I was diagnosed with GCA in August 2014 and have been on steroids since then reducing from 40 mg to 10 mg and on methotrexate. I am very disappointed to be having a lot of pain in my back, hips, knees and thighs and some pain again in my head for the past 3 weeks (since the pred dose was reduced from 12.5 to 10). I don't know if the pain is caused by developing PMR or by coming off the steroids. I thought Methotrexate was "the steroid sparing drug" so I wonder what it is doing? I have an appointment with my GP (who diagnosed the GCA originally) on Friday and a physio on the same day.
I wonder if anyone has had a similar experience? I feel confused about what is going on.