hi i have just found this site i was lucky to be diagnosed with PMR as chief suspect on my first visit to my GP complaining of pains in arms legs and especially knees( my doctors rule of thumb is if you have difficulty standing after sitting on a toilet it is a hint to investigate PMR, after checking for knee movement which was fine ie no wear and tear joint problems she put me on 30 mg pred to confirm her diagnosis - i have seen elsewhere references to steroids having an effect in just 4 hours i found this too within 6 hours it was definately reducing pain within 24 hours just tenderness after almost 3 months of increasing pain i cant say that i was bedridden with PMR since i would get out of bed to relieve the pain it had gottten to the stage of hurting to excercise even gently and hurting even more to rest i expected not to be able to get out of a bath within weeks at that point knowing nothing of PMR i went to a doctor who had heard of it At 58 i had written off any chance of getting back to work due to the pain and exhaustion
now my question is why isnt more known about the condition all i am told is it may be a virus or it could be caused by trauma in my own case i had given up smoking about 2-3 weeks before onset of PMR and i was a very experienced and dedicated smoker giving up by will power certainly took its toll mentally possibly physically as well - bad news is that you cant reverse a trauma by starting to smoke again shame i would be the first holier than thou smoker as opposed to the millions of holier than thou non smokers
but it may have nothing to do with a trauma quitting smoking or otherwise
i have reduced my steroids since the initial dose in mid november from 30 mg to 5 mg which seems to be far faster than anyone else is talking about it could just be that an early diagnosis has helped - even stopping steroids for 6 days only caused a slight pain in my knees after that going back to 5 mg per day has stabilised condition to just tenderness / no pain at all
does anyone know of any research that is being conducted to find out what really causes or triggers this condition?