Greetings to the nice people in this forum. I read a lot of helpful posts and would like to share my experiences and ask for advices.
I am a 56 years female living in Canada, new to this forum. In May 2017 I was diagnosed as PMR because of high ESR (46). The first 25 mg pred removed the pains from my legs and shoulders in just a few hours. On the way of reducing dose, ESR and CRP were mostly in normal ranges with occasional over threshold. While reaching 12.5 mg daily I had to go back to 15 mg because of the serious pain. My weight is gradually decreasing, even after taking pred (109 lb down to 105 lb). Now I am down to 8 mg daily, hesitating if I have to go back to a higher dose because the pains seem to be getting back gradually.
I can experience bother-some pains with perfectly normal ESR/CRP. Is this common with PMR patients? What is the controlling factor for the tapering down dose, blood test results or my own feeling? When I experience an increasing pain (bearable) should I increase dose right away, or hold on to the same dose as long as I can?
Thanks for your help.