Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for March 2016

ENTERIC COATING....MAY NEED SOME WARNINGS

Having just gone through my worst flare of my 15 months of actively dealing with GCA and PMR......I've ended up spending most of my time in bed with time to...

Having just gone through my worst flare of my 15 months of actively dealing with...

cjatthesea

•8 years ago

4 Replies

Really confused following GP visit. Help please.

I am today feeling totally confused, frustrated and bewildered. Any advise would be greatly appreciated please. My story in as brief as I can. I was diagnosed...

I am today feeling totally confused, frustrated and bewildered. Any advise would...

wooh66

•8 years ago

11 Replies

Anaemia

Has anyone had sudden onset of anaemia taking steroids? Been seeing Dr over the last month or so after dropping from 5 to 4, had flare so have been put up to...

Has anyone had sudden onset of anaemia taking steroids? Been seeing Dr over the ...

Janniew

•8 years ago

7 Replies

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Alternative therapy update

Still doing well with the low level light therapy. New people who haven't been following my progress so unsure what I'm talking about can go to my profile and...

Still doing well with the low level light therapy. New people who haven't been ...

HeronNS

•8 years ago

5 Replies

Tray

The photo is in response to Celtics reply ( thank you) if any one can understand it for me. For some reason the foto has loaded upside down. ... regarding...

The photo is in response to Celtics reply ( thank you) if any one can understa...

pmrdec112014

•8 years ago

6 Replies

Tray

Hi! Just bn to see gp re jaw pain and headaches although typically the jaw pain has settled this last week. ( It has taken me over 2 weeks to see my own gp)...

Hi! Just bn to see gp re jaw pain and headaches although typically the jaw pain ...

pmrdec112014

•8 years ago

3 Replies

Azathioprine side effects?

Hi, just wanted to share what's been happening with my Mum who has had PMR for a few years now, although the rheumatologist thinks it might now be fibromyalgia...

Hi, just wanted to share what's been happening with my Mum who has had PMR for a...

Jorobinson

•8 years ago

8 Replies

Breast tenderness.

Hi can anyone tell me if breast tenderness is a side effect when reducing on prednisolone? Gone from 15mgs last August down to 9 mgs this week but breast...

Hi can anyone tell me if breast tenderness is a side effect when reducing on pre...

withington1961

•8 years ago

10 Replies

Tcz

I have been reading on other websites about TCZ. Apparently it is being used now for the treatment of GCA in Europe and the US. Last I heard on this website...

I have been reading on other websites about TCZ. Apparently it is being used no...

Nap1

•8 years ago

1 Reply

NHS public consultation on Tocilizumab in GCA

Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune...

Tocilizumab is one of the new generation of 'biologic' drugs which are being dev...

Polywotsit

PMRGCAuk team member•8 years ago

1 Reply

Dose relative to body mass

I have been wondering over the last week or so if there has been any research conducted regarding this subject. Is it the case that someone who is a large...

I have been wondering over the last week or so if there has been any research co...

Hidden

•8 years ago

29 Replies

Arrogant Rheumatologists

Had the most frustrating appointment with my Consultant. I have had a lot of additional pressures in the last 6 months. Second Cochlar implant and business...

Had the most frustrating appointment with my Consultant. I have had a lot of add...

Suetum

•8 years ago

20 Replies

Emotions!!

Goodness I am finding out how much emotional turmoil can effect PMR! Have just gone through 9 weeks of worry as my son, aged 30, had to have chemo following...

Goodness I am finding out how much emotional turmoil can effect PMR! Have just ...

Pollyanna16

•8 years ago

4 Replies

Hot flushes/sweats

Hi everyone. I havent seen anyone mentioning hot flushes or sweats on here. I get them all the time night and day. Dont think its menopause as Im 61 and went...

Hi everyone. I havent seen anyone mentioning hot flushes or sweats on here. I ge...

Turkey55

•8 years ago

12 Replies

Alendronic Acid not necessary.

There are many foods that I will not eat now because it is a problem with actual chewing some things th continued and is still grown and I am no 78 years. My...

There are many foods that I will not eat now because it is a problem with actual...

mavisesson

•8 years ago

3 Replies

~What immunity have we with a reduced steroid intake for our PMR? ~

Continuing to struggle to get past 15mg Hydrocort, equivalent to 3mg Pred. As soon as I have dropped my morning dose from 7.5mg to 5mg I can confidently say...

Continuing to struggle to get past 15mg Hydrocort, equivalent to 3mg Pred. As s...

Megams

•8 years ago

11 Replies

Help and advise need urgently.

I've come away from home without my steroids and I know it can be dangerous to go cold turkey. It's a Sunday my usual chemist not open so can't call them ....

I've come away from home without my steroids and I know it can be dangerous to g...

369yds

•8 years ago

16 Replies

Tea and sympathy

I live in Hertfordshire and am looking for other people with PMR living locally to meet for a coffee ☕ maybe every 6 weeks or so for a chat and support....

I live in Hertfordshire and am looking for other people with PMR living locally ...

m33ary

•8 years ago

12 Replies

Prednisalone tiredness

I presently take 3mg prednisalone about 9am. But get very tired around 2pm. I am thinking of splitting the dose to 2mg in morning and 1mg in the afternoon. Is...

I presently take 3mg prednisalone about 9am. But get very tired around 2pm. I a...

Shandon1

•8 years ago

3 Replies

Thoroughly fed up!

Since being diagnosed with PMR last October I have really gone down hill. PMR is enough to contend with, the, two months ago I was told I needed two new hips,...

Since being diagnosed with PMR last October I have really gone down hill. PMR i...

Jeanjean16

•8 years ago

5 Replies

Post Temporal Artery Biopsy tremor

Hey all other GCA sufferers.....I had a TA Biopsy after being in hospital for 5days before General Surgeon could find the Artery .... all the other Drs working...

Hey all other GCA sufferers.....I had a TA Biopsy after being in hospital for 5d...

8sandylou

•8 years ago

24 Replies

One Giant Flare-Up

We thought we were doing fine until last night. Spent 5 hours in the hospital with a methylprednisolone and hydromorphone IV injections. Her head pain was...

We thought we were doing fine until last night. Spent 5 hours in the hospital wi...

Jim-CJ

•8 years ago

12 Replies

Osteoporosis

Does anyone use any drugs for osteoporosis other than biphosphonates? I have osteoporosis. I don't want to get into a discussion about biphosphonates as I'm...

Does anyone use any drugs for osteoporosis other than biphosphonates? I have ost...

Skodadet

•8 years ago

15 Replies

Step counter

My beloved stepcounter has given up had it 15+years friend got it for me from weight watchers . Had look in sports shop they seem to be all singing and...

My beloved stepcounter has given up had it 15+years friend got it for me from w...

olive2709

•8 years ago

9 Replies

Studying research

A few days ago I posted links to a couple of articles but missed seeing this one until today so here it is for your interest:...

A few days ago I posted links to a couple of articles but missed seeing this one...

HeronNS

•8 years ago

7 Replies

Bruising

I have been on long term steroids which has caused my skin to be very thin and papery and easily bruised [ I do use Diprobase ] however my skin is...

I have been on long term steroids which has caused my skin to be very thin and p...

bowler

•8 years ago

32 Replies

Muscle pain/steroids

Please can someone explain to me.....do steroids just take away muscle pain from PMR or any and all muscle pain? I am becoming totally confused since my...

Please can someone explain to me.....do steroids just take away muscle pain from...

Ida-June128

•8 years ago

5 Replies

~Integrated therapy to complement main stream medical~

As with a few other souls on this PMR/GCA + site I too am interested in alternative therapies where possible and research as much as I can before making a...

As with a few other souls on this PMR/GCA + site I too am interested in alternat...

Megams

•8 years ago

7 Replies

Polymyalgia Rheumatica + GCA meeting for Devon & Cornwall Area

This years meeting dates and new venue. To be held in room 3 Saltash Wesley Methodist Church Callington Road Saltash PL12 6LA. They hold a café every...

This years meeting dates and new venue. To be held in room 3 Saltash Wesley Met...

Hidden

•8 years ago

3 Replies

Research on inflammatory arthritis

http://www.arthritisresearchuk.org/news/press-releases/2016/january/microbiome.aspx

http://www.arthritisresearchuk.org/news/press-releases/2016/january/microbiome.a...

HeronNS

•8 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2016

ENTERIC COATING....MAY NEED SOME WARNINGS

Really confused following GP visit. Help please.

Anaemia

Alternative therapy update

Tray

Tray

Azathioprine side effects?

Breast tenderness.

Tcz

NHS public consultation on Tocilizumab in GCA

Dose relative to body mass

Arrogant Rheumatologists

Emotions!!

Hot flushes/sweats

Alendronic Acid not necessary.

~What immunity have we with a reduced steroid intake for our PMR? ~

Help and advise need urgently.

Tea and sympathy

Prednisalone tiredness

Thoroughly fed up!

Post Temporal Artery Biopsy tremor

One Giant Flare-Up

Osteoporosis

Step counter

Studying research

Bruising

Muscle pain/steroids

~Integrated therapy to complement main stream medical~

Polymyalgia Rheumatica + GCA meeting for Devon & Cornwall Area

Research on inflammatory arthritis

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