Hi everyone, haven't posted for a while but I am an avid reader every day. I am a PMR sufferer and have been on Pred for just over a year. Started at 15mg and now down to 12mg. It has not been straightforward and I have never had raised inflammatory markers, so adjust Pred according to symptoms. I am under a Rhuematologist who I see every 3mths.
Have always suffered with pain associated with PMR particularly in hips, thighs and generally the pelvic girdle. Initial dose of Pred improved my pre-Pred symptoms by around 70 percent. Rhuemy now thinks secondary Fibromyalgia, and a Dexa scan last Sept 2015 revealed osteoporosis in 2 of the 3 areas tested. The worst being a T. Score of -3 in lower spine.
I still work part time in education and definitely have good or bad days depending on what PMR chooses to throw at me on the day!!! I am 58 years old, and try to rest as much as I can, I also have Physio every week to try to keep my muscles as strong as possible. My Primary care has been reasonable, although my Doctor has little knowledge of PMR and relies on Rheumatologists letters of recommendation and this can take frustrating time lapses.
My question is.... Has anyone experience or knowledge of the drug Denosumab which my Rheumatologist has recommended for osteoporosis? I take Calci-chew every day and eat a healthy calcium included diet. Is a T. Score of -3 something to justify the use of this treatment or would it be reasonable to have a repeat Dexa Scan in say 6-12 months time to identify further deterioration. I am reluctant to add another drug into my already suffering body that has horrible known side effects (similar to PMR!!!) if it is not yet needed. Any advice would be so greatly appreciated. I wish everyone a pain free and peaceful day. Kind Regards Jane.