 years ago

25 Replies

Life post GCA

Just to let you know life does become good again after GCA. Especially if you’re lucky enough to have family in great places around the globe. Taken Saturday...

Just to let you know life does become good again after GCA. Especially if you’re...

DorsetLady

PMRGCAuk volunteer•7 years ago

50 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

SYMPTOMS OF REDUCING STEROIDS?

Sunami warning

Flu Outbreak

hi i'm jenny and new to having giant cell arteritis

Stay on 10mg Pred for 1 year? Thoughts?

GCA and frustrated

GCA, PMR or graves disease

Tired & Emotional! Is it the Roids?

why are you here?

Medication advice please

Not strictly a PMR problem

A bad nights sleep!

The Lighter Side: On the Up, after being so Down - The 'Toggle' Factor..? ;-)

Loving My Weighted Blanket!

PMR pain vs ESR/CRP test results

New poll live - for people with GCA

Depo Medrol shot for Flare

Methotrexate or leflunomide

THE 'POLITICS' OF ILLNESS AND AI DISEASES

Dosing Prednisone at end.

Worth a watch I think

Not so NICE for GCA? - Fantastic response from patients!

Virus

Getting to the right level

Look at me!

Aortic dissection

PMR and PIP Award

Hit 1mg then...

Fuming!

Life post GCA

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