Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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All posts for March 2016

PAIN FREE AT LAST – FOR NOW – and Myofascial Pain - my personal journey with GCA

PAIN FREE AT LAST – FOR NOW – and Myofascial Pain - my personal journey with GCA I am 74; was diagnosed May 4th 2015 and started on 60 mg Pred. Now, over...

PAIN FREE AT LAST – FOR NOW – and Myofascial Pain - my personal journey with GCA...

Hidden

•8 years ago

15 Replies

Log in

Why when I have an email from health unlocked and I click on the message to read the complete text am I required to input my email address again together with...

Why when I have an email from health unlocked and I click on the message to read...

Parijm

•8 years ago

8 Replies

Group Meetings

Here is copy of the meetings being held in Taunton

rogerthegov

•8 years ago

1 Reply

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Bad cold

Hi Again just posting for advice really. Was on 10.5 in January but had a really bad flare with head pain as well as in arms and legs ( no eye problems)....

Hi Again just posting for advice really. Was on 10.5 in January but had a really...

Jackoh

•8 years ago

7 Replies

Jaw pain is it due to PMR or gca

Hi I haven't posted for a few weeks, I have had nasty chest infection for 3⃣ weeks and been feeling awful. Think it has made PMR worse. Can anyone help with...

Hi I haven't posted for a few weeks, I have had nasty chest infection for 3⃣ wee...

Craftnut68

•8 years ago

21 Replies

Planum Meningioma - Eye turning in

I have not posted in a while. Please don't just accept that GCA makes you cross eyed and you have to live with this. I was on holiday in September 2015 and...

I have not posted in a while. Please don't just accept that GCA makes you cross ...

Asbeck

•8 years ago

9 Replies

South West PMR Group

We meet in Taunton and Plymouth for info contact pmrgca.southwest@yahoo.co.uk or telephone the Help Line 0300 111 5090

We meet in Taunton and Plymouth for info contact pmrgca.southwest@yahoo.co.uk o...

rogerthegov

•8 years ago

3 Replies

Bisphosphonates

Just shared this to the Bone Health community, but thought info would be of interest here as well: On another forum someone has posted information about two...

Just shared this to the Bone Health community, but thought info would be of inte...

HeronNS

•8 years ago

5 Replies

Increasing dose

There is a lot of info regarding tapering but if you are started on to low of a dose of pred is it safe for the Dr to increase, mine just went from 5 mil once...

There is a lot of info regarding tapering but if you are started on to low of a ...

Shastring

•8 years ago

10 Replies

Hip surgery

I have seen hip surgeon today, he will not operate until I get down to at least 4 m.g of steroids daily.....I am now on 10.....any advice on how quickly I can...

I have seen hip surgeon today, he will not operate until I get down to at least ...

Jeanjean16

•8 years ago

5 Replies

Any ideas gratefully received

Good Morning Fellow PMR?GCA sufferers. I have had PMR since Nov 2013 -- or that is when I was diagnosed. I saw a Rheumy last October and have been tapering as...

Good Morning Fellow PMR?GCA sufferers. I have had PMR since Nov 2013 -- or that ...

Judigardener

•8 years ago

7 Replies

Your rights as a patient

Paul Howard, the Administrator on the Lupus forum, posted this the other day: "I have been asked to make this very helpful link from Citizens Advice more...

Paul Howard, the Administrator on the Lupus forum, posted this the other day: "...

PMRpro

Ambassador•8 years ago

3 Replies

Pain & more pain

Hello, recently diagnosed with PR & GCA and put on 5 mil once a day of prednisone, now put on 10 mil once a day. Not sure if I should take 5 in morning & 5 at...

Hello, recently diagnosed with PR & GCA and put on 5 mil once a day of prednison...

Shastring

•8 years ago

28 Replies

Reduction plan after 'a flare'

After getting down to 5 mg Prednisolone very slowly over 4 years I am now experiencing a PMR flare following months of serious sleep deprivation (absolute...

After getting down to 5 mg Prednisolone very slowly over 4 years I am now experi...

Soon70

•8 years ago

9 Replies

Urgently Requesting Help & Support.

Dear Pmr sufferers, I am in shock as I heard that my 53 yr old very fit husband tragically died yesterday. I suffer from Pmr and the shock seems to much to...

Dear Pmr sufferers, I am in shock as I heard that my 53 yr old very fit husband...

Moonmaiden1

•8 years ago

31 Replies

Walking and balance

Diagnosed for second time with pmr. Has anyone found that steroids have affected their balance or walking? I'm on 17 mg and reducing slowly. it's like my brain...

Diagnosed for second time with pmr. Has anyone found that steroids have affected...

Sheribrim

•8 years ago

29 Replies

Pain in lower lumber region.

I was diagnosed with PMR last October, in January I was also told I needed a hip replacement due yo osteoarthritis. I have been reducing steroids gradually...

I was diagnosed with PMR last October, in January I was also told I needed a hi...

Jeanjean16

•8 years ago

3 Replies

Cumulative Prednisone

When taking Prednisone, is it cumulative in the veins. In other words, how long does a daily dose last. As an example - If you start with 19mg on day one and...

When taking Prednisone, is it cumulative in the veins. In other words, how long ...

Jim-CJ

•8 years ago

17 Replies

Spoons Theory

A couple of weeks ago I found myself trying to explain to my husband,( who I have to say is very supportive and will do anything I ask) , about my limited...

A couple of weeks ago I found myself trying to explain to my husband,( who I hav...

linda49

•8 years ago

14 Replies

Tray

Hi again. I posted over the weekend regarding headache and funny jaw. I emailed my gp and today he rang ( only works part time as semi retired) he has ordered...

Hi again. I posted over the weekend regarding headache and funny jaw. I emailed ...

pmrdec112014

•8 years ago

3 Replies

Got to the Rheumy this time!

I had my Rheumy appointment today ( after missing it on Friday). This is the second time I have seen Dr Hughes in Chertsey and both times I have found him so...

I had my Rheumy appointment today ( after missing it on Friday). This is the sec...

suzy1959

•8 years ago

21 Replies

PMR and Arthritis?

Dear All, This is such a great forum - I've learnt so much about PMR. Question: On 15mgs of Pred I have no PMR symptoms, however I have lower back pain. Is...

Dear All, This is such a great forum - I've learnt so much about PMR. Question: ...

mariacwelland

•8 years ago

4 Replies

Prednisone Reduction Plan

I am the husband of a GCA wife. We have been struggling with Prednisone reduction for over a year. We have found that my wife's steady state level is 20mg, but...

I am the husband of a GCA wife. We have been struggling with Prednisone reductio...

Jim-CJ

•8 years ago

4 Replies

Not sleeping and tummy probs

Hi am I correct in thinking the tummy problems and not being able to sleep are due to steroids The only way I can explain the tummy prob is that it feels like...

Hi am I correct in thinking the tummy problems and not being able to sleep are d...

Rusty8

•8 years ago

6 Replies

PMR or not?

I had a totally confusing visit with my rheumatologist on Monday. After almost 4 years he now says he is not sure if I have PMR. I reminded him that he said...

I had a totally confusing visit with my rheumatologist on Monday. After almost ...

Ida-June128

•8 years ago

7 Replies

Great I haven't got pmr but

so follow up to my post `is it or isn`t it polymyalgia well just lets say orthopaedic consultant said what I have now is not caused by polymyalgia , but I...

so follow up to my post `is it or isn`t it polymyalgia well just lets say ortho...

katking

•8 years ago

10 Replies

Breaking through the 10mg barrier

Hi, I was diagnosed with Polymyalgia Rheumatica plus some of the symptoms of GCA in June 2015 and started off on 50 mg of Prednisolone daily reducing every...

Hi, I was diagnosed with Polymyalgia Rheumatica plus some of the symptoms of GC...

Hampshire_Lass

•8 years ago

40 Replies

Side effects do go away

You all have been so gracious and helpful sharing your experiences withTA/GCA, I want to thank you! I have at many months, while decreasing my dosage, read...

You all have been so gracious and helpful sharing your experiences withTA/GCA, I...

grannma

•8 years ago

6 Replies

Adrenal suppression

Just found out one of the reasons I'm struggling to get the Pred dose below 7.5 having been on steroids 3 and a half years. Synacthen test shows adrenal...

Just found out one of the reasons I'm struggling to get the Pred dose below 7.5 ...

tangocharlie

•8 years ago

10 Replies

These pesky steroids....

Hi I am feeling a bit sorry for myself at the moment- I regularly read posts from people who started on quite a high level of steroids and have managed to...

Hi I am feeling a bit sorry for myself at the moment- I regularly read posts fro...

wendythom

•8 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2016

PAIN FREE AT LAST – FOR NOW – and Myofascial Pain - my personal journey with GCA

Log in

Group Meetings

Bad cold

Jaw pain is it due to PMR or gca

Planum Meningioma - Eye turning in

South West PMR Group

Bisphosphonates

Increasing dose

Hip surgery

Any ideas gratefully received

Your rights as a patient

Pain & more pain

Reduction plan after 'a flare'

Urgently Requesting Help & Support.

Walking and balance

Pain in lower lumber region.

Cumulative Prednisone

Spoons Theory

Tray

Got to the Rheumy this time!

PMR and Arthritis?

Prednisone Reduction Plan

Not sleeping and tummy probs

PMR or not?

Great I haven't got pmr but

Breaking through the 10mg barrier

Side effects do go away

Adrenal suppression

These pesky steroids....

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