When does one have a normal head again. I'd like to get back to planet earth.

[Buenavista]

Hi guys, can anyone give me some help. I have come from 30mg of Ped, done to 8mg over a period of 12 months. Although I have had PMR for 16 months, but didn't know it. I have had 2 relapses, where I have gone up for a booster, then gradually came down again. When does my head get back to normal, as I have a dizzy head and the worst memory in the world. The pain I can put up with, but the head I could do without. The only other side affect I have, is some days I run out of energy and other days I have no problem. Is there any good news.

Regards Buenavista

[Celtic PMRGCAuk volunteer]

Hello Buenavista

Ah I well remember the "dizzy head", or steroid brain fog as many of us call it! Yes, there is good news - it will definitely improve as you get a little lower on the dose, as will the low energy days. Meanwhile give yourself plenty of TLC on those days.

[2watsons]

Yes gets better ,but slow i have just gone down in 7months from 60 to now 8 ,some times have felt awful ,just wanted to sleep and no go ,it all has no pattern going down last month felt good this month that old feeling again little energy so fingers crossed will improve as time goes by .Take care.

[Buenavista in reply to 2watsons]

Thanks guys for replying. Can't wait for things to get better. Would like to be able to think straight again and have my energy back.