Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,027 posts

All posts for January 2018

Delayed tapering symptoms?

I dropped from 8 to 7 (I can’t do 0.5 mg, they don’t have methylprednilosone in the states at less than 4 mg tabs) for 2 weeks before Christmas, tolerated...

I dropped from 8 to 7 (I can’t do 0.5 mg, they don’t have methylprednilosone in ...

Zacsmimi

•6 years ago

8 Replies

PMR / GCA local group meetings?

Hello everyone, I have been diagnosed with GCA and suffered some sight loss in October 2017. I am wondering if there are any local groups of people with these...

Hello everyone, I have been diagnosed with GCA and suffered some sight loss in O...

bribaz

•6 years ago

7 Replies

An interesting interview on Radio4 re. curcumin (turmeric derivative)

I listened to this today (@ 24 minutes in) http://www.bbc.co.uk/programmes/b09k0ng7#play and although it is not about PMR if you click on this...

I listened to this today (@ 24 minutes in) http://www.bbc.co.uk/programmes/b09k0...

Slowdown

•6 years ago

41 Replies

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Seriously... are you f**king kidding me?

Called the Rheumatologist's office today (who I'm seeing privately) to advise I have not been well since reducing from 50mg to 45 mg of Prednisolone a week...

Called the Rheumatologist's office today (who I'm seeing privately) to advise I ...

Hidden

•6 years ago

68 Replies

Off to the Hospital and home again

HI! I post this only as a warning and NOT for the MUCH DESERVED sympathy. Got the "stomach flu" --not influenza but perhaps norovirus or food poisoning...

HI! I post this only as a warning and NOT for the MUCH DESERVED sympathy. Got th...

yogabonnie

•6 years ago

40 Replies

PMR/GCA and 'BMI's

Hello all Given that most of us will have been imbibing all sorts of extra treats lately - well I have anyway - and also that most of us have become educated...

Hello all Given that most of us will have been imbibing all sorts of extra treat...

Rimmy

•6 years ago

20 Replies

Happy new year!

I hope everyone can continue finding a small wonder in each day. I wish you all health and happy growths this year. (I hope this post goes through as 2 I’ve...

I hope everyone can continue finding a small wonder in each day. I wish you all ...

klairv0yant

•6 years ago

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Happy new year!

I hope everyone can continue finding a small wonder in each day. I wish you all health and happy growths this year. (I hope this post goes through as 2 I’ve...

I hope everyone can continue finding a small wonder in each day. I wish you all ...

klairv0yant

•6 years ago

2 Replies

Sharing...

In my continual pursuit to educate myself I have bumped into some good resources. Hope they might help others too, so sharing. This is a lengthy but thorough...

In my continual pursuit to educate myself I have bumped into some good resources...

PMR2011

•6 years ago

9 Replies

A New Year

May 2018 bring you your heart's desire. Have a look at the video on this page:...

May 2018 bring you your heart's desire. Have a look at the video on this page:.....

HeronNS

•6 years ago

10 Replies

"Refractory" PMR

Thank you to all who responded to my post yesterday, your good wishes are most welcome. I would be interested to hear from other five-percenters with their...

Thank you to all who responded to my post yesterday, your good wishes are most w...

podo

•6 years ago

12 Replies

New to the group but needing support

Hi everyone, i was diagnosed in October 2016 with PMR and started on 15mg of pred plus the once a week AA. I am now down to 4mg with a bit of yoyoing around...

Hi everyone, i was diagnosed in October 2016 with PMR and started on 15mg of pre...

CallyT

•6 years ago

5 Replies

Father diagnosed with GCA with extreme vision loss

Hello everyone. I'm new to the group. I'm here because my father was diagnosed with GCA very recently. Unfortunately, he had very few, if any conclusive...

Hello everyone. I'm new to the group. I'm here because my father was diagnosed w...

tjoffrion

•6 years ago

45 Replies

Sense of smell!

You may think I am completely dotty (blame it on the dreaded brain fog) but since Christmas I can smell this strange smell all the time. At first I thought it...

You may think I am completely dotty (blame it on the dreaded brain fog) but sinc...

kathleen18

•6 years ago

38 Replies

PREDNISONE AND ASPIRIN

I have had PMR and GCA for 8 years and am now down to 7 mg of Prednisone , trying to reduce but without success. However in March 2017 I was diagnosed with...

I have had PMR and GCA for 8 years and am now down to 7 mg of Prednisone , tryin...

Heather270240

•6 years ago

36 Replies

Happy New Year

Hello All, Thank you for all the inspiring, funny posts and all the knowledge shared. You mean so much to so many. Here is a little laugh to start the year.

Hello All, Thank you for all the inspiring, funny posts and all the knowledge sh...

coda123

•6 years ago

5 Replies

Tapering Smapering

I was happy with the Rheumy's December 12th plan to "taper down" from 60 mg of Pred to 30 mg, (dropping 5 mg a week) and then slowing down and re-evaluating at...

I was happy with the Rheumy's December 12th plan to "taper down" from 60 mg of P...

Hidden

•6 years ago

31 Replies

History of very "Refractory" PMR

Although I seldom post since there are others, including the "Aunties" who know much more than I do, I thought it might be instructive to describe my case of...

Although I seldom post since there are others, including the "Aunties" who know ...

podo

•6 years ago

24 Replies

Brain fog

Fatigue and pain are in themselves bad enough but brain fog is so frustrating.My husband gets so irritated when I don’t respond or remember where I put...

Fatigue and pain are in themselves bad enough but brain fog is so frustrating.My...

Lorraine49

•6 years ago

44 Replies

What I have learned from PMR/GCA

As I look back over 2017 (a tough year for me) I ask myself, what have I learned? How to live with and manage pain and fatigue (even tho I don’t want to!) I...

As I look back over 2017 (a tough year for me) I ask myself, what have I learned...

PMR2011

•6 years ago

16 Replies

2018

My wishes for all who are suffering from GCA/PMR are that you continue to improve and are able to enjoy your new life in 2018. Happy New Year also to the...

My wishes for all who are suffering from GCA/PMR are that you continue to improv...

joat

•6 years ago

2 Replies

Serrapeptase and curcumin

Does anybody have information about Serrapeptase which has been recommended to me to reduce PMR inflammation? Does it work? Is it safe to take with...

Does anybody have information about Serrapeptase which has been recommended to m...

Susanrid

•6 years ago

7 Replies

Happy New Year

Wishing everyone a happy new year!!

Sunnyd7

•6 years ago

1 Reply

Happy New Year

I would like to wish evetyone a very Happy and Healthy New Year and say Thank you to everyone on this site for the support provided since my joining. Here's to...

I would like to wish evetyone a very Happy and Healthy New Year and say Thank yo...

CarysL

•6 years ago

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New Year wishes

Wishing you all a very happy and peaceful New Year 2018. For those still struggling with the wiles of PMR/GCA, I hope that, at the very least, 2018 brings...

Wishing you all a very happy and peaceful New Year 2018. For those still strugg...

Celtic

PMRGCAuk volunteer•6 years ago

9 Replies

Happy 2018

May I wish the Aunties (and uncle) plus all followers of this essential and wonderful site a VERY Happy New Year and here's hoping we all survive the meds, the...

May I wish the Aunties (and uncle) plus all followers of this essential and wond...

tgca

•6 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

Delayed tapering symptoms?

PMR / GCA local group meetings?

An interesting interview on Radio4 re. curcumin (turmeric derivative)

Seriously... are you f**king kidding me?

Off to the Hospital and home again

PMR/GCA and 'BMI's

Happy new year!

Happy new year!

Sharing...

A New Year

"Refractory" PMR

New to the group but needing support

Father diagnosed with GCA with extreme vision loss

Sense of smell!

PREDNISONE AND ASPIRIN

Happy New Year

Tapering Smapering

History of very "Refractory" PMR

Brain fog

What I have learned from PMR/GCA

2018

Serrapeptase and curcumin

Happy New Year

Happy New Year

New Year wishes

Happy 2018

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