CALCIUM NOT WORKING???? OH NO!!!

[yogabonnie]

OMG it's ALWAYS something isn't it??? and soon a newer study will debunk this study. How is one EVER to know for sure. I guess we need to get out and walk and lift tiny tiny weights and keep on keeping on! I did buy the Weight Vest. someone mentioned in another post and as soon as it isn't below 0 I'll start walking outside again! consumerreports.org/vitamin...

[Hidden]

I think there was similar thread a couple of days ago. If I remember correctly point made by pmrpro was that study was on "healthy" people rather than people taking pred for instance. I don't know how to link you to it but was vit d as part of header.

[yogabonnie in reply to Hidden]

oh missed it. a day late and a dollar short as usual! thanks

[Hidden in reply to yogabonnie]

Join the club. Amazed it stuck in my hole ridden memory!

[Sandy1947 in reply to Hidden]

So glad you said that! My brain matches that of my 94 year old forgetful mother!

[Hidden in reply to Sandy1947]

I booked an appointment for telephone engineer to visit my 82 yr old friend on the Monday (That was friday). I texted her Monday morning for usual check in and to ask if she wanted to walk. She said I am waiting for engineer. What engineer says me. I think she thought she was bonkers initially. If I sleep between arranging and doing something...forget it. I am 56 lol

[Sandy1947 in reply to Hidden]

Misery loves company! Glad it’s not old age and we can chalk it up to PMR or Pred! Everything falls out of my head. I make lists and lose them. Have missed Dr. appointments. Let’s just laugh about it and not fill out paperwork for the nursing home!

Just went out with a guy I dated twice a few years ago. When I saw him yesterday, I had a vague recollection of prior meetings. I learned...no more re-treads!

[yogabonnie in reply to Sandy1947]

okay that is my favorite post ever. Vague recollection of guy you dated a few years ago. Definitely NOT the one for you. ! ha! AND I wish I could have see how you handled that when he no doubt REMEMBERED and adored everything about you!!! I CANNOT imagine dating..much less with PMR and prednisone coursing through my bones and dressed in a huge puffy coat in case of falls.... YOU are an inspiration!

[Sandy1947 in reply to yogabonnie]

Funniest part was when he said I ate all the potatoes! We went to a Spanish restaurant (which I picked). They served home made thin potatoe chips with garlic shrimp, rice and vegetables! I haven’t eaten potatoes in 6 months...no night shades). Deprivation ain’t pretty! Well I just looked at him and thought I didn’t tie your hands! Believe me, I didn’t eat them all! He also could have ordered more!

[PMRpro Ambassador in reply to Hidden]

If you want to add a link:

call up the page in a new tab on your computer. Put your cursor on the bar at the top of the page just in front of https: and then click and drag to block the link. Then Control C to copy, move the cursor to where you want to insert the link and Control V to paste.

healthunlocked.com/pmrgcauk...

[Hidden in reply to PMRpro]

Thanks pmrpro. Am afraid I no longer own a working computer. That's why a lot of edits and predictive texts errors. Fat fingers on a smart phone lol.

[PMRpro Ambassador in reply to Hidden]

I suspected that while I was writing - Smartphones are a mystery to me I'm afraid!!!!! What about using a stylus?????

[Hidden in reply to PMRpro]

I have tried that. But the phone has a mind of its own. And must confess I need to read what I hace written before I press submit! And put my proper glasses on. 😇

[Hidden in reply to Hidden]

I have just tried to edit the hace to have but keeps flicking me to jinsasc profile page 😣

[PMRpro Ambassador in reply to Hidden]

Maybe it's another facet of their built-in redundancy?

[jinasc]

"Calcium and vitamin D supplements may not help prevent bone loss and fractures, according to a new study released Tuesday in the Journal of the American Medical Association".

The relevant word in this report is 'MAY'. Now if they had said 'has been proved' then that is a different kettle of fish altogether.

The paper, when read in full also refers to Vit D.

Vitamin D - it is essential that your Vit D levels are kept at the correct levels.

Lack of Vit D causes, aches and pains, (just lie PMR) and also contributes to fatigue.

So ask your Medics to test your Vit D (it is not done routinely) and then if low you need it corrected and once at the right level continue to take the recommended maintenance dose of 1000 units per day.

We slip, slap and slop and also as we age we just do not make enough.

I fell foul of too much calcium and pseudo gout ensued. Excess can turn into crystals and grit. So many years down the line - gall stones.

In the middle of my journey with GCA and on high doses of pred, I got aches and pains and was more tired.

I knew it could not be PMR.........ergo one Vit D test, asked for because of a BBC Radio 4 programme.

Test done and at the bottom end of the scale. 40,000 units per day for 10 days, aches and pains disappeared within 4 days. 1 month later another blood test, still not at the correct level so a further 5 days at 20,000 units. 1 month later another blood test and spot on. For 5 years have been taking the recommended daily dose of 1000 units per day whihc I buy OTC at 90 tablets for £5.

That is my personal experience and I am just sharing it with you. We are all different but still human.

However I did discover through this forum and two others, that people who live in Australia and California and Florida, also can and do have low levels of Vit D.

Me?

I had GCA for 5 years and on 1 Jan 2018 will start into the 7th of remission.

[Hidden in reply to jinasc]

I felt a real boost when Vit d replaced on high doses 50,000iu a week initially. Perhaps helping fatigue? I agree everyone should have it checked. I didn't have depletion as low as you but would think even slightly low vit d wouldn't help with PMR. Like you say...had slapped sunscreen on for past 15years.

[PMRpro Ambassador in reply to jinasc]

Apparently dermatologists in Australia generally have disastrously low vit D levels. And poor bone density!

[jinasc in reply to PMRpro]

Hi mate PMRpro, do you recall about 'North of Tuscany Latitude'?

Hope both OK xx

[PMRpro Ambassador in reply to jinasc]

[yogabonnie in reply to jinasc]

My vit D is okay.. the calcium worries me as I had a kidney stone (for my 70th birthday present.). ((and got hit by a car on birthday bike for my 71st!)) BUT the doc said kidney stone was from taking too much VIT C because I thought I was getting a cold. I swear...MEDS!!!!!

[Joydeck]

Regarding bone fracture prevention, the merits of calcium supplements have been much questioned in recent years, and early research on the efficacy of vitamin D for a range of diseases is now largely discredited. Osteoporosis medicines fare little better. A familiar story with nutrition and medical research.

Thankfully, good diet, exercise, sleep and sunlight have gained in repute.

[Sandy1947]

How do you live in the Minnesota refrigerator! I saw the accidents on TV, chilling temps and could only think of you and PMR pain. I debate going to my apartment in NY this weekend because I have an old dog and going up and down the elevator to take her out in the cold is horrible. All the people and smells distract her so we are out for a long time. It’s much easier to just let her out from my house. I guess I’ll just bundle up and force myself to go! NY is far more stimulating than boring NJ even resting is better.

[yogabonnie in reply to Sandy1947]

you were up early! And off to NYC! love it. wish I were too.