He said no scarring in liver and no fatty deposits.
Happy girl. 💃
Report from Hep on fibroscan : He said no... - PBC Foundation
Report from Hep on fibroscan
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gwillistexas
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Great. What were your scores?
The only score I have at this time is 9.5. When I was seen no my GI’s NP, she gave me a copy. So I’m not sure how I might get a copy now. I just know the technician said all scores had dropped from last year.
Well, that didn’t come out right, lol! When I was seeing my GI’s NP. Gotta love autocorrect 😅
You can ask for a copy or if you have access to the patient portal, results should be there as well.
Yes, I plan to ask for a copy. I will see my GI’s NP in between visits with hep and she will give me a copy. I will see her in October v
Hip Hep! He gave you good news! I'm pleased for you.
gwillistexas• in reply to
Thank you!
• in reply togwillistexas
Hi
I'm really pleased you got good news. Take care Lynne
Wonderful news! So happy for you x
I’m happy. Have been on OCA almost 2 years. Guess it took that long to actually see it was helping as far as keeping fibrosis away from my liver. Will continue on...😀
Yes, a lot of this journey is about stoicism and optimism. An excellent lesson for life in general!
😊👍
Good!
Well done like me your results were great just makes you feel great. Long journey but so good to know whatever’s supposed to work is working. My LFTs came back all in range and no fibrosis or cirrhosis from my fibroscan. We should celebrate our good news. Keep up the good work
G’morning. Yes ma’am. I especially like to share any good results with Ocaliva because there are so few (that I’m aware of), who take it alone.
😊🦋
Yep good news is over ruled by bad in every walk of life. So good to hear good news on this site. Keep up the good work
😎
Hi
Good to hear your results have improved.
Have you had a liver biopsy? I know it not offered much in other countries but I was diagnosed few months ago, liver biopsy showed Stage 3 Fibrosis!! However Fibroscan showed 5.4 Stage 1 so I had 2nd Fibroscan a few weeks later and it showed 5.8 Stage 1 such inconsistencies between liver biopsy and Fibroscan!!! Some people say liver biopsy is more accurate some say Fibroscan is ..!! Who knows.
Thank you. No I’ve not had a biopsy. My hep sees no need unless lft’s go up considerably. I think he’s mostly referring to AST. Then he might do one to rule out anything else going on.
That's great news Gail - really happy for you. X
Thanks!😊
😃🙌🙌🙌👏👏👏👏👏👏❤
Great great news!!
Stella
Hi Stella. Yes ma’am. I was slightly relieved. You doing ok?
So far, so good. I have labs in a week. Still working on my weight as usual. Now that my company is gone, that should help. I'm only on URSO. I have my 2nd MRE in December. We will see if things have progressed. If I have, I'm hoping to try Seladelpar if I can get in on the trial. Seems everything I take from my RA drugs to simple water pills and the Ocaliva too, turns my stool pale, pale scary light color. Then my ALT and AST go out of whack too and I'm forced to stop taking anything else besides URSO. Losing weight should help with both my RA and swelling. I feel ok otherwise only fatigue and dry eyes bothers me. Still, people in far worse shape plugging away with work and family. I cant complain. ❤ ...but I guess I just did.🤭
I understand. We seem to eat more when we have company. I hope your MRE shows no progression. I know you’re anxious to know. So far I’m not on other drugs. But I’ve not seen a rheumatologist yet either. I know RA , lupus and Sjögrens was ruled out when they sent labs to Austin when first diagnosed. But I do know without being told I have Reynauds. It only bothers me in the cold weather. I pray things will level out for you. And yes, we have so much to be thankful for.
You hang in there. Stay in touch ❤️
I will. Prayers you keep doing well. ❤❤
Thanks! 🌹
Wonderful news!! I think the fibroscan can be very accurate because biopsy just samples one tiny area. When I had my fibroscan, the tech checked about 15 sites very thoroughly.
Lily G
Thanks. I’ve had doubt about fibroscan accuracy but my hep says a lot depends on the technician. He orders them all the time. So I’ll trust his word. 😊
I definitely agree about how the quality depends on the skill of the person performing it. I spent a good hour with a wonderful perfectionist ultrasonographer at Vanderbilt where my hepatologist is located. She did 37 attempts of which 17 were valid to their required specifications. The liver stiffness was 5.5 kPA which was the median measurement with a range of possible error of 0.7 kPA. I was very impressed with her skill and determination and the time she took with me to get the most accurate result.
I needed to hear great news today. HIP HIP HURRAY!!!!!
Well, there ya go 😁
Gail🦋
Stay strong and give it away!
Oh I will! Thanks dear❤️. Take care 😊
That's great, gwillistexas! I'm happy for you. Mine was just done too and I'm happy with the results.
Yeah!
Thank you! Mind if I ask your score?
Sure. Two years ago it was 8 something and a few days ago 6.2. I have no idea why. My Alk Phos is around 350 but some of my other numbers aren't too bad. I'm glad yours is in the 0-1 as well. This illness can be so unpredictable and random.
That’s great! 0-1 as in fibrosis stage? According to my score chart I think I’m a 2. I have a couple different charts saved in my phone that I look at. But who knows, if ocaliva continues doing its job maybe y score will drop more. Hope so😊
When I was an 8 I was told by my GI specialist it was a great score and I was in the 0-1 category (closer to the 1 but still good). I've never actually looked it up on the scales. She told me it meant that there's really little if any signs of fibrosis/cirrhosis. I have the occasional drinks/pastries. Actually have gained a bit of weight (not a good thing). I also take ocaliva 5 mg but can only take a tablet every 2 days due to side effects. The only difference is that I'm able to walk more (couldn't for a couple of years due to bone spur surgery that didn't go well).
Maybe I'm the only one who doesn't know this but one thing she did say was that if you've had a meal near the time of the fibroscan, you can get a higher score just because of that so she spent extra time doing it as I'd had lunch a couple of hours prior. Next time I think I won't eat for a while before the scan to get a more accurate reading instead of what could be a higher scan just because it was done too close to a meal.
Yes, I hope your score drops and mine stays that way. LOL
That’s a good thing. My first fibroscan score in 2017 was 8.2. GI said F2 mild/moderate fibrosis. When I got score last year of 10.8, I thought I was doomed for sure. Funny how drs are so different. I wish I could gain weight. I’ve lost quite a bit and none to lose. If I could take Urso maybe I would gain. Don’t see it happening though. I eat any and everything I want. I had a quarter pounder with cheese and fries at lunch and I guarantee you not one ounce of fat stuck, lol!
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