Hi, just wanted to share what's been happening with my Mum who has had PMR for a few years now, although the rheumatologist thinks it might now be fibromyalgia as her inflammatory markers are not so raised. She can never get below 5mg pred without relapsing and can't tolerate Mtx. So was started on Azathioprine and reduced from 10mg pred right down to 7.5mg, was not too bad for a couple of weeks, then started getting classic aching in arms, shoulders etc and generally unwell. G.P. Suggested stopping Azathioprine for a few days, then restarting which she did yesterday and began vomitting violently and fetching up bile. Today she is still really achey and low. I feel she needs to up the pred and try really slow reduction. Just so fed up with consultant sticking an 80 year old on toxic drugs for the sake of just slowly reducing steroids or staying on a low dose and letting her have a life. I think the damage is already done as far as pred. side effects and am really worried about yesterday's episode. Would value any advice. Thanks for listening
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