Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,272 members • 37,959 posts

All posts for March 2016

tendons and ligaments shoulder after pmr in remission

Have been off pred and mtx for one year . I am able to do whatever i walk 4 to 5 miles a day and feel ok. Shoulder continues to be painful when extending arm...

Have been off pred and mtx for one year . I am able to do whatever i walk 4 to 5...

•8 years ago

From NZ

Am new to this site as I am in NZ & can only find info here. Came down with PMR aged 53, 2 years & 4 months ago. It took 9 months before doctors here took...

Am new to this site as I am in NZ & can only find info here. Came down with PMR ...

•8 years ago

What to do?

Feeling very frustrated and angry as hips & shoulder pain has come back. I have been reducing the pred by 1mg per month from base of 15mg (well that's after 2...

Feeling very frustrated and angry as hips & shoulder pain has come back. I have ...

•8 years ago

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Temporal Artery Location Difficulty Locating for Biopsy

I have just had a Temporal Arteritis Biopsy against my GPs wishes but almost demanded by Surgeon hospital sent me to.....Operating Surgeon was very hesitant as...

I have just had a Temporal Arteritis Biopsy against my GPs wishes but almost dem...

•8 years ago

New to this site

Hi, nice to find the site. Diagnosed April 2015 and spent 7 weeks in pain before seeing rheumy. Started @15 mg and had to go to 30. Long year. Now at 6 as of...

Hi, nice to find the site. Diagnosed April 2015 and spent 7 weeks in pain before...

•8 years ago

Statins

I've been prescribed an atorvastin statin. Has anyone any experience/knowledge of taking statins with pmrgca? How did it go muscular aches wise? I'm currently...

I've been prescribed an atorvastin statin. Has anyone any experience/knowledge o...

•8 years ago

The Alendronic acid dilemma

Hi, Automatically given AA on PMR diagnosis. 3 months later , I discontinued it after researching potential problems, suffering heartburn, discussion with my...

Hi, Automatically given AA on PMR diagnosis. 3 months later , I discontinued i...

•8 years ago

Tray

Hi I am wondering if this is any thing to worry about but I have started getting headaches again ( I had severe ones for some months prior to PMR ) and also I...

Hi I am wondering if this is any thing to worry about but I have started getting...

•8 years ago

withdrawal & flares

What a journey we PMR/GCA people have! We become so knowledgeable about our condition and although we almost become experts on how the condition affects us as...

What a journey we PMR/GCA people have! We become so knowledgeable about our con...

•8 years ago

Alternative therapies

Just a little update. I'm starting to taper to 5 mg prednisone, continue to benefit from low intensity light therapy offered by a physiotherapist, plus my...

Just a little update. I'm starting to taper to 5 mg prednisone, continue to ben...

•8 years ago

##%** M25 made me miss my Rheumatologist Appointment

I am so fed up! Because I had to use the M25 to get to my Rheumy, I arrived 30 mins late to find he had disappeared having finished the clinic. Everything...

I am so fed up! Because I had to use the M25 to get to my Rheumy, I arrived 30 m...

•8 years ago

Positive thoughts

We lost our lovely Dobie just before Christmas and missed her terribly. Looked at getting a rescue, but they can be a bit risky when you have grandchildren....

We lost our lovely Dobie just before Christmas and missed her terribly. Looked ...

•8 years ago

Please don't give medical advice, however knowledgeable you are!

Forum friends - please try and refrain from giving medical advice! I know you know a good deal more about PMR and GCA than most GPs do, but what we don't have...

Forum friends - please try and refrain from giving medical advice! I know you k...

PMRGCAuk team member•8 years ago

Polymyalgia is it or isn't it

18months ago I was diagnosed by my doctor as having polymyalgia. I had been having lots of stiffness and pain in my left shoulder and neck and some in my...

18months ago I was diagnosed by my doctor as having polymyalgia. I had been havi...

•8 years ago

Adrenal function

Sorry for repeating an old topic but going back through old posts can't find what I am looking for . I have GCA, been on Pred for 14 months. I tapered to...

Sorry for repeating an old topic but going back through old posts can't find wha...

•8 years ago

How much pain is reasonable?

Diagnosed with PMR in July 2015, I was started on 15mg of prednisone. I have used the DSNS regime to reduce to 8.5mg which I take once a day. However, before...

Diagnosed with PMR in July 2015, I was started on 15mg of prednisone. I have us...

•8 years ago

Just fed up and wonder what life is about

At 50 years of age , I'm just wondering what life is all about , I've been married for 20 years got twins aged 18 years old , I'm now living in Cornwall after...

At 50 years of age , I'm just wondering what life is all about , I've been marri...

•8 years ago

Guidance please on pred reduction

I was diagnosed with PMR last March and put on 15mg pred. which I reduced very slowly, stayed on 10mg for 2 months, then have been reducing by a half every...

I was diagnosed with PMR last March and put on 15mg pred. which I reduced very s...

•8 years ago

Pain under ribs and cystitis with PMR

I was diagnosed with PMR in June 2015, I was started on 15mgs and had immediate relief from very painful arms that I could hardly lift. After great struggles...

I was diagnosed with PMR in June 2015, I was started on 15mgs and had immediate ...

•8 years ago

Travel insurance

Hi all, I would like to travel from Ontario to Scotland this summer but I'm not sure whether this is a good idea. I was diagnosed (sort of, negative temporal...

Hi all, I would like to travel from Ontario to Scotland this summer but I'm not ...

•8 years ago

Horlicks for osteopenia?

Diagnosed with PMR and GCA in January, 2015, an early DEXA scan showed up osteopenia and I was prescribed Calceos tablets. My diet had been rather lacking in...

Diagnosed with PMR and GCA in January, 2015, an early DEXA scan showed up osteop...

61EllieCheshire

•8 years ago

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