I was doing so well and here we go again.!! I have been reducing my pred very slowly since a year ago July. I had it down last week to 8 mg a day after being at each dose for a month. Then 3 days later I developed a severe pain in my right shoulder blade which lasted 24 hours then disappeared and then returned in the left shoulder blade. The pain over the past week has lessened but now both shoulder blades ache terribly, and have a burning sensation in them. I have been now at 10 pred a day for a week , after talking with my rheumy. He ordered more blood tests, I have them once a month, and in one week my PMR had risen from 0.8 to 2.6 .The USA rate is 0.-0.5 and my ESR rate had risen from 28 to 45. Yesterday morning I had the strangest sensation in my right shoulder blade like a severe attack of pins and needles. I have raised my red to 12 today to hopefully feel better. Has anyone had these kind of symptoms? I have GCA/PMR. I am taking a trip to England leaving San Francisco on the 28th OCT. and I want to be more like my old self by then. I may have been doing too much as I have been walking 5-8 miles a day, plus every other day lifting weights and other exercises. I hate this aching it is quite debilitating. I still work also and am 77. Any advice on this would be grateful appreciated. This site is wonderful. Thank you all.
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