NHS public consultation on Tocilizumab in GCA - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

NHS public consultation on Tocilizumab in GCA

Polywotsit profile image
PolywotsitPMRGCAuk team member
1 Reply

Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce the cumulative dose of steroids over time. It has appeared to be particularly promising for people who don't have a good reaction to prednisolone. Of course, it is mega-expensive! But the drug company Roche has been engaged in international trials for a couple of years and we are eagerly awaiting the results. However, the National Health Service has decided to put the use of TCZ out for public consultation from now until July. Do have a look at the documents if you are interested, and respond to the consultation if you feel moved to!

Thanks!

If you are interested, the consultation documents are here - just scroll down to find GCA in the list:

engage.england.nhs.uk/consu...

Written by
Polywotsit profile image
Polywotsit
PMRGCAuk team member
To view profiles and participate in discussions please or .
Read more about...
1 Reply
PMRpro profile image
PMRproAmbassador

Is this being put out now in the hope of preempting the results of the on-going study?

I suppose if this goes through now it will be a case of waiting until 2020 when TCZ comes out of patent protection.

You may also like...

RE GCA and Tocilizumab

commonly experienced with this drug, etc etc. I have read about how this drug has a \\"black...

Can you 'demand' Tocilizumab for GCA?

but they are unable to prescribe tocilizumab unless I have a relapse. Not having a deal of faith in...

GCA and Tocilizumab

cholesterol - 7 - not sure how bad 7 is and whether the drug has caused it. I have never had high...

GCA and Tocilizumab

18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6...

Tocilizumab for GCA

Someone has just posted on the patient.info forum that on October 4th 2016 tocilizumab (Actrema) was