Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for January 2018

Update on advice for a friend

PMRpro I have now had a chance to speak to my friend about the advice you kindly gave me and he is making an appointment to see his doctor as you suggested. I...

PMRpro I have now had a chance to speak to my friend about the advice you kindly...

Brixhamhampster

•6 years ago

2 Replies

Update after Rheumy apt - Tingling legs, arms and pain on right temple area.

Saw Rheumy today regarding tingling in legs and arms, pain and tenderness in right temple area. Also spoke to him about his requested reduction from 7.5 mg to...

Saw Rheumy today regarding tingling in legs and arms, pain and tenderness in rig...

Sunnyd7

•6 years ago

7 Replies

Medical History attached to referral, irrelevant and upseting

I picked up a copy of the referral letter from GP today, as I am seeing private consultant rheumatology on Tues. To my horror, attached is a detailed medical...

I picked up a copy of the referral letter from GP today, as I am seeing private ...

Hidden

•6 years ago

21 Replies

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PMR Pain Managemt

Any experience or conflict using hydrocodone to manage PMR pain

Jlowell

•6 years ago

8 Replies

prunes seem to work!!!!!!!!!!!

For the past 6 years, I have been a home befriender. My lady turned 99 in Dec. Her wish is to get to 100, to receive a telegram from the Queen. She may well...

For the past 6 years, I have been a home befriender. My lady turned 99 in Dec. H...

karools16

•6 years ago

6 Replies

Reducing Pred and taking other tablets.

Been to see rheumatologist today for all my test results post PMR diagnosis end of Dec17. Disappointed that the Biopsy for GCA is positive. But ESR has come...

Been to see rheumatologist today for all my test results post PMR diagnosis end ...

Hidden

•6 years ago

16 Replies

My type of PMR

I was diagnosed with PMR 4 years ago at the age of 75. Instead of having the usual joint/muscle pain it just makes me feel bad, actually miserable, It...

I was diagnosed with PMR 4 years ago at the age of 75. Instead of having the us...

edulm1038

•6 years ago

9 Replies

So I think this may be farewell......

Hello folks. I have had the awaited rheumy appt. It took me completely by surprise. I went wanting support coming off pred, and information on possible...

Hello folks. I have had the awaited rheumy appt. It took me completely by surpri...

hya2cynth

•6 years ago

17 Replies

Worst part of PMR for me is my brain function (or not?)

I am close to 2 years on the PMR journey and the pain has diminished greatly, though still there. What I struggle with and the main cause of my retirement is...

I am close to 2 years on the PMR journey and the pain has diminished greatly, th...

bunnymom

•6 years ago

64 Replies

Tumeric

I read a few posts on turmeric the other day and can’t find them again and would like to know if it is helpful or not

I read a few posts on turmeric the other day and can’t find them again and would...

AMG38

•6 years ago

15 Replies

Just checking in 🤗

Hi all, just a little update from me. Currently almost on 8mg from 15mg (since July)thanks to tortoise not hare method and doing ok I think. Had a few bad days...

Hi all, just a little update from me. Currently almost on 8mg from 15mg (since J...

Allsgrandso

•6 years ago

9 Replies

Massage?

I am luckily going to a hotel with a spa soon, is it sensible to have a massage or not really? I would ask the doctor but I get more sensible advice from you...

I am luckily going to a hotel with a spa soon, is it sensible to have a massage ...

1964-karina

•6 years ago

7 Replies

Can anyone advise on weight gain/loss?

Asking for experiences with reducing weight whilst taking steroids please. It sounds frivolous when compared to our respective pain and discomfort but I am...

Asking for experiences with reducing weight whilst taking steroids please. It so...

DebbieF1603

•6 years ago

31 Replies

Keeping positive

Tapering down and on 20mg pred. Keeping a daily diary to help this up and down process as I go along. X-ray yesterday and hip fracture has healed completely...

Tapering down and on 20mg pred. Keeping a daily diary to help this up and down p...

Pongo13

•6 years ago

4 Replies

Sweating .?

Just wondering is sweating not a part of been on steroids ? I seem to have a lot of sweating and just assumed it was part of the tampering with the...

Just wondering is sweating not a part of been on steroids ? I seem to have a lo...

Lucylooloo

•6 years ago

13 Replies

Reducing Pred and sharp stabbing pains.

Hi All I have GCA (diagnosed Feb 2017) I am currently on 7mg, (supposed to be reducing 1mg a month and should by now be on 6mg, but couldn't cope so went back...

Hi All I have GCA (diagnosed Feb 2017) I am currently on 7mg, (supposed to be re...

mrstrestle

•6 years ago

12 Replies

Guess Who Has an Appointment With Dr Rod Hughes?

Thank you PMRPro for suggesting I go further afield and see someone who has experience, knowledge and a good reputation in this area! I see him on January...

Thank you PMRPro for suggesting I go further afield and see someone who has expe...

Hidden

•6 years ago

10 Replies

Tapering advice please!

Any advice is very welcome. I have tapered down to 1mg every other day and wondering what the advise is from there? My GP is lovely but does not have the...

Any advice is very welcome. I have tapered down to 1mg every other day and wonde...

Mariemcdo

•6 years ago

3 Replies

Advice for a friend

A friend of mine who also has Polymyalgia has asked me to pose the question why he should be fine all day but then gets a lot of pain at night. He is on 5mg....

A friend of mine who also has Polymyalgia has asked me to pose the question why ...

Brixhamhampster

•6 years ago

6 Replies

Inflammatory markers

What are inflammatory markers for PMR.

Orangecrush

•6 years ago

6 Replies

reducing pred

I have been taking pred for about 5 years slowly reducing when I can I got down to 2 mg just after Christmas was fine for about a week then I developed aching...

I have been taking pred for about 5 years slowly reducing when I can I got down ...

kingharold11

•6 years ago

5 Replies

Dapagliflozin or not?

I have T2 diabetes; hypertension; polymyalgia (PMR) and have lymphoedema in my legs. My blood readings are raised artificially by having to take steroids for...

I have T2 diabetes; hypertension; polymyalgia (PMR) and have lymphoedema in my l...

violetsnowdrop

•6 years ago

3 Replies

On GCA end of spectrum?

Hi. I had a TIA at the end of September, and about the same time developed at the PMR symptoms. The Rheumatologist Registrar that I saw recently dismissed my...

Hi. I had a TIA at the end of September, and about the same time developed at t...

Hidden

•6 years ago

9 Replies

MED CHANGE FOR GCA

Hi. After PMR diagnoses October was in 20mg reduced to 10 - with symptoms coming back at 10mg. Then had head/sight/temple/jaw problems and bloods monitored etc...

Hi. After PMR diagnoses October was in 20mg reduced to 10 - with symptoms coming...

Hev1964

•6 years ago

27 Replies

Bad Day

BAD DAY! Is it normal to be still on 60 mg Prednisone and wake up in the night in pain? The pain was mainly in my right arm and shoulder. I was finally able...

BAD DAY! Is it normal to be still on 60 mg Prednisone and wake up in the night ...

CRW-68

•6 years ago

7 Replies

PMR first anniversary

A year ago today my GP and I recognised almost at the same moment that my symptoms indicated PMR. With an ESR at 91 and a CRP of 24 I googled my symptoms and...

A year ago today my GP and I recognised almost at the same moment that my sympto...

Zebedee44

•6 years ago

2 Replies

So How Bad Is It?

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/23/so-how-bad-is-it/ (Please excuse the implied expletives)

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/23/so...

Hidden

•6 years ago

15 Replies

Waiting for a diagnosis

I have osteoarthritis in lower lumbar spine and neck and spinal stenosis, I have had extreme stiffness in my body, I have had this about 2 years.I can't twist...

I have osteoarthritis in lower lumbar spine and neck and spinal stenosis, I have...

Hidden

•6 years ago

20 Replies

Coming out of the shadows.....LOL

I am new here and since learning that I have PMR (Sep 2017) have been checking in daily to the posts on this blog and found many of the articles/topics/replies...

I am new here and since learning that I have PMR (Sep 2017) have been checking i...

Keithgrich

•6 years ago

10 Replies

PMR Flare, going up from 8 mg, a single day 15 mg, then?

I had been on 8 mg for 3 weeks and the pains started to become very bothersome. I planned to increase back to 9 mg. Reading the posts here I thought it may...

I had been on 8 mg for 3 weeks and the pains started to become very bothersome. ...

RedMaple

•6 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

Update on advice for a friend

Update after Rheumy apt - Tingling legs, arms and pain on right temple area.

Medical History attached to referral, irrelevant and upseting

PMR Pain Managemt

prunes seem to work!!!!!!!!!!!

Reducing Pred and taking other tablets.

My type of PMR

So I think this may be farewell......

Worst part of PMR for me is my brain function (or not?)

Tumeric

Just checking in 🤗

Massage?

Can anyone advise on weight gain/loss?

Keeping positive

Sweating .?

Reducing Pred and sharp stabbing pains.

Guess Who Has an Appointment With Dr Rod Hughes?

Tapering advice please!

Advice for a friend

Inflammatory markers

reducing pred

Dapagliflozin or not?

On GCA end of spectrum?

MED CHANGE FOR GCA

Bad Day

PMR first anniversary

So How Bad Is It?

Waiting for a diagnosis

Coming out of the shadows.....LOL

PMR Flare, going up from 8 mg, a single day 15 mg, then?

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