I have been seeing the same rheumy for almost four years and a year in he decided that I didn't have PMR as my ESR was normal. He then revised it some months later and agreed that I did have PMR with a touch of Fibro. thrown in. Last month he again told me that he thought I did not have PMR but it was 'all in my mind' and I was using the steroids as a crutch. Telling him I really didn't want to go on looking like this...total loss of identity, 4stone plus etc made no impact. So.......
today I saw a different rheumy, recommended by one of the wonderful people on this forum and I think my life is about to change. We already have a plan of treatment and have taken the first steps and I am feeling more positive than I have felt for years.
Thank you everyone, this has proved that if you feel you are not making progress with your treatment....ask to change........
I owe you all a huge debt for your help and advice,
Ida