Aches and pains : Got up this am nearly fell... - PBC Foundation

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Aches and pains

Purdy2017 profile image
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Got up this am nearly fell asleep before taking dogs out after come home kept myself going went down the allotment 20 min work just putting in some rasberrie caines absolutely tired out my body fills like lead aches and pains fill like I've walked a hundred miles my bloods are good my hormonal levels are good I'm on hrt is this pbc ?? Or hormonal

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Purdy2017
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DonnaBoll profile image
DonnaBollAdministrator

Speaking from personal experience I can assure you that the sudden onset of fatigue that so often accompanies PBC is almost indescribable to someone else. Usually in the mornings for me, I feel I can barely walk down the hallways to get that first cup of coffee - and I just got up from sleeping. There is no reason for it unfortunately. There is no way to predict when or to what degree this fatigue will occur. I try to encourage folks not to force thru it. We have to, at some point, learn to listen to our bodies when it needs the rest. There is, however, proven truth that exercise does help the fatigue. I'm sure you will get there responses to your post as well. This is really a part of PBC most likely. Be sure to mention it to the liver doc - although, I'm sorry to say, many doctors don't believe it's a real thing.

Purdy2017 profile image
Purdy2017 in reply toDonnaBoll

Thankyou Donna for your response yes I mention to me liver specialist when I see them next it's so upsetting to fill like this my husband has said to go to the doctors but I no that thay cant do anything I'm terrible for listening to my body I fill guilty to rest and I think I'm still in self doubt

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