I am absolutely fuming!
Brief background: Diagnosed with PMR in June 2017 and prescribed 15 mg Prednisolone plus Adcal D3. Had tender, swollen vein in left temple but did not realise significance at time. Having found this site, had confidence to question doctor when told to reduce from 15 to 10 mg and reduced to 12.5 instead. Using DSNS method, I then tried to reach 10 mg but found that when I was taking more 10 than 11 the symptoms returned. On the second occasion at the beginning of December, I increased back to 12.5 mg on the advice of my surgery. On the Friday before Christmas, late in the evening, I felt something move across my head and then lost all vision, albeit temporarily. It was as though someone had switched the lights off and then put them back on again. As you can imagine, it frightened the life out of me. With hindsight I should have done something about it at the time.
Yesterday I saw the Rheumatologist and explained all this to her saying that I had stayed on 12.5 mg because I had had pain in my left temple, pressure behind my left eye and occasional confusion. I might have well been speaking Chinese! She was more concerned with the fact that I was still on 12.5 mg Pred after seven months and wanted to prescribe Methotrexate. After seven months?!! She also strongly recommends that I take AA even though I only have osteopenia - another drug I have refused to take. She actually stated that she didn't think my loss of vision had anything to do with my PMR but could not offer an explanation as to what had caused it.
My blood pressure was probably through the roof by then but I don't know because they didn't bother to take it!