Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for January 2018

GCA and Actemra

Diagnosed in November. On prednisone and Actemra. Lots of questions

EA43

•7 years ago

7 Replies

Extreme tiredness

Hello! I was diagnosed with PMR a year ago after 3 months of pain & no diagnosis I started on 15mg then the usual taper, going down 1mg a month. I started to...

Hello! I was diagnosed with PMR a year ago after 3 months of pain & no diagnosis...

NWFiona

•7 years ago

78 Replies

Got the Lurgy, Sumat on mi chest 🙄

Maybe bronchitis. Got no cold running nose nowt like that. Just this damd hacking cough sore chest. Coughing nowt up bit tight. Chest not me. 😂 Sounds like...

Maybe bronchitis. Got no cold running nose nowt like that. Just this damd hacki...

Rocketronzy

•7 years ago

13 Replies

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Bisphosphonates reassurance sought!

Following 15 months of prednisolone for GCA I am now embarking on 15 months of prednisolone for PMR. Following the trip to the rheumatologist today the...

Following 15 months of prednisolone for GCA I am now embarking on 15 months of p...

DevonMichael

•7 years ago

39 Replies

Side Effect of Prednisolone - Dementia?

My dad is 70 yrs old and was diagnosed with PMR last week and had been given prednisolone ever since. First 3 days the rheumatologist gave him prednisolone...

My dad is 70 yrs old and was diagnosed with PMR last week and had been given pre...

Moissanie

•7 years ago

9 Replies

Thought this might amuse you all

Found it posted in a cafe window, made me giggle hope it has the same effect on you lot. Have a fab weekend. 🤗 Cc

Found it posted in a cafe window, made me giggle hope it has the same effect on ...

Carrollee

•7 years ago

11 Replies

INFORMATION ABOUT ADCAL D3 tablets.

I have been prescribed these tablets. Like some of you I would like more information about why Spinach, Rhubarb etc., are banned when taking these tablets....

I have been prescribed these tablets. Like some of you I would like more informa...

Leymay24

•7 years ago

26 Replies

Decadron/prednisone combo ?

I saw mr endrocronlogist yesterday about my prednisone non absorption. I was not able to tolerate the decadron. I had two bad falls , plus mental issues, plus...

I saw mr endrocronlogist yesterday about my prednisone non absorption. I was not...

30048

•7 years ago

4 Replies

Nearing the finishing line?

Hi All I started on 15mg of pred. in Dec ‘16 and have been reducing using the DSNS method. I stayed at 2mg for an extra 2 weeks over Christmas (extra...

Hi All I started on 15mg of pred. in Dec ‘16 and have been reducing using the DS...

Hidden

•7 years ago

9 Replies

Not a drama queen...just need advice!

I will spare the last 4 months of details regarding my GCA trials and tribulations. I am STILL trying to get into my GP so I can get a referral as I am headed...

I will spare the last 4 months of details regarding my GCA trials and tribulatio...

micheleinnaples

•7 years ago

20 Replies

First post

Hi,was diagnosed over a year ago at the age of 52 with level of 137 had managed to get down to 7mg but upped the steroids as was struggling to cope, just...

Hi,was diagnosed over a year ago at the age of 52 with level of 137 had managed ...

1964-karina

•7 years ago

11 Replies

Would anyone in Nottinghamshire be interested in forming a support group?

Hello to anyone in Nottinghamshire. I am very new to this site, but have learned so much in just the last few days, and so appreciated answers to a posting I...

Hello to anyone in Nottinghamshire. I am very new to this site, but have learne...

Hidden

•7 years ago

2 Replies

Immune system

So... if PMR is an autoimmune disease and our immune systems are compromised...does this me we are MORE likely to catch the flu/cold/cough whatever evil...

So... if PMR is an autoimmune disease and our immune systems are compromised...d...

yogabonnie

•7 years ago

9 Replies

Common sense

I Loeb's Rules of Medicine: 1. If what you're doing is working, keep doing it 2. If what you're doing is not working, stop doing it 3. If you don't know what...

I Loeb's Rules of Medicine: 1. If what you're doing is working, keep doing it 2...

daworm

•7 years ago

4 Replies

Another great resource with some interesting GCA research studies...

http://www.rheumatologynetwork.com/search/solr/Giant%20Cell%20Arteritis

micheleinnaples

•7 years ago

1 Reply

Hirdoadencarcinoma update

So some very good news Surgeon called today, all of the tumour was removed and surrounding cells so very good news, no further treatment needed until at least...

So some very good news Surgeon called today, all of the tumour was removed and s...

quincey1

•7 years ago

11 Replies

Cardiff Meeting

The next meeting is on Friday, 2nd February at 11am in the Central Library.

slewis

•7 years ago

Be the first to reply

So what has the last year done for me!

Well I started the year in great pain, I'm sure people here know what it's like before pred. Got a doctor who thought he knew what was wrong and started me on...

Well I started the year in great pain, I'm sure people here know what it's like ...

JulianJ

•7 years ago

7 Replies

Prednisone dosage

For those who have been on 60 mg predisone due to GCA diagnosis (or symptoms of...) - how long were you at 60? What tapering schedule did you follow? Thank you...

For those who have been on 60 mg predisone due to GCA diagnosis (or symptoms of....

4683Louise

•7 years ago

44 Replies

High Intensity Interval Training

So once again there is a flurry of interest in the media about the benefits of high intensity interval training. Especially as there's been a study showing...

So once again there is a flurry of interest in the media about the benefits of h...

HeronNS

•7 years ago

33 Replies

Broken bed!

Well last night after waking a few times and the regulation walks to the bathroom my bed broke! Nothing major, just a strip of wood that holds the slats in...

Well last night after waking a few times and the regulation walks to the bathroo...

JulianJ

•7 years ago

27 Replies

Two year old post

Just saw a two year old post from PMR Pro about irregular heart beat. I have not remembered that it was a part of the disease. I have recently been...

Just saw a two year old post from PMR Pro about irregular heart beat. I have not...

30048

•7 years ago

4 Replies

blong

I am a 71 year old man, diagnosed in 2013 with GCA/PMR. My heritage is European/Scandinavian. I was first put on 60 mg Prednisone and then tapered down to...

I am a 71 year old man, diagnosed in 2013 with GCA/PMR. My heritage is European...

blong

•7 years ago

4 Replies

OUTCOME OF APPOINTMENT

Hi there :) saw GO as originally planned - CRP still raises, told him about the retinal auras ans left sided head/eye pain etc. He phoned hospital, spoke to...

Hi there :) saw GO as originally planned - CRP still raises, told him about the ...

Hev1964

•7 years ago

37 Replies

Frightened by pains in my face

Diagnosed with PMR twelve months ago and now struggling to taper down from 7mg daily I am today experiencing strange pains in my face concentrated round my...

Diagnosed with PMR twelve months ago and now struggling to taper down from 7mg d...

Zebedee44

•7 years ago

15 Replies

UPDATE ON tingling in legs and arms

First a question regarding this site.. is there a way to update a post that was already made? For example: 11 days ago I posted about tingling in my legs and...

First a question regarding this site.. is there a way to update a post that was ...

Sunnyd7

•7 years ago

8 Replies

Stopping infusions

I totally realize that there aren’t many of you with GCA that are on actemra infusions. But I will ask anyhow .... in April it will be two years since I was...

I totally realize that there aren’t many of you with GCA that are on actemra inf...

Buddyk

•7 years ago

6 Replies

Flare, short but reasonable return to original Pred dose?

Dealt with Flare increasing 9mg Pred to 12, not that easy in the meantime* (21days), but now wish to get back to 9mg.Not wishing to go to a DSNS programme,...

Dealt with Flare increasing 9mg Pred to 12, not that easy in the meantime* (21da...

Hidden

•7 years ago

5 Replies

Heart of the matter

Hello I haven't been on the site for a while, but thought that some of you would like an update. I have had several tests for heart problems, and to cut a...

Hello I haven't been on the site for a while, but thought that some of you would...

bowler

•7 years ago

5 Replies

Polymyalgia Rheumatica

I am 70 years old (male). I started feeling the PMR symptoms about a month ago. My doctor confirmed I have PMR about a week ago. Other than for type 2 diabetes...

I am 70 years old (male). I started feeling the PMR symptoms about a month ago. ...

richcar

•7 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

GCA and Actemra

Extreme tiredness

Got the Lurgy, Sumat on mi chest 🙄

Bisphosphonates reassurance sought!

Side Effect of Prednisolone - Dementia?

Thought this might amuse you all

INFORMATION ABOUT ADCAL D3 tablets.

Decadron/prednisone combo ?

Nearing the finishing line?

Not a drama queen...just need advice!

First post

Would anyone in Nottinghamshire be interested in forming a support group?

Immune system

Common sense

Another great resource with some interesting GCA research studies...

Hirdoadencarcinoma update

Cardiff Meeting

So what has the last year done for me!

Prednisone dosage

High Intensity Interval Training

Broken bed!

Two year old post

blong

OUTCOME OF APPOINTMENT

Frightened by pains in my face

UPDATE ON tingling in legs and arms

Stopping infusions

Flare, short but reasonable return to original Pred dose?

Heart of the matter

Polymyalgia Rheumatica

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