Urso :)

[Juhainar]

This last few months since I was diagnosed with PBC were incredibly hard, filled with uncertainty and fear, but I want to share some positive results from following a gradual increase in medication and dietary changes.

Although I struggled at first with Urso, and had to start with a slow dose increase (adding half a tablet every 15 days), my alkaline phosphatase (ALK) levels have dropped from 345 to 166 in 2 months.

I’m especially grateful for all the advice and support I received here. The encouragement from your comments kept me going, especially after I ended up in the emergency room when I initially started with four tablets a day. Thank you!

[butterflyEi]

good to read your news

[liver-bird]

So glad to hear you have now settled on Urso and are responding well. Diane

[lovesoccer]

Such wonderful news, Juhainar! Sending you continued best wishes!

[DonnaBoll Administrator]

I am so happy to celebrate the great news from taking the Urso. I appreciate your story about how it's important to just take the Urso as your body tolerates it- not giving up on it. We all need some positives from the disease, don't we?!

[Juhainar in reply to DonnaBoll]

Yes, Donna, The medication is very important. I finally feel hopeful again that my numbers will return to normal—and who knows, maybe one day my body can reverse the progress! :))

[OrangeTulip]

Great news, wishing you continued good health. I also experienced the shock of being diagnosed, like you PBC forced me to change my lifestyle for the better.

[Juhainar in reply to OrangeTulip]

Thank you so much for your kind wishes. When my GI told me that PBC is no longer a death sentence, I found it hard to believe. He set a goal of getting my ALK down to 200, and here I am at 166—without even taking the full URSO dose yet. I’ve switched to a more vegetarian diet, reduced fat intake, and focused on staying stress-free. Please don’t let fear take over. Just take your medication and take good care of yourself!

[OrangeTulip in reply to Juhainar]

Thank you for sharing. Your numbers are impressive. Unfortunately Urso was not enough for me but I’m glad there are meds in the market that work. Keep us updated…