OK. This is a rant, and won't help anybody, except maybe me. I'm back to trying, trying, trying. I get up at 1:00 AM. With water I take something to coat my stomach. (My esophagus is a mess. They routinely stretch it. So the gastro guy is yet another doctor.) At 2:00 AM I take 8 mg. of Pred. I should and sometimes do eat before this and take a sugar reading. Then maybe I sleep. I'm up at some time in the morning. The Pred by then has raised my sugar. I eat, & exercise on the treadmill for about 35 minutes. Hopefully this takes care of high sugar for the day. When the Pred begins to wear off my blood pressure rises. I think that it's the antibodies gearing up (as the Pred begins to wear off) and attacking the linings of the arteries inflaming them. So I try to eat diuretic food like parsley and celery. (The docs prescribe diuretics for high BP. If this doesn't work then it's another doctor.) I try for Yoga at 5:00 PM or 6:00 PM mostly by myself, so it's not very strenuous. This seems to keep the sugar lower in general and makes the first morning sugar reading normal (at least if I don't take Pred before sunup.) Maybe I will restart doing weights at the gym if I have nothing else to do and am not in bed!!!!!! My eyes won't let me drive any more. (So I have to walk to the gym.) Maybe I can patch one eye and try to drive. (I bought a patch, but it has not yet been delivered.) It seems that my eye problem is a 6th cranial nerve palsey, cross eyed-ness (diploma), and the eye turning in ("o" something). All three do something slightly different to make my vision wacky, but I think that it's all in one eye. The term is that I have trouble "navigating." So sometimes I walk where I want to go...... equaling another attempt at getting well. But more often I just can't manage. Then wine, yes red wine. Something pleasant. Vasodilator, and corresponds to the Pred's stopping raising my sugar after some hours after taking dose. Liver digests wine and stops putting glycogen (sugar) in my system during that digestion. By the time that the liver is done, the Pred has stopped raising my sugar. So the actual wine doesn't raise it as it would for a regular old type II diabetic. Hope that my sleep before 1:00 AM is good for blood pressure. I know that some of us wake up blind because our pressure lowers at night and the oxygenated blood to the optic nerve is insufficient..... But as my once daily Pred dose abates my BP goes up. Since I take Pred at 2:00 AM I suspect that my pressure is not low when I'm sleeping before 1:00 AM. (Maybe that's not such a bad thing Re: Optic nerve.) The Pred lowers the blood pressure. So maybe all is well between 1:00 AM and when the Pred raises the sugar. I'm at an all out war with this thing (GCA & sometimes PMR). If I every go into remission I'm trying to come out of this as other than a relatively immobile, old woman. It's lucky that I have my own business and I've been able to wind it down. I have time for nothing else than this personal war. And often I'm too tired and depressed to do all of this. I started recently instead of just tolerating the funk and constantly going to bed. Maybe I won't be able to keep it up. I know that I'm lucky that I'm not blind. But I'm sooooo frustrated. Got it in April 2013. Diagnosed in November 2013. Use PNMpro's reducing method, but now only when I'm pretty comfortable with the pain and tiredness at an existing dose. Otherwise even with the slow lowering of dosage, I flair. With the exercise, tiredness, sweats, etc., I never seem to be properly "dressed." Therefore, I'm never looking my best. I know that you all are in the same boat. There is no one other than you who understands. Thanks for listening.
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